Aortic Aneurysms – Introduce yourself & meet others

I plan to have that genetic test as well. I only just learned about it. I hope my kids don't have a bad gene. Yes, it does rather stay on one's mind. It's like Before AAA and after diagnosis. The world has shifted a bit. This group helps.

I'm in the US. I'm getting the test because I asked for it and my cardiologist referred me. I want to know if what I have is genetic or not. If it is, I want to tell my kids. My son is 54, my daughter 47, and I believe they would benefit from knowing. It really has nothing to do with me. It's all about them.

I completely understand , I have BAV and I’ve encouraged both my boys to be screened for bicupsid valve and aneurysm . I’ve had weird things happening so I wanted to be screened for connective tissue disorders . Maybe once I finally get an appt with a cardiologist and will ask him. I wish you well and thanks for replying:)

Hi everyone,
I had an open AAA procedure about 3 months ago which was successful but i am now experiencing frequent discomfort in my right buttock
Whilst I was told this could happen post surgery due to possible ‘clot residue’ in the blood vessels, i wasn’t given any advice on what if anything can be done to alleviate this condition.
Anyone ??

I did the same, my cardiologist is not only an expert in aneurysms and bicuspid valves but also works with a team of geneticists as he does research regarding those subjects. He actually suggested I got tested and asked me to participate in a research study to identify genetic markers for aneurysms (my siblings and mom participated too). He also got my children tested for bicuspid valve and MRIed for possible aneurysms (all clear). That’s why I think it is so important to have a cardiologist that specializes in the subject, I’m blessed to have one.

Hi Folks,

I am 6 months post ascending aneurysm surgery (they replaced one section with a dacron graft and spliced another) and have been recovering well from a strength and exercise perspective. That's the good part. I did get diagnosed with acute pericarditis a few months ago but with meds, that has dissipated although I still have some tenderness and pain in the lower part of my chest that seems 'stable'.

What's really bothersome are these irregular heartbeats that come and go... some are just a few fast beats but other times I get pounding for a few beats... nothing sustained like afib, but I have noted that I am more frequently out of breath these days (climbing stairs, hiking, etc). This is a little bit worse than it was a month ago and it is affecting my sleep, but doesn't (yet) seem to be affecting my ability to do other things.

My question for the group is whether this is common amongst those that have had surgeries of this type. I will mention all this to my cardiologist in a couple weeks but am trying to get some feedback beforehand.

Thanks

Hi Folks,

I am 6 months post ascending aneurysm surgery (they replaced one section with a dacron graft and spliced another) and have been recovering well from a strength and exercise perspective. That's the good part. I did get diagnosed with acute pericarditis a few months ago but with meds, that has dissipated although I still have some tenderness and pain in the lower part of my chest that seems 'stable'.

What's really bothersome are these irregular heartbeats that come and go... some are just a few fast beats but other times I get pounding for a few beats... nothing sustained like afib, but I have noted that I am more frequently out of breath these days (climbing stairs, hiking, etc). This is a little bit worse than it was a month ago and it is affecting my sleep, but doesn't (yet) seem to be affecting my ability to do other things.

My question for the group is whether this is common amongst those that have had surgeries of this type. I will mention all this to my cardiologist in a couple weeks but am trying to get some feedback beforehand.

Thanks