Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Would love any additional updates from anyone my husband also just had this and they have done nothing, and basic just a wait and see. That does not really sit well with me, feel like we should be more proactive?

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Hello-please see my post at the celiac artery dissection thread as celiac aneurysm can occur with this issue. Hope this helps. Also, there are two types of celiac aneurysms-true and false which determines how they are treated. My personal advice is to always seek a second opinion for serious medical issues like this with a specialist (like a vascular surgeon) at a tertiary care center where these rarer problems are treated more frequently. Hard to balance anxiety of the risks and concerns of monitoring vs the risks of treatment.

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My celac artery dissected recently. The doctors think it could fix itself. I have a new scan in 6 months to see how I am doing. It is a lot to digest, but I've worked as a medical professional for over 30 years. It has helped my own understanding of everything.

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Hang in there. The fact that you're under a doctor's care and monitoring it means you're better off than 99% of the people out there who do not know that they have this condition. Peace.

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Profile picture for muddytoes @muddytoes

I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct scan. It’s 1.5 cm and fusiform. My cardiologist doesn’t seem too concerned but my internet searches are terrifying. He ordered an angiogram which my insurance denied. I don’t go back to the dr for a couple of weeks. Is there anyone out there who can have a conversation about this? Are there things I should and shouldn’t be doing? I feel like I’m walking around with a live hand grenade in my gut.

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Are you sure it was in the celiac artery? Because wow, what a story. If I knew my aneurysm has a tear or is ruptured, I wouldn’t leave the hospital. I would demand answers and help. I mean you are lossing blood?

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Profile picture for muddytoes @muddytoes

I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct scan. It’s 1.5 cm and fusiform. My cardiologist doesn’t seem too concerned but my internet searches are terrifying. He ordered an angiogram which my insurance denied. I don’t go back to the dr for a couple of weeks. Is there anyone out there who can have a conversation about this? Are there things I should and shouldn’t be doing? I feel like I’m walking around with a live hand grenade in my gut.

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Is there anyone on here whereby the hospital did testing for connective tissue disorders/diseases?
I wonder because they told me that having aneurysms can be a sign of connective tissue disorders?

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Profile picture for muddytoes @muddytoes

I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct scan. It’s 1.5 cm and fusiform. My cardiologist doesn’t seem too concerned but my internet searches are terrifying. He ordered an angiogram which my insurance denied. I don’t go back to the dr for a couple of weeks. Is there anyone out there who can have a conversation about this? Are there things I should and shouldn’t be doing? I feel like I’m walking around with a live hand grenade in my gut.

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You shouldn’t worry needlessly. I was diagnosed 10 years ago and it has remained the same.
He sees me once a year with no new symptoms or growth.

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Profile picture for muddytoes @muddytoes

I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct scan. It’s 1.5 cm and fusiform. My cardiologist doesn’t seem too concerned but my internet searches are terrifying. He ordered an angiogram which my insurance denied. I don’t go back to the dr for a couple of weeks. Is there anyone out there who can have a conversation about this? Are there things I should and shouldn’t be doing? I feel like I’m walking around with a live hand grenade in my gut.

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I too have a CAA and a dissection in that artery. The dissection is more of a concern than the aneurysm until it reaches 2.0 cm or increases in size rapidly. My drs instructed me not to lift more than 10# and watch my breathing and exertion. Also to watch my blood pressure and keep it as low in the correct ranges as possible.
That artery feeds many organs so any lower back pain should be a concern.
I've been on a 6 month cadence for 4 scans and after this next one I'll go to 12 months if nothing has changed.
I also have an ascending aorta aneurysm at 4.3 cm which comes with the same instructions.
Since you don't have a tear or rupture, medical professionals don't see immediate need to surgically intervene. However, relax more if you can and keep a keen eye on it and follow all of your instructions. Since it is smooth on both ends it seems there isn't an abrupt interference with blood flow that may give your drs something more to be concerned about.

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Profile picture for bdickinson666 @bdickinson666

Yes, thank you, I am seeing a vascular surgeon to determine what surgery should be done

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Hi - I am in Australia too. Let us know how you are doing with your surgery plan - or how did you go? PM me if you want to chat.

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I read in one of the comments that one of the members on Mayo Clinic Connect had a celiac artery aneurysm repaired by an embolization w/ coils procedure back in 2016. My husband has a celiac artery aneurysm that is 1.5 cm in size, and I have read on this site that usually these aneurysms are repaired when they reach 2 cm in size. We are very interested in a less invasive approach and are wondering if Mayo Clinic's Vascular Surgery department repairs celiac artery aneurysms with this less invasive endovascular approach or if this is an endovascular procedure repaired by interventional radiology. Any information regarding this issue would be most helpful. Thank you all and best wishes for good health.

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