Covid treatment- any recent experience?

To clarify- I am 2.5 years post liver transplant, take 2.5 mg tacrolimus daily and have had few complications.

Dear Kate,
I’m sorry this experience is triggering you. Though I’m a kidney transplant, I would feel the same way. Thank goodness you are in hospital and receiving the proper medication and being monitored. I did have covid in December and able to handle it at home but with close and frequent contact with my doctor. It was not fun and really wore me down but with lots of rest and proper care I recovered. I believe you are doing the right thing and you are protecting your liver with your hospital stay. Try to be kind to yourself and know you are taking the best care of yourself that you can. With patience, rest and following your transplant teams advice, you will recover! Sending you positive vibes!

@katebw, Oh Dear Kate, I’m sending my thoughts and prayers for a smooth hospital stay. I really don’t know about the Covid part because, I have avoided it so far.
I am glad that the doctors are actively treating you. Are the Transplant doctors involved?
I read your response to my husband to let him know what can happen with Covid.

I understand how you are feeling with being in the hospital. Those memories of our complex medical history are easily triggered. Is there a social worker or chaplain on staff if you need one to unload your burden?

Get well.🌺

@skjones, I didn’t know that you had Covid in Dec. I’m happy that you and your doctor work well as a team!

I like your positive vibes!

@skjones thank you for your reply- a balm for me at the moment. I appreciate it.

@rosemarya thank you for your reply! I had begun to think I’d never get Covid so I was caught off guard. A little better by now. 🌸

@katebw it is good to hear that you are feeling a little better. Any and all improvement is always good! That sounds like a good sign that treatment is doing its job.
I know hospitals are the worst places for resting but hope you can get some sleep while there.
I have not had Covid, or as my transplant team said, I might have had a mild case if I did have it. I don’t know what to think, and I am holding on to hope as I continue life with my precautions in place. I have some upcoming travel plans, so you must know how concerned I am about it.
When you feel up to responding, what were your symptoms? Did your PCP or transplant team decide the treatment?

I knew I was exposed to Covid last Saturday when my partner (he and I don’t live together) tested positive, and I’d been with him the eve after his exposure. By 3am Monday, after thinking I hadn’t caught it, I had a high fever and chills and later tested positive. I contacted my team and they suggested outpatient remdesivir infusions but this wasn’t available to me in my area. So they prescribed an oral medication that begins with an Mont but my fever persisted, I had a cough and stuffy head, no appetite and I had one episode of acute vomiting so here I am. I was in good communication with my team who urged me to go to ED and pursue inpatient remdesiver; they called the hospital to pave the way which was very helpful.

I feel like I’ve dropped my guard- my partner played at a music club and I didn’t go due to COVID worry, yet I lost myself and spent time with him right after. Kicking myself! But we are human.

I came down with COVID January 1st (what a way to start the year). Since I was flying home from being out of the country the next day (and wasn't tested yet), my doctor had me take a high dose of steroids and some Tylenol. I got home and tested positive on January 3rd and started remdesivir. I think with having the high dose of steroids and Tylenol as soon as I had the fever that it helped even though I didn't get the remdesivir for a couple of days. It was terrible traveling with COVID, but I was able to push through and didn't have to be hospitalized at that time. I did wind up having the beginnings of rejection and had to go in the hospital in February for a few days so that I could get the meds. I think it is better that you are in the hospital now and hopefully won't have any further complications. Be well and try to rest.

I have had Covid twice since my transplant. The first time, I went to Mayo Phoenix ER and got a new antibody treatment that cured the virus in 2 days. A year later, after I was home, I got Covid again. I was given Paxlovid by a home town physician . The Paxlovid interacted with the Tacrolimus and caused it to increase to an unsafe level. I was very sick, and was instructed to go to Mayo ER In Phoenix. I spent two days in the hospital. Mayo knew exactly how to treat my condition, and I improved greatly within 48 hours. I had the best care and my kidney is recovering. When in doubt, call Mayo for help. They will be waiting with open arms.