Thank you for your reply. I am glad to hear yours are stable. I suppose its just a waiting game for me now. I will follow up with my results whenever I find out more. Do you mind if I ask if you got the ct scan as part of lung cancer screening or was yours an incidental finding because you were being scanned for something else. I had a ct scan for coronary calcium scoring two years ago which states in the report NO SUSPICIOUS PULMONARY NODULES. And then I just had my first LDCT lung cancer screening (because I am a former smoker who fits the criteria for being screened) and here we are with four nodules unfortunately.
I have 6 nodules found incidentally when I had a chest x-ray for a respiratory infection and something 'suspicous' appeared. So I had a followup CT and it showed 6 ground-glass nodules. I met with a lung surgeon and radiation oncologist, they agreed we do nothing for now. I had had a CT scan 8 years prior and these nodules had doubled in size since then. I had a follow-up CD 6 months later and there was No change whatsoever; i have another in a month, we are doing 6-month CT's for 2 years; if anything. changes we will do robotically assisted targeted radiation... kind of nerve-wracking but because they are all fully ground glass that is the current best practice, waiting and doing surveillance. hope this helps some.
I have 6 nodules found incidentally when I had a chest x-ray for a respiratory infection and something 'suspicous' appeared. So I had a followup CT and it showed 6 ground-glass nodules. I met with a lung surgeon and radiation oncologist, they agreed we do nothing for now. I had had a CT scan 8 years prior and these nodules had doubled in size since then. I had a follow-up CD 6 months later and there was No change whatsoever; i have another in a month, we are doing 6-month CT's for 2 years; if anything. changes we will do robotically assisted targeted radiation... kind of nerve-wracking but because they are all fully ground glass that is the current best practice, waiting and doing surveillance. hope this helps some.
Hi Sura, Thank you for your reply and the information on your nodule surveillance. I agree it is nerve wracking and I just started this process! It seems yours is a many years long process with times of stability. I guess that's a good thing. Have you ever had any one of them biopsied or done one of the liquid biopsy blood testing biomarkers? I've read they can give a better idea of the malignancy probability on nodules that can't be biopsied using invasive methods. Have your doctors given you much information about these fully ground glass nodules over the years? Mine are fully ground glass as well except one small part solid one. I am trying to learn as much as I can about them. I go see a pulmonologist in November. Thank you again for your reply. Wishing you good health!
I have 21 ground glass nodules between both lungs. My first CT scan was over ten years ago. I do have a pulmonologist and at first she ordered a yearly scan and after all these years since nothing has changed or grown it is now every two years. I will be 83 in two weeks. I do have CVID which is a form of primary immunodeficiency and have to give myself infusions of blood plasma gammaglobulin to get other people's antibodies to fight virus and bacteria. People like me have all sorts of strange things. For a broad of my age and having a rare disorder I'm pretty healthy. I try to walk a couple of miles a day. I am just full of osteoarthritis. I try not to think about what's going on in my lungs until it's time for my scan then that's all I think about.
Hi Sura, Thank you for your reply and the information on your nodule surveillance. I agree it is nerve wracking and I just started this process! It seems yours is a many years long process with times of stability. I guess that's a good thing. Have you ever had any one of them biopsied or done one of the liquid biopsy blood testing biomarkers? I've read they can give a better idea of the malignancy probability on nodules that can't be biopsied using invasive methods. Have your doctors given you much information about these fully ground glass nodules over the years? Mine are fully ground glass as well except one small part solid one. I am trying to learn as much as I can about them. I go see a pulmonologist in November. Thank you again for your reply. Wishing you good health!
I believe I was unclear. The process is pretty new to me. The nodules were found about 9 months ago when a chest Xray showed something suspicious. So this was followed by a CT scan which showed the nodules. My only other chest X-ray was Eight years Earlier, showing these same nodules but I was told by doctors not to worry (at that time there was no great push for CT's for former smokers). It was at this 9-month CT scan that the nodules were viewed again, and that they had doubled in size during those 8 years. But of course no one had any idea if they had 'suddenly' grown or slowly & steadily grown over the 8 years.....the next CT scan was six months later and it showed absolutely No Change in form, size, substance, margins.....Because they are pure ground glass with clearly defined edges, the lung surgeon and radiation oncologist decided that surveillance with 6-month CT's scan (over two years) was the treatment of choice. My next scan is in November. My radiation oncologist calls this Stage Zero, he is primarily searching for any change in the ground glass aspect. We stop the CT scans before 2 years if there is any significant change. I am under the treatment of the radiation oncologist becuase that is the direction I have decided to go - rather than surgical removal. It would be robot-assisted target radiation directly to the nodule(s). New therapies are coming on board really quicky, now the targeted radiation can include drugs directly injected at the site during radiation....i have not felt the need for any bio markers nor biopsies. The risks on the biopsy can be pretty high. I smoked for 47 years, stopped about 15 years ago so I am high-risk. I am now 78 - yikes, how did That happen?.....anyway when i first learned of the nodules I did a great deal of research. Longevity was a site I found tremendously useful.
