Long COVID: What bloodwork and vitamin/supplement recommendations?

Posted by bba3 @bba3, Jan 10 5:37pm

My daughter has debilitating fatigue as well as other symptoms (including but not limited to brain fog, cognitive issues, sudden onset nerve pain in feet, cough, shortness of breath). She's looking for non-western medical advice in addition to traditional. Any info you can provide would be greatly appreciated?

Two part question:
1) What blood tests do you recommend requesting for LC?
In addition to CBC, my thought was vitamin panel, ferritin bloodwork, CRP. Any others?
2) What supplements / herbs, etc. have been helpful?
All B vitamins, Vitamin D, Turmeric, Quercetin, NAC (not sure that that is, but read it in a posting), Magnesium, Zinc.

Thank you!

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Thank you.

After 70 mg nicotine yesterday, the arthritic flares are subsiding, and modest inflamation is all that remains. This was a test. The flare began yesterday later afternoon. The joint gets warm and has nerve shooting pains. The nicotine dose was to see if I could get through without using prednisone as it is destroying my blood chemistry, mental condition, and many other symptoms.

Today, no pain, subsiding inflamation.

70 mg nicotine sounds high to most.

I used to dip Copenhagen. Each average dip was 12 mg. A typical long working day (18 hours) would provide time for around 8 to 9 per day.

Roughly a 100 mg. But, with smokeless tobacco, the spitting causes loss of some nicotine. I find no estimates.

I dipped 39 years. I dipped Skoal or Copenhagen from age 12 to age 48. I had the flu twice in that time and no major or significant illnesses.

Nicotine.

My insurance company made me quit in 2018.

Since then I have had Covid 11 or 12 times (going through my notes to come to conclusion after this last round in December and early January), flu, bronchitis many times, and many stomach viruses.

I was premature, less than 5 pounds. Before age 11, I had many flu infections, pneumonia, mumps, measles, whooping cough, 5th Disease, strep, chicken pox, and many other sicknesses. I had major allergies also. All premature birth results. The immune system was not ready yet.

Begin snuff, it all goes away, except allergies.

The medical industrial complex is a mining system to take out money, treat our symptoms, and not look for or solve the problem.

Simple logic is: 1) identify problem, 2) identify source or causal factor (abiotic or biotic), 3) test all known solutions in the immediate sphere impact, 4) if no result on 3) then test secondary sphere, 5) if no impact from 4) then test tertiary sphere.

If no impact, begin novel testing.

Did anyone follow this protocol? No, except one univeristy in Australia.

This is the basic method to idemtify a pathogen or abiotic source of affliction for humans, animals, and plants.

Pathology basics.

Willful ignorance, deception, or lies result in the same effect.

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Solanaceae (nightshade family) includes:
Tomato
Potato
Eggplant
Pepper (all types)
Tobacco
Goose berry
Goji
Tomatillo
Jimson weed
Ground cherry
Henbane
Mandrake
Ditura

Plant extracts from this family:
Atropine
Nicotine

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@lynnehenry21

My doctor finally put me on Super B with Folate and on a week the fatigue was gone. It worked for me but I also went to Physical Therapy to regain my strength.

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We looked up the folate and super B. I am on both and have been since 2021.

Thank you

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@lynnehenry21

I had all the vaccines before I got the Omicron variant and reacted to all of them with flu like symptoms for a week. No more for me!
Are you doing any kind of exercise therapy. I had to work hard at physical therapy to get my strength back.

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Unable. I still have a DVT (groin to bottom of ankle) and SVT (4). PE (3) are clear now. Vovid Viral Reactive Arthritis is severe and has not stopped since February 2023. The full duration from onset is December 27, 2021 to January 21, 2024.

Many days I can't move body joints.

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@cropdoc

Unable. I still have a DVT (groin to bottom of ankle) and SVT (4). PE (3) are clear now. Vovid Viral Reactive Arthritis is severe and has not stopped since February 2023. The full duration from onset is December 27, 2021 to January 21, 2024.

Many days I can't move body joints.

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Have you thought of having an appointment at the Mayo second opinion Clinic ?
Best wishes,
Lynne

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In with Baylor Medical Center, Houston, which is the University medical center for research and Teaching.

