Anyone have any success with going to an LC clinic?

I live outside of Chicago in Batavia, Il. May I ask who you saw and what hospital did you go to for Long Covid? I’m asking because I lost my taste/smell in December of 2022 two days into Covid and don’t have it back yet. I’m currently having Stellate Ganglion Block Injections and just had my 5th one at the Pain Management Clinic of Northwestern Hospital in the city. I will try anything at this point.

What does FLCCC stand for?

No they said they couldnt help me

What test do they run for a spike protien and to get rid of it?

Front Line Covid Critical Care.

One of their doctors helped me when I had Delta Covid and the hospital that was supposed to give me monoclonal antibodies was too busy to get me scheduled. The hospital said that they’re only open from 7-4 Monday thru Friday and that it would another 2-3 days to get me in. I told them that I was already on day 6 , doing poorly and immune compromised. It made no difference. They blew me off.
We contacted the FLCCC doctor in our area and they said to bring me right down and got me the monoclonal antibodies the same day. They were a lifesaver.
To be honest, the FLCCC are shunned by establishment medicine for their support of Ivermectin, but they were instrumental in saving my life where establishment medicine completely failed me and didn’t care.

Hello @suzyb,

The FLCCC has been met with criticism for promoting treatments that are not always backed by scientific data. Ivermectin has not been consistently shown to treat COVID or Long COVID - https://www.fda.gov/consumers/consumer-updates/ivermectin-and-covid-19. The data from this FDA update is as current as April of 2024.

Despite feeling like COVID has been around for a long time, four years is still a relatively short window as far as medical research goes and the medical community is still in the early phases of research for treatments and understanding. It is important to always consult with your provider when seeking treatments or to present them with information you have found as well. You may find that some providers are open to alternatives, but it is always wise to keep them in the loop.

For @emo and others: I've been a patient in the LC clinic at NWMH in Chicago since 9/11. My experience was pretty much the same as others... a long interview with a young neurologist, then Dr. Karolnik flew in and said nice things and then a prescription for sleep study... I sleep fine when I'm not deep in PEM so no to that; a prescription for Amantadine which I'm hesitant to start because of worrisome side effects, off to blood work, not much else. I'm to have a follow up visit in a few weeks with his PA, and have rejected a referral to Shirley Ryan Lab for now. One good thing; he suggested the support group which meets monthly via Zoom, and I signed up and attended last Thursday's meeting. I found it very helpful; many patients who've been seen in the clinic attended and some very long term LC sufferers, seemingly highly functional folks, and a capable LCSW moderator, who sent me a link to YouTube recordings of previous sessions, at least the part where the visiting doctor speaks for the first half hour and takes questions. Last Thursday's presenter was an ophthalmologist and I learned a lot about Covid and effects on vision. I recommend the group to anyone who's a patient of the LC clinic at NWMH... to join, contact the moderator, Mike, at 312-926-0313.

Sad to hear your outcome wasn't more positive. I see your post is from a year ago, but am interested in how you were admitted to Mayo's 12 program? I've tried several times to get into that, but keep getting the run around with filling out form after form and questionnaires. Actually received a phone call from an intake person, but still nothing moved forward.

I filled out the initial application for care, received a response that said they were looking it over. Then after a week or so I received more forms to complete (very long forms with questions about my symptoms and what I’ve done about them. Also about when and where I have had any medical care. After quite a number of weeks I received an acceptance form and a date to do an online visit with the initial intake nurse. She gave me a choice of dates to come to Mayo. That’s how the process was for me. I do know that they have gotten incredibly busy so don’t give up hope yet. Have you tried to call them?

I have been working with the Cleveland Long Covid Recovery Clinic. I was prescribed Low Dose Naltrexone and have been much better since February 2025. The paperwork and insurance verification was cumbersome but once you are assigned a provider, I have been impressed with the care. I work with them virtually. It took about 3 months after a referral from my Primary Doctor to have my first appointment.