s
I believe I was unclear. The process is pretty new to me. The nodules were found about 9 months ago when a chest Xray showed something suspicious. So this was followed by a CT scan which showed the nodules. My only other chest X-ray was Eight years Earlier, showing these same nodules but I was told by doctors not to worry (at that time there was no great push for CT's for former smokers). It was at this 9-month CT scan that the nodules were viewed again, and that they had doubled in size during those 8 years. But of course no one had any idea if they had 'suddenly' grown or slowly & steadily grown over the 8 years.....the next CT scan was six months later and it showed absolutely No Change in form, size, substance, margins.....Because they are pure ground glass with clearly defined edges, the lung surgeon and radiation oncologist decided that surveillance with 6-month CT's scan (over two years) was the treatment of choice. My next scan is in November. My radiation oncologist calls this Stage Zero, he is primarily searching for any change in the ground glass aspect. We stop the CT scans before 2 years if there is any significant change. I am under the treatment of the radiation oncologist becuase that is the direction I have decided to go - rather than surgical removal. It would be robot-assisted target radiation directly to the nodule(s). New therapies are coming on board really quicky, now the targeted radiation can include drugs directly injected at the site during radiation....i have not felt the need for any bio markers nor biopsies. The risks on the biopsy can be pretty high. I smoked for 47 years, stopped about 15 years ago so I am high-risk. I am now 78 - yikes, how did That happen?.....anyway when i first learned of the nodules I did a great deal of research. Longevity was a site I found tremendously useful.
s
I have 21 ground glass nodules between both lungs. My first CT scan was over ten years ago. I do have a pulmonologist and at first she ordered a yearly scan and after all these years since nothing has changed or grown it is now every two years. I will be 83 in two weeks. I do have CVID which is a form of primary immunodeficiency and have to give myself infusions of blood plasma gammaglobulin to get other people's antibodies to fight virus and bacteria. People like me have all sorts of strange things. For a broad of my age and having a rare disorder I'm pretty healthy. I try to walk a couple of miles a day. I am just full of osteoarthritis. I try not to think about what's going on in my lungs until it's time for my scan then that's all I think about.
Hi Gussie, Thank you for replying! It sounds like you have been following yours for a very long time! I'm so glad they have been stable and unchanged for you. That gives me hope. At age 83 and walking a couple of miles a day, I dare say you are way ahead of the curve! I hope I will be able to say the same one day. I need to figure out a way not to think about what's going on in my lungs until its time for scans too. I know that worrying about it excessively is not productive. Unfortunately I think I'm wired to view things from a scary and negative perspective and always thinking "worst case scenario" and "what if's" to the point they interfere with my living. Wishing you good health!
I believe I was unclear. The process is pretty new to me. The nodules were found about 9 months ago when a chest Xray showed something suspicious. So this was followed by a CT scan which showed the nodules. My only other chest X-ray was Eight years Earlier, showing these same nodules but I was told by doctors not to worry (at that time there was no great push for CT's for former smokers). It was at this 9-month CT scan that the nodules were viewed again, and that they had doubled in size during those 8 years. But of course no one had any idea if they had 'suddenly' grown or slowly & steadily grown over the 8 years.....the next CT scan was six months later and it showed absolutely No Change in form, size, substance, margins.....Because they are pure ground glass with clearly defined edges, the lung surgeon and radiation oncologist decided that surveillance with 6-month CT's scan (over two years) was the treatment of choice. My next scan is in November. My radiation oncologist calls this Stage Zero, he is primarily searching for any change in the ground glass aspect. We stop the CT scans before 2 years if there is any significant change. I am under the treatment of the radiation oncologist becuase that is the direction I have decided to go - rather than surgical removal. It would be robot-assisted target radiation directly to the nodule(s). New therapies are coming on board really quicky, now the targeted radiation can include drugs directly injected at the site during radiation....i have not felt the need for any bio markers nor biopsies. The risks on the biopsy can be pretty high. I smoked for 47 years, stopped about 15 years ago so I am high-risk. I am now 78 - yikes, how did That happen?.....anyway when i first learned of the nodules I did a great deal of research. Longevity was a site I found tremendously useful.
