Connect
At home with my new liver transplant
Coming home after an organ transplant is one of my fondest memories! However, sometimes being at home might seem a bit overwhelming. I remember the fear of being away from the secure environment and immediate care that my transplant team provided. Even though, I was a phone call away from my team, I would have welcomed the opportunity of talking to someone who was a recipient. So, I begin this discussion. Congratulations on your life saving transplant! You are not alone. Welcome.
Like
Helpful
HugInterested in more discussions like this? Go to the Transplants Support Group.
Connect
THANKU AGAIN,I GUESS I'LL B HERE A WHILE BUT TTHE IV ANTIBIO KEEP COMING, C WHAT DR SAIS
swordfish, This is to let you know I'm thinking about you today.
Good morning, swordfish. I understand your anxiety. After all, we are only human. Just try to rest in the fact that you have the best medical team available and they will get this under control and you back on track. Sometimes there may be a few setbacks but hang in there and try to stay strong. Definitely talk to your team about your anxiety so you can get some assistance with that to help you get the much needed rest you require right now.
Keep us posted and know that we all are cheering for you!
THANKS AGAIN ALL OF YOU, I'LL BE STAYING THE NITE AGAIN,I HAD A PARACENTESIS THIS A.M.5 LITRES TO GET SOME TESTS& TO ALLEVIATE SOME OF THE PRESSURE, THE RADIOLIGIST SAYS THERE'S PROBABLY 10 IN THERE!I FEEL RELIEF FROM THAT LIL BIT .SUPPOSEDLY I CAN GO HOME TMRRW.AFTRNOON.ILL BE IN TOUCH WHEN I'VE LEARNED MORE, I THINK THEY'RE SAYING IT'S MURSA!
@swordfish, It is good to get an update from you! I know you were busy today, getting that procedure done. I'm happy that you are getting some relief from all that fluid pressure. Maybe you can rest easier tonight. Are you able to eat yet?
Hang in there. And as @coastalgirl says, we are all cheering for you! Rosemary
I am including this information on MRSA, if that turns out to be the culprit.
http://www.mayoclinic.org/diseases-conditions/mrsa/basics/definition/con-20024479
-
Like -
Helpful -
Hug
1 ReactionTHANKS, YEAH THEY'RE GIVING ME A FEW DIFFERENT TYPES IV ANTIBIOTICS<br>CONSTANTLY,SO THEY'RE ON IT& I DON'T MIND STAYING FOR THIS TREATMNT! IT'S A<br>LIFE SAVER FOR SURE,I'LL GO HOME TMRRW I GUESS,THANKS<br><br>
-
Like -
Helpful -
Hug
1 ReactionHi all,
I thought you might be interested in this short video: Stella's Story about after a transplant at Mayo and the Help in Healing Home https://www.youtube.com/watch?v=N5EYA3rqM7g.
Here's additional information about the Help in Healing Home http://www.helpinhealinghome.org/contact-information/.
Did either of you use the Help in Healing Home?
Thank you for this, Colleen. I did not use the Help in Healing Home but I have learned more post-transplant than i could have possibly learned before transplant and would definitely recommend it to others. I had my transplant at Mayo Jacksonville. Thank you so much for your devotion to this cause!!
Everyone at Mayo rocks!
Blessings to help you rest and find peace in knowing that this is just a bump in the road and things will be better soon!!
The sun will come out tomorrow!!
No, because I was in Rochester. My husband and I spent 11 weeks at Gift of Life House in Rochester. Definitely a home away from home with support and encouragement from the other residents. I clearly remember one particular incident when the transport shuttle bus was delivering us home from one of my pre transplant hospitalizations: A group of patients waiting outside the GOL to board the shuttle and they applauded and welcomed me as I was helped off the bus. Wow! Talk about encouragement and support. Rosemary
It is our first choice of lodging whenever we make the 800 mile return journey for annual check up.
-
Like -
Helpful -
Hug
1 Reaction