Anyone have any success with going to an LC clinic?

My Long Covid experience started on May 7th, 2022 with 4 continuous weeks of testing positive - I had all the typical symptoms except for a fever - trench mouth, headaches, dizziness, TMJ, tennis, double vision, gastric hell, unbearable pain in my hips, numbness in my legs, arms, hands and feet, continuous brain farts, weakness, short of breath ,,,,, I felt like I was dying and still do 2-1/2 years later. The LC clinic was my most disappointing experience of the whole period. They had no inclination to understand or treat my pain - their whole effort was to determine what I didn't have. I can safely say now I don't have an inner ear problem, a bone disease, not having a stroke, or heart attack and all thanks to the covid clinic chasing down what I don't have while slowly observing my body deuterate. If you're looking for help, a little compassion or heaven help a treatment - stay clear of the LC Clinics.

Ishecky, I waited for such a long time to get appts at Long Haul Clinic in one of Chicago’s finest hospital systems. Like you, I was sent to several different types of doctors for different tests and besides finding out the results of tests, I was given little to information as to how to heal. I got so disappointed I stopped seeing doctors and still suffering four years later. I found LH Clinic which was a string of doctor appointments not an actual program or clinic to be very disappointing experience. I hope you find solutions and support you seek

So sad for all of with your experiences at a LC clinic.I went to Mayo in Rochester MN and had many tests and then a long visit with an integrative medicine MD. She was very helpful in explaining what is known and what is not about LC. Mayo has a very supportive 12 week after diagnosis program which is helping me learn to live with the symptoms as well as possible. The diagnosis is one that is made by ruling out other possibilities and asking many questions in regard to symptoms. As of now there is no known cure so we do the best we can like those living with heart disease or chronic back pain issues, I guess. Good luck.

That is so discouraging. It’s been six months since this all started, I was hoping to get back to a normal life. To think that this is my new normal is very frightening. There has to be someone somewhere that is able to help.

Join some of the lc groups on fb. There are hundreds of thousands of us with similar, debilitating lc, like you.

I’m afraid for most of us, if our bodies don’t figure this out and recover, there just isn’t any help.
I have been to all the doctors and specialists and no treatment has helped me.

I go to a local clinic with therapy for LC symptoms but it hasn’t helped. Nobody knows what to do but eliminate possibilities. I’ve considered traveling further for other clinics, but fear it would just be another disappointment.

I’m ready to give up. Some days I feel like fighting, but as time goes on that feeling is less and less.

If you have only had the problems for 6 months you are far more likely to get better more quickly, us 4 1/2 year folks are a bit stuck!

Sorry you’re suffering. What are your symptoms of LC? I’ve had no taste or smell for almost 2 years (December of 2022 had Covid). I’m trying the Stellate Ganglion Block injections, but thus far, not helping much.

Hi there - I subscribe to several medical or medical related lists to get LC information. I just received one last week about criminal charges being filed against two FLCCC doctors. It may have been in a Mayo digest. Be forewarned about FLCCC!

If you have the time - and energy - could you post, or send directly to me, the links to the FB groups you know of? I do not have a personal FB page, but manage a page for a non profit fan club. Thanks in advance!