s
Hi Sura, Thank you for the clarification. I understand that pure ground glass nodules can become quite large before the need to even ever do anything as compared to part solid or solid nodules. In any case, I hope yours will remain stable without changes at all or at least grow so slowly you'll never need to address them. I have 4 nodules ground glass, ranging from 4-7mm in size. At this point I'm not sure how long I've had them. Im in the process of trying to figure out if they were there 2 years ago when I had a ct scan to obtain a calcium score on my heart. Prior to that I don't believe Ive ever had a ct scan before. Im glad you have a plan to treat your nodules if ever necessary though and a good surveillance routine established to help you and your dr. keep an eye on them. Wishing you good health!
Hi Sura, Thank you for the clarification. I understand that pure ground glass nodules can become quite large before the need to even ever do anything as compared to part solid or solid nodules. In any case, I hope yours will remain stable without changes at all or at least grow so slowly you'll never need to address them. I have 4 nodules ground glass, ranging from 4-7mm in size. At this point I'm not sure how long I've had them. Im in the process of trying to figure out if they were there 2 years ago when I had a ct scan to obtain a calcium score on my heart. Prior to that I don't believe Ive ever had a ct scan before. Im glad you have a plan to treat your nodules if ever necessary though and a good surveillance routine established to help you and your dr. keep an eye on them. Wishing you good health!
I forgot to add: I read a few studies and some experimental ones that are ongoing, about the effects of Circumin on keeping nodules from growing. Just in case, I did start taking it daily. No matter what, it is still known to reduce inflammation which is always helpful. The studies I read used CircuWin. I started there but it was very $$. I now take Curcumin C3 (which is the variety that is recommended), 500mg, by Transparent Labs. I take it every other day as the studies were used with 150-200mgs, I believe.
In case this is helpful to you....
s
I forgot to add: I read a few studies and some experimental ones that are ongoing, about the effects of Circumin on keeping nodules from growing. Just in case, I did start taking it daily. No matter what, it is still known to reduce inflammation which is always helpful. The studies I read used CircuWin. I started there but it was very $$. I now take Curcumin C3 (which is the variety that is recommended), 500mg, by Transparent Labs. I take it every other day as the studies were used with 150-200mgs, I believe.
In case this is helpful to you....
s
Hi, thank you for the recommendation. I do take curcumin every once in awhile for inflammation as well. I have heard that pomegranate juice also keeps nodules from growing via a different mechanism. I don't know how much of this is true but never hurts to eat, drink, as healthily as possible and exercise! To good heath!
Thank you for your reply. I am glad to hear yours are stable. I suppose its just a waiting game for me now. I will follow up with my results whenever I find out more. Do you mind if I ask if you got the ct scan as part of lung cancer screening or was yours an incidental finding because you were being scanned for something else. I had a ct scan for coronary calcium scoring two years ago which states in the report NO SUSPICIOUS PULMONARY NODULES. And then I just had my first LDCT lung cancer screening (because I am a former smoker who fits the criteria for being screened) and here we are with four nodules unfortunately.
My CT was for something else. I wasn't eligible lung cancer screening because I quit a long time ago. I don't think an additional followup was suggested.
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I have 6 nodules found incidentally when I had a chest x-ray for a respiratory infection and something 'suspicous' appeared. So I had a followup CT and it showed 6 ground-glass nodules. I met with a lung surgeon and radiation oncologist, they agreed we do nothing for now. I had had a CT scan 8 years prior and these nodules had doubled in size since then. I had a follow-up CD 6 months later and there was No change whatsoever; i have another in a month, we are doing 6-month CT's for 2 years; if anything. changes we will do robotically assisted targeted radiation... kind of nerve-wracking but because they are all fully ground glass that is the current best practice, waiting and doing surveillance. hope this helps some.
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2 ReactionsHi Sura, Thank you for your reply and the information on your nodule surveillance. I agree it is nerve wracking and I just started this process! It seems yours is a many years long process with times of stability. I guess that's a good thing. Have you ever had any one of them biopsied or done one of the liquid biopsy blood testing biomarkers? I've read they can give a better idea of the malignancy probability on nodules that can't be biopsied using invasive methods. Have your doctors given you much information about these fully ground glass nodules over the years? Mine are fully ground glass as well except one small part solid one. I am trying to learn as much as I can about them. I go see a pulmonologist in November. Thank you again for your reply. Wishing you good health!
