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NASH and cirrhosis of the liver.
I have type 2 diabetes and have been diagnosed with chronic non-alcoholic steatohepatitis with mild intracytoplasmic cholestasis. Minimal lobular actvity. Scattered lymphocytic infiltrates noted within the portal tracts with minimal hepatocyte necorsis and mild portal fibrosis. Due to also having portal hypertension, gastric varices and stomach polyps, it has been suggested that I may have cirrhosis of the liver as well. Does anyone else have this diagnosis and should I be greatly concerned? Is there treatment for this? Any help would be appreciated.
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i have stage 4 cirrhosis and im 29 years old
Biopsy shows cirrhosis stage 4, US shows hepatosplenomegaly, liver measure 29 cm and spleen 15 cm, and portal hypertension at 1.2 Last Meld score was an 11. Not on list, want to be. The doctors where i live have no idea what caused this. I need help.
Welcome, @mariah1203. @kanaazpereira, the moderator of this group, usually does the first welcome, but I wanted to jump in to continue our conversation that we started on Mayo Clinic Facebook page. I'm glad you joined Connect where you'll meet people in similar situations like @mollyb1968 @rosemarya @v1crew @hurtle12 @dianne1 @davidgenebarnes and others.
You may wish to also pop over to the Transplants group https://connect.mayoclinic.org/group/transplants/ where there are a couple of discussion about getting listed:
- How do I get listed for a transplant https://connect.mayoclinic.org/discussion/how-do-i-get-listed-for-a-transplant/
- getting listed https://connect.mayoclinic.org/discussion/getting-listed/
You mentioned that you'd like to talk to someone at Mayo. Here are the contact number for all 3 locations http://mayocl.in/1mtmR63
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2 Reactions@mariah1203, Welcome. I would like to send you a virtual hug. I know how frightened you must be and I want you to know that I care about you. I am 68 and I received a liver/kidney transplant 7 1/2 years ago. Colleen has tagged others who are recipients, or who are living with liver disease, or who are waiting for a transplant. You are not alone.
Rosemary
@mariah1203, I do not know what those numbers are about. That is for the doctors to figure out. But I am wondering this - Why did you get a biopsy and who ordered it, or is following your medical care? You need to consult with a gastroenterologist (GI) because he/she can put these numbers in perspective for you. If there is not a GI where you live, then it would really be worth traveling to see one.
When I was experiencing some 'crazy' liver numbers early in my disease, my primary care physician referred me to a gastroenterologist. My GI was the one who took care of my liver treatment up until I needed referral to transplant dept. in my region.
It took a while for the GI to diagnose my liver disease. So it might take a while for you, too.
Let me know if there is anything I can (try) to help you with.
Rosemary
thank you
Have you talked to Mayo Clinic about an appointment? @colleenyoung has provided some excellent links and contact information.
@mariah1203 we are here to share our experience and to support. I, myself, do not believe this is the forum for a funding source.
Please keep coming here with questions relating to your health. I'm looking forward to hearing about your appointment and eventually a diagnosis that will lead to some answers.
Rosemary
thank you . i need to hear success stories.
I requested a biopsy when my liver became 4 times the size of a normal one and I could no longer deal with the pain and doctors telling me it was because drank alcohol. I knew it wasn't. Biopsy provided me with the proof I needed.
It would be my dream come true to be seen by a hepatologist at Mayo in Rochester. I don't not have any money to come to Mayo. They don't take my insurance. I have a diagnosis but no answers why or solutions on how to treat it.