20 to 30 episodes per hour with CPAP

Posted by polishcolonel @polishcolonel, Jun 28 9:05am

20 to 30 episodes per hour now
I have used a CPAP for 20 years.
No leakage problem/ cleaned it

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At least 25 events sometimes lower

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@tommydo

Yes recently after diagnosis of Afib

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Welcome @tommydo, I thought you might be interested in connect with others who have experience with sleep apnea and AFIB. Here is a link that shows the discussions and comments by other members - https://connect.mayoclinic.org/search/discussions/?search=sleep%20apnea%20and%20afib.

There are also quite a few discussions and comments by members on AFIB if you want to scan through them to learn what has been shared - https://connect.mayoclinic.org/search/?search=afib.

Have you been able to reduce the number of events since being diagnosed with AFIB?

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@msflygirlnortherncan

Ok I am going nuts Last night my count was 114 events per hour! How do you breath when a person (me) has this many? Anyone else have this high count? Could it be my machine? I have a Resmed 11 with full face mask. The bridge of my nose is really hurting me. I have osteoarthritis ND grow bone like no tomorrow! Will I die if I stop?? HELP PLEASE ANYBODY Jackie

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I would be reaching out to your sleep specialist you may need your machine adjusted.

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@msflygirlnortherncan

Ok I am going nuts Last night my count was 114 events per hour! How do you breath when a person (me) has this many? Anyone else have this high count? Could it be my machine? I have a Resmed 11 with full face mask. The bridge of my nose is really hurting me. I have osteoarthritis ND grow bone like no tomorrow! Will I die if I stop?? HELP PLEASE ANYBODY Jackie

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I have 53 per minute and going to pick up my CPAP today. Neeedless to say, I have great anxiety about this. Any pointers?

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What do you mean by 53 per minute? Do you mean 53 events per hour? If so, it suggests that your machine is detecting an obstructive or hypercapnic event at the rate of almost one a minute. Your heart will eventually give you trouble if it's anything like my experience. I went into atrial fibrillation near the end of a run seven years ago. After multiple tests, all negative, my cardiologist said the last test was an overnight sleep lab . The result was that I had/have severe sleep apnea. My heart couldn't rest at night.

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@medisecy

I have 53 per minute and going to pick up my CPAP today. Neeedless to say, I have great anxiety about this. Any pointers?

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Have been a CPAP user for over a decade. Here are where I've struggled with the machine.

1) Getting the CPAP adjusted to the proper settings - particularly pressure. Typically an overnight sleep study is used to dial in the pressure, but over time that can change.

2) Getting a mask that works for you and your settings. Often you have to experiment with various masks and mask tightness to avoid leaks.

3) Avoid sleeping on your back - it can cause an increase in AHIs. If you can't (like me) a soft cervical collar may be helpful to avoid "chin-tucking" which is more likely sleeping on your back.

4) At first, follow your sleep professional's advice, but if you have problems they can't seem to fix, apneaboard.com is a very helpful independent site for CPAP issues. They also have a utility called OSCAR which enables you to analyze the detailed sleep data from you CPAPs memory card much like your physician. It's takes a bit to figure out the meaning of the data and it's like drinking from a firehose, but the major items are few/no large leaks and an average AHI of 3 or less.

Above all, be patient with it. It takes a while to get used to the discomfort of the mask, the pressure of the CPAP and work out leaks. Definitely bug your sleep therapist/physician until it works for you.

Hope this helps.

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@rjjacobsen

Have been a CPAP user for over a decade. Here are where I've struggled with the machine.

1) Getting the CPAP adjusted to the proper settings - particularly pressure. Typically an overnight sleep study is used to dial in the pressure, but over time that can change.

2) Getting a mask that works for you and your settings. Often you have to experiment with various masks and mask tightness to avoid leaks.

3) Avoid sleeping on your back - it can cause an increase in AHIs. If you can't (like me) a soft cervical collar may be helpful to avoid "chin-tucking" which is more likely sleeping on your back.

4) At first, follow your sleep professional's advice, but if you have problems they can't seem to fix, apneaboard.com is a very helpful independent site for CPAP issues. They also have a utility called OSCAR which enables you to analyze the detailed sleep data from you CPAPs memory card much like your physician. It's takes a bit to figure out the meaning of the data and it's like drinking from a firehose, but the major items are few/no large leaks and an average AHI of 3 or less.

Above all, be patient with it. It takes a while to get used to the discomfort of the mask, the pressure of the CPAP and work out leaks. Definitely bug your sleep therapist/physician until it works for you.

Hope this helps.

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Thank you. It's only day 2 for me but things are going ok so far.

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Thank you @rjjacobsen excellent advice for people new or strugglers like myself.

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I also get 20-30 or more events per hours. I tend to have a combination of Obstructive and Central sleep apnea. Mostly central. All attempts to titrate a cpap, bipap, etc have not worked.
I've been using a bipap for several months now and still have way over 20 events an hour.
The machines with higher pressure setting can actually cause emergent Central Apnea with Cheynes Stokes events to occur.
Most cases of sleep apnea are obstructive and easier to treat.
You need a good doctor to do a sleep study and try to titrate settings that work for you.

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@rjjacobsen

Have been a CPAP user for over a decade. Here are where I've struggled with the machine.

1) Getting the CPAP adjusted to the proper settings - particularly pressure. Typically an overnight sleep study is used to dial in the pressure, but over time that can change.

2) Getting a mask that works for you and your settings. Often you have to experiment with various masks and mask tightness to avoid leaks.

3) Avoid sleeping on your back - it can cause an increase in AHIs. If you can't (like me) a soft cervical collar may be helpful to avoid "chin-tucking" which is more likely sleeping on your back.

4) At first, follow your sleep professional's advice, but if you have problems they can't seem to fix, apneaboard.com is a very helpful independent site for CPAP issues. They also have a utility called OSCAR which enables you to analyze the detailed sleep data from you CPAPs memory card much like your physician. It's takes a bit to figure out the meaning of the data and it's like drinking from a firehose, but the major items are few/no large leaks and an average AHI of 3 or less.

Above all, be patient with it. It takes a while to get used to the discomfort of the mask, the pressure of the CPAP and work out leaks. Definitely bug your sleep therapist/physician until it works for you.

Hope this helps.

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Sometimes my higher leaks are paired with lower episodes. Other times my lower leaks are paired with higher episodes. I haven't found an explanation for this. Any thoughts?

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