I have 21 ground glass nodules between both lungs. My first CT scan was over ten years ago. I do have a pulmonologist and at first she ordered a yearly scan and after all these years since nothing has changed or grown it is now every two years. I will be 83 in two weeks. I do have CVID which is a form of primary immunodeficiency and have to give myself infusions of blood plasma gammaglobulin to get other people's antibodies to fight virus and bacteria. People like me have all sorts of strange things. For a broad of my age and having a rare disorder I'm pretty healthy. I try to walk a couple of miles a day. I am just full of osteoarthritis. I try not to think about what's going on in my lungs until it's time for my scan then that's all I think about.
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Helpful -
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1 ReactionI believe I was unclear. The process is pretty new to me. The nodules were found about 9 months ago when a chest Xray showed something suspicious. So this was followed by a CT scan which showed the nodules. My only other chest X-ray was Eight years Earlier, showing these same nodules but I was told by doctors not to worry (at that time there was no great push for CT's for former smokers). It was at this 9-month CT scan that the nodules were viewed again, and that they had doubled in size during those 8 years. But of course no one had any idea if they had 'suddenly' grown or slowly & steadily grown over the 8 years.....the next CT scan was six months later and it showed absolutely No Change in form, size, substance, margins.....Because they are pure ground glass with clearly defined edges, the lung surgeon and radiation oncologist decided that surveillance with 6-month CT's scan (over two years) was the treatment of choice. My next scan is in November. My radiation oncologist calls this Stage Zero, he is primarily searching for any change in the ground glass aspect. We stop the CT scans before 2 years if there is any significant change. I am under the treatment of the radiation oncologist becuase that is the direction I have decided to go - rather than surgical removal. It would be robot-assisted target radiation directly to the nodule(s). New therapies are coming on board really quicky, now the targeted radiation can include drugs directly injected at the site during radiation....i have not felt the need for any bio markers nor biopsies. The risks on the biopsy can be pretty high. I smoked for 47 years, stopped about 15 years ago so I am high-risk. I am now 78 - yikes, how did That happen?.....anyway when i first learned of the nodules I did a great deal of research. Longevity was a site I found tremendously useful.
s
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Hi Gussie, Thank you for replying! It sounds like you have been following yours for a very long time! I'm so glad they have been stable and unchanged for you. That gives me hope. At age 83 and walking a couple of miles a day, I dare say you are way ahead of the curve! I hope I will be able to say the same one day. I need to figure out a way not to think about what's going on in my lungs until its time for scans too. I know that worrying about it excessively is not productive. Unfortunately I think I'm wired to view things from a scary and negative perspective and always thinking "worst case scenario" and "what if's" to the point they interfere with my living. Wishing you good health!
-
Like -
Helpful -
Hug
2 ReactionsHi Sura, Thank you for the clarification. I understand that pure ground glass nodules can become quite large before the need to even ever do anything as compared to part solid or solid nodules. In any case, I hope yours will remain stable without changes at all or at least grow so slowly you'll never need to address them. I have 4 nodules ground glass, ranging from 4-7mm in size. At this point I'm not sure how long I've had them. Im in the process of trying to figure out if they were there 2 years ago when I had a ct scan to obtain a calcium score on my heart. Prior to that I don't believe Ive ever had a ct scan before. Im glad you have a plan to treat your nodules if ever necessary though and a good surveillance routine established to help you and your dr. keep an eye on them. Wishing you good health!
I forgot to add: I read a few studies and some experimental ones that are ongoing, about the effects of Circumin on keeping nodules from growing. Just in case, I did start taking it daily. No matter what, it is still known to reduce inflammation which is always helpful. The studies I read used CircuWin. I started there but it was very $$. I now take Curcumin C3 (which is the variety that is recommended), 500mg, by Transparent Labs. I take it every other day as the studies were used with 150-200mgs, I believe.
In case this is helpful to you....
s
Hi, thank you for the recommendation. I do take curcumin every once in awhile for inflammation as well. I have heard that pomegranate juice also keeps nodules from growing via a different mechanism. I don't know how much of this is true but never hurts to eat, drink, as healthily as possible and exercise! To good heath!
My CT was for something else. I wasn't eligible lung cancer screening because I quit a long time ago. I don't think an additional followup was suggested.