Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I've been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don't have any issues with any of my lumbar disks. I'm in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

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Yes . I've been dealing with with sitting pain for 3 years now. Been to several orthopedic doctors as well as physical therapists chiropractor massage therapists and pain management. Got 3 weeks of relief from a steroid injection once but no relief since. My pain occured following surgery for small bowel obstruction. I now believe it's a damaged nerve
and am currently looking for a doctor to treat it.

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I have had similar feelings when I sit for over eight years. This and a lot of other pain was the result of a hard skNo one seems able to dianose it. It was somewhat under control after new meds and a spinal cord stimulator implant. Then the SCS paddle burned out after three years and the pain returned. It has been increasing over the past three years to a point where even walking is very painful. Can't exercise or even do jobs around the house. I am waiting for a trial of a new spinal corl stimulator. Unfortunately, medical care here in Delaware moves at the speed of molasses in January if you get my drift. This and a lot of other pain is the result of a hard ski fall on my back eight years ago. It's either a very difficult problem to diagnose or Docs aren't willing to take the time to take a deeper dive into the problem. If we were NFL superstars, I suspect the problem would have been diagnosed and treated with a few weeks.

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My OB/gyn put my tailbone back in place. It takes 2 tries and hurt like heck but it is instant relief. He did it in his office. Check it out.

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Its really sad when our medical " professional" can do nothing to help us other than to shoot us full of drugs. Over 8 years of having this intense pain in the butt and back of my thighs. Its really sad some many people suffer and no one can help us!

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Have you had a sacral MRI to check for Tarlov cysts which occur on the sacral nerves and cause pain sitting and burning pain in posterior glutes and thighs. Most doctors don’t acknowledge them as a possibility and don’t check for them.

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@blue717

Its really sad when our medical " professional" can do nothing to help us other than to shoot us full of drugs. Over 8 years of having this intense pain in the butt and back of my thighs. Its really sad some many people suffer and no one can help us!

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@blue717, oh they can. but they choose not to. this way you keep coming back for more help. they they give you more medicine that will only help for awhile. @danny5

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@lisalucier

Hi, @travipr. Welcome to Mayo Clinic Connect. You are correct that this thread has not been active for a while, but yet I think some of our members may have some insights for you.

A few things that were mentioned in these old posts as possibilities to check out with your doctor might be 1) a broken tailbone or 2) ankylosing-spondylitis, https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808 or 3) some other type of nerve damage.

If you wouldn't mind, @travipr, could you tell us a little more about the following, in order to connect you with members who may have input for you?
- How this buttock pain arose for you
- Any more details about the symptoms you are experiencing, like type of pain (sharp, burning, etc.)
- What makes the pain worse or better
- What tests you may have undergone to date for this
- Protocols you have tried

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@travipr and @dailypain @blue717 @danny67: Here are the things which have caused and still can cause unbearable pain in the sitz bones:
1) HIPS WHICH NEEDED REPLACEMENT! The doctors can't see all the areas where the cushion is eroded. I suffered for years. Dr. did the first hip replacement which helped - I ORDERED him (handed him a check!) to do the second one which solved that problem!!!
Here are the things which caused and have caused unbearable pain in the sitz bones:
The doctors can't see all the areas where the cushion is eroded. I suffered for years. Dr. did the first hip replacement which helped - I ORDERED him (handed him a check!) to do the second one which solved that problem.
2) Piriformis Dysfunction - what do I do for it? periodic steroid or NSAID injections (Toradol) over the years
3) tiny muscles/connective tissue off the spine aside the tailbone What do I do for it?
A) lay on dogs little rubber ball and roll around a few times a day for a few days
B) Stretch by sitting on a chair bending my left knee out and lifting left ankle over the right knee and pushing down on the left knee GENTLY. It burns like a $#@%*!!! do it a couple times a day for a few days. (mine is primarily on the left side. Do the right side or both.
C) Go for MFR! (read Mayo Clinic category on this!) It is NOT massage therapy. Kiss some frogs before you find your prince therapist on this. It is so painful but he found the area which is the culprit. I was heading back for another lumbar surgery. It stopped that in its tracks. Its weak muscles/connective tissue problems and a curved spine PLUS sitting too much over my lifetime. The muscles are trained to hold you in position to sit. When we age they have to work too hard. After MFR if I sit they snap back into painful spasm. I have to keep on with regular MFR and improve my sitting habits.
4) Botox! (covered by insurance! It paralyzes those little muscles snapping into spasm for a while.
@dailypain - in California where I live you get disability and medical coverage if you must quit your job. I hate to tell you this -- but your "job" might be causing some of this. Mine was!
I have always seen in my life as tragic as it is when one door shuts another is opened - even if I can't see it. I hope it will be the same for you!
Some of these things have resolved but then I go back and think I can sit again for hours on end and I put myself in the same jam. Double-check what you are doing. Doctors can only give medicines because people are stubborn and won't make the necessary lifestyle changes. 😉

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