Pending first visit with Covid group at University of Texas Sputhwestern (UTSW, Dallas) which is a major complex for education and research.

Pending another visit with univeristy research hospital system in San Antonio.

It takes years to see all the specilists.

They have NO answers. They are collecting data on me and "trying" stuff.

I have had pushing on toward 4.years of that trash..... it is in yout head, this is not covid, you need to go live your life....... because it may be very short, and then the giunea pig testing.

I have a Ph.D. in Pathology. The virus, bacteria, fungi, mycoplasma, nematode, and so forth keep no record of host type. The pathogen is host specific, but the payhogenesis is not defined by plant or animal kimgdom. Neither are the species of pathogens.

These docs have no idea.

They are using a thimble water treatment trying to put out Chernobyl.

The methods are wrong, scope is short, oversight nonexistent, and no site exists to collect all, every bit, of human, pathogen, and the infection interaction and final symptoms.

Slop. Pure slop. Mass money thrown at the boomer gemeration aging into high treatment need then throw on an engineered (proveven by sequencing) novel pathogen.

This is far from over. We are in the "intermission" stage of the forst movie in a multipart movie.

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Please excuse frustration. Please also excuse incorrect typing. My brain switches letters in words (transposes), numbers, my fingers literally go to what appears in my mind as the correct key, but when I recheck what was printed it is wrong. Letter and numbers. I had to turny whole business and personal finances over to someone else. Miskey issues were huge.

Even when I proof read, and always do, I still miss the problems.

It takes forever to type or text. I can write by hand if I am not having a.flare in that elbow, hand, or fingers.

Per Mayo Clinic:
Distance 1010 miles or 18 hours with stops driving straight through. Scottsdale Mayo is 923 miles and 16 hours driving with a few stops.

Not possible with my health. Thank you for the suggestion. I have not rode in a plane since the first covid. I have such ear issues and the pressure change, noise, and stimulus from all the trip..... not possible.

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@bba3

Thank you very much for your response.
I really appreciate the link you provided also. Thank you.
It seems like there’s not 1 thing COVID does not affect.
My daughter notices that when she gets the foot pain the LC extreme fatigue comes shortly after. She’s seeing a pattern with the symptoms.
She needs to get to a new dr so she can address some of these things but she’s been dealing with her hip issue (a tear in hip labrum from the fall due to COVID dizziness). She can only deal with so much at once (emotionally it’s been extremely difficult). She went back to the orthopedist and he needs to do surgery but not until she can reduce the pain from the 4 bulging discs she also got from the fall. In order to do that she needs to go to a pain clinic. So that is the next step. And Medicaid insists she get that referral from a regular dr instead of the ortho. I don’t understand that but we must jump through the hoops.
My hope is that she can begin to address these other issues when she goes to the regular dr apt.
Again, thank you so very much for your reply.
It is heart-breaking for me to watch her suffer so much with all of these issues. I wish I could take it on for her.

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I’m sorry your daughter is going through so much!
I know you mentioned she didn’t want to take meds, but Paxlovid might help her.
It really helped me with dizziness and brain fog and pains, and twitching… all of my LC symptoms.

I had been trying all kinds of natural supplements and solutions but nothing was really working, then I had Paxlovid and my world and brain turned around!

It might be worth a shot, I felt better within 2 days of taking it and I’m still on it. It’s been a game changer for me

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Since I’m 19 yrs out from major organ transplant, I’m already getting labs every 6 mo, CBC, CMP, and cyclosporin level, once a yr they add thyroid and cholesterols, and any others they decide any time. I recently read where scientists biopsies muscle cells in LC, and also controls. They found that in LC, the mitochondria in the muscle cells were damaged and destroyed, those organelles are the energy pumps that move our bodies. Then they tested pts with other similar symptoms, Long Lyme, CFS/ME, etc., and found same problem with mitochondria. So I’ve been researching what I can take to improve the situation with mitochondria as new cells turn over with time.
I was already taking lots of supplements, for years, about 40-45 per day, but I added D-ribose, creatine, increased doses of Ubiquinol, NAC, ALA, l-theanine, l-carnitine, etc. still early to say if any improvement.

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Has anyone had any luck battling Covid related Chronic Fatigue Syndrome?

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