Foot neuropathy: What gives you relief?

Posted by kathrina @kathrina, Nov 5, 2019

It seems if I get enough activity/exercise daily I don’t have pain; if not, am awakened from sleep and must get up (even in the middle of the night). What’s going on & what more should I do to avoid rest-disruption?

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@mikeythecat

I find that I have less pain when walking and up on my feet than I do when elevating my feet while sitting or laying down.

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Thank you. Best wishes.

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I'm glad this thread was revived...I hadn't seen it before and learned a few things!

I usually use very tight velcro wraps around my feet and legs most of the time and that eases the pain and tingling somewhat. That seems to be the best for me. The wraps are Dr. ordered and custom fitted. I wear them during the daytime, with a light slip on sleeve so the velcro doesn't get caught on everything. You can also get them at Amazon. Look under " Velcro leg compression wrap"
At night I have what my son laughingly calls "Hot Pads" for my feet and legs: They are tight fitting quilted socks for lack of a better word. I pull them on with great difficulty as they are also quite tight. They are also custom made. They are less bulky than the wraps to sleep in.
One of my "toys" is an on the floor massage machine, that I can put both feet on and turn up high to get a very vigorous shake for 15 minutes or so. That does the trick when I am about to scream and wake all my neighbors up : )

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With SG, our sensory nerves are screaming for input. I have found long sleeves, long pajamas, socks at night, and a weighted blanket helps.
During the day, I find that walking with my four-wheel Walker provides vibrational input through the arms. As I tend to have a heavy and loud heel strike I get both vibration and "joint approximation" input. Initially, I had to wear gloves all the time in addition to gabapentin and pain medication. I have found that by using my hands consistently through the day, even if I spill and drop, it provides the brain some input. The hardest part is mustering up the energy and then patting myself on the back for doing the little things that previously were no brainers. Any activity I do now I consider an opportunity for therapy! Hooray for me.

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@eis

With SG, our sensory nerves are screaming for input. I have found long sleeves, long pajamas, socks at night, and a weighted blanket helps.
During the day, I find that walking with my four-wheel Walker provides vibrational input through the arms. As I tend to have a heavy and loud heel strike I get both vibration and "joint approximation" input. Initially, I had to wear gloves all the time in addition to gabapentin and pain medication. I have found that by using my hands consistently through the day, even if I spill and drop, it provides the brain some input. The hardest part is mustering up the energy and then patting myself on the back for doing the little things that previously were no brainers. Any activity I do now I consider an opportunity for therapy! Hooray for me.

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Thank you. I find exercise also helps or at least draws mind away from the sensations. I’ll try a weighted blanket.

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Dear @kachris

< — Started —> My pain on my right foot is not there. A few mths ago, I had a (can’t remember the name) on my lower back. It ended anymore from both sides from my rear-ends to the bottom of my feet. That was 50% of my body.

< — Next —> The next 50% I use excising my legs & feet, but part on the lower knee to the bottom of my right-side lost of feeling that a little different —> then you. It’s pain on your feet and for me, my right-side foot doesn’t feel 70-80% of this.

< — Well, I hope —> your feet & your doctors & your meds will help for you.

Thx,
Greg D.

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@eis

With SG, our sensory nerves are screaming for input. I have found long sleeves, long pajamas, socks at night, and a weighted blanket helps.
During the day, I find that walking with my four-wheel Walker provides vibrational input through the arms. As I tend to have a heavy and loud heel strike I get both vibration and "joint approximation" input. Initially, I had to wear gloves all the time in addition to gabapentin and pain medication. I have found that by using my hands consistently through the day, even if I spill and drop, it provides the brain some input. The hardest part is mustering up the energy and then patting myself on the back for doing the little things that previously were no brainers. Any activity I do now I consider an opportunity for therapy! Hooray for me.

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I'll say it too...HOOORRAYYYYY for YOU!! Followed by wild dancing and singing of songs to celebrate YOU!
It's so hard doing what we say we are going to do when we KNOW what we need to do is in our best interest, right? In grade school I hated math and balked at the math homework. My Mom always said. "Judith, you don't have to like it. You just have to do it!" Now I apply that to all the things I need to do to keep myself as independent as possible.

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@fredpassin6

Haven't tried acupuncture and massage as of yet. But I will.

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I see the accupuncturist once every 4-5 weeks for chronic foot pain ( neuropathy) and it helps. But she also has given me a small device with small pricks on the end of a 8 inch wand which I can use to stick whatever is hurting so much at night or the end of the day. Allows me to use self-accupuncture between visits. I also use recreational THC-CBD / 100:100 . I try to get in at least 4000 steps daily to keep my feet from being burning or numb.

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Thank you. I’d like to try accupuncture.

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@judyingenes

I'll say it too...HOOORRAYYYYY for YOU!! Followed by wild dancing and singing of songs to celebrate YOU!
It's so hard doing what we say we are going to do when we KNOW what we need to do is in our best interest, right? In grade school I hated math and balked at the math homework. My Mom always said. "Judith, you don't have to like it. You just have to do it!" Now I apply that to all the things I need to do to keep myself as independent as possible.

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Indeed a wise woman!

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I have neuropathy in my feet. It’s also beginning to enter my hands. I get relief from magnesium lotion or oil on my feet. Helps me sleep through the night and takes away the pain.

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