Airway clearance
I have MAC (found along with pseudomonas in a sputum culture)and Bronchiectasis. I was treated with Cipro for the pseudomonas and have been on the Big 3 for almost two months for the MAC. Every discussion I read talks about nebulizing with saline solution and daily airway clearance. I have no cough and am unable to cough up any mucous. I use my albuterol inhaler and then my accapella but do not produce any mucous. Does anyone else have “dry” MAC? I do have slight drainage down the back of my throat but I wonder if I could figure out how to clear out my lungs if I would get well faster.
Mary Jane
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Do you guys have to stop in the middle when you do airway clearance or inhaling arikayce or amikacin?
I need to stop now and then to cough up mucus. It keeps secreting during the process, so it takes me 1.5 hours + to do saline and amikacin everyday!!! Very time consuming!!!
That is advantage of being retied. 🙂 I hope I have enough time to do exercise!! Airway clearance and reading takes a lot of time. I tell myself nothing can be perfect, do the best you can. 🙂
Thanks Lilianna, how do you feel recently? Did you try the way I told you?
I think the upside down gesture caused the blood, as I never had it before. Hopefully I should be fine with 7% saline in the future. Thank you! 🙂
Hello. I would take 1.5 hrs a day. I was on 3 oral antibiotics for a year and a half for MAC. They became resistant to the bacteria, and I was put on IV Amikacin & Imipenem in June, 3 times a day. It usually takes at least 4 to 5 hrs everyday to get this done. I just had a Robotic lung resection to remove a cavity, which was continuing to grow despite all of the meds. The surgeon though that was where the bacteria was breeding. Surgery was on 8/5. I am a very active 69 year old and and I am hoping I can get back to where I was - playing tennis, riding and doing yard work. I am only on my 4th week post op, but I have been coughing my head off - it's a very dry cough and my breathing doesn't seem as good as it was before. Doctor's say it's from the anesthesia, tube, etc, and will get better with time, but let me tell you, everyday I question if I should have had the surgery. I know I am very impatient , I am not a good sit around and take it easy type of person, but I am trying to be good and go by the doctors instructions. The only symptom I had when diagnosed with Mac, was coughing, which I have done every morning as long as I can remember. My pulmonologist wants to keep me on these IV meds for another month, then switch to a different IV med and an oral medication for 9 more months. He wants 3 neg cultures before stopping the meds. I have an appointment with an infectious disease doctor next month to discuss all of this with him. I do not want to continue the IV meds for a year, so I am hoping we can come up with another plan.
Sorry to hear that. I will text you some information!
I got a compression vest which beats on your chest to loosen mucous. I try to do nebulizer but the saline is killing me cough so hard I throw up
Hi, maybe you can change saline to a lower does? Does your insurance company cover this cost of vest?
I changed airway clearance to 1 time per day and my bleeding also stopped. Guess saline irritation + upside down gesture both contributed to it.
I pay a copay of 150 a month
You had bleeding?? I just feel like I have to vomit. I put all of albuteral and half of saline