1. < Heart Rhythm Conditions

Wolff-Parkinson-White (WPW) syndrome

Posted by 601meagan @601meagan, Aug 26, 2016

My faughter was just diagnosed. Any info would be great!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 26, 2016

Welcome @601meagan.
Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508 and from the National Organization of Rare Diseases (NORD) http://rarediseases.org/rare-diseases/wolff-parkinson-white-syndrome/

I'd also like to introduce you to other Connect members @wymanjg @lizbets @billmichalski @judytru who had/have newborns and young children with heart disease. @judytru's daughter, for example, was born with coarctation of the aorta and aortic stenosis. She is now 27. @billmichalski's twin granddaughters were born with tetralogy of Fallot. Both 11 now, swim, gymnastics, dance, checkup every year at Children's and everything going well.

You are not alone. How old is your daughter Meagan?

REPLY
3 replies
JudyTru | @judytru | Aug 27, 2016
In reply to @colleenyoung "Welcome @601meagan. Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508..." + (show)
@colleenyoung

Welcome @601meagan.
Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508 and from the National Organization of Rare Diseases (NORD) http://rarediseases.org/rare-diseases/wolff-parkinson-white-syndrome/

I'd also like to introduce you to other Connect members @wymanjg @lizbets @billmichalski @judytru who had/have newborns and young children with heart disease. @judytru's daughter, for example, was born with coarctation of the aorta and aortic stenosis. She is now 27. @billmichalski's twin granddaughters were born with tetralogy of Fallot. Both 11 now, swim, gymnastics, dance, checkup every year at Children's and everything going well.

You are not alone. How old is your daughter Meagan?

Jump to this post

Yes, hi. This is Judy Trudel and my daughter, Amy is now 28 years old and<br>doing well. We have some issues because of the artificial aortic valve the<br>Drs. inserted over a year ago. She is now on Coumadin, and if we had it to<br>do over again, I don't think we would have made the choice for her to<br>receive an artificial valve. A homograft, natural valve would have been<br>best.<br><br>

REPLY
601meagan | @601meagan | Aug 27, 2016
In reply to @colleenyoung "Welcome @601meagan. Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508..." + (show)
@colleenyoung

Welcome @601meagan.
Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508 and from the National Organization of Rare Diseases (NORD) http://rarediseases.org/rare-diseases/wolff-parkinson-white-syndrome/

I'd also like to introduce you to other Connect members @wymanjg @lizbets @billmichalski @judytru who had/have newborns and young children with heart disease. @judytru's daughter, for example, was born with coarctation of the aorta and aortic stenosis. She is now 27. @billmichalski's twin granddaughters were born with tetralogy of Fallot. Both 11 now, swim, gymnastics, dance, checkup every year at Children's and everything going well.

You are not alone. How old is your daughter Meagan?

Jump to this post

She is 9

REPLY
601meagan | @601meagan | Aug 27, 2016
In reply to @colleenyoung "Welcome @601meagan. Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508..." + (show)
@colleenyoung

Welcome @601meagan.
Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508 and from the National Organization of Rare Diseases (NORD) http://rarediseases.org/rare-diseases/wolff-parkinson-white-syndrome/

I'd also like to introduce you to other Connect members @wymanjg @lizbets @billmichalski @judytru who had/have newborns and young children with heart disease. @judytru's daughter, for example, was born with coarctation of the aorta and aortic stenosis. She is now 27. @billmichalski's twin granddaughters were born with tetralogy of Fallot. Both 11 now, swim, gymnastics, dance, checkup every year at Children's and everything going well.

You are not alone. How old is your daughter Meagan?

Jump to this post

Thank you for that info!!

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 27, 2016

Thank you for answering my "page" @judytru. It sure helps to here from another mom who's been there.
Meagan, I hope the information helps. We're here to accompany you on this new path. Please keep us posted.

REPLY
2 replies
601meagan | @601meagan | Aug 27, 2016
In reply to @colleenyoung "Thank you for answering my "page" @judytru. It sure helps to here from another mom who's..." + (show)
@colleenyoung

Thank you for answering my "page" @judytru. It sure helps to here from another mom who's been there.
Meagan, I hope the information helps. We're here to accompany you on this new path. Please keep us posted.

Jump to this post

We go monday, thanks again, i will!!

REPLY
JudyTru | @judytru | Aug 27, 2016
In reply to @colleenyoung "Thank you for answering my "page" @judytru. It sure helps to here from another mom who's..." + (show)
@colleenyoung

Thank you for answering my "page" @judytru. It sure helps to here from another mom who's been there.
Meagan, I hope the information helps. We're here to accompany you on this new path. Please keep us posted.

Jump to this post

Of course. Anytime!<br><br>

REPLY
Eric C. | @erixfam | Jul 3, 2019

<p>Hello fellow Heartbeats!<br />My 15 year old son was diagnosed with WPW syndrome last year. He is scheduled for his ablation Later this month. It seems like an easy procedure and recovery. He wears a heart monitor to keep tracking of episodes of WPW. His episodes seem to be more frequent so we’re happy he’s scheduled for this correction. My reason for reaching out is to maybe get feedback on other WPW experiences after the ablation procedure. Also to ask for a quick prayer for my son. Thanks and take care!</p>

REPLY
5 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 3, 2019
In reply to @erixfam "Hello fellow Heartbeats!My 15 year old son was diagnosed with WPW syndrome last year. He is..." + (show)
@erixfam

<p>Hello fellow Heartbeats!<br />My 15 year old son was diagnosed with WPW syndrome last year. He is scheduled for his ablation Later this month. It seems like an easy procedure and recovery. He wears a heart monitor to keep tracking of episodes of WPW. His episodes seem to be more frequent so we’re happy he’s scheduled for this correction. My reason for reaching out is to maybe get feedback on other WPW experiences after the ablation procedure. Also to ask for a quick prayer for my son. Thanks and take care!</p>

Jump to this post

@erixfam, welcome to Connect. I'm hoping that I can bring @601meagan into this conversation about Wolff Parkinson White. Her daughter was diagnosed a few years ago. You can read a bit more here:
* Wolff-parkinson-white syndrome https://connect.mayoclinic.org/discussion/wolff-parkinson-white-syndrome/

Erixfam, how is your son feeling about getting the ablation soon?

REPLY
Eric C. | @erixfam | Jul 3, 2019
In reply to @erixfam "Hello fellow Heartbeats!My 15 year old son was diagnosed with WPW syndrome last year. He is..." + (show)
@erixfam

<p>Hello fellow Heartbeats!<br />My 15 year old son was diagnosed with WPW syndrome last year. He is scheduled for his ablation Later this month. It seems like an easy procedure and recovery. He wears a heart monitor to keep tracking of episodes of WPW. His episodes seem to be more frequent so we’re happy he’s scheduled for this correction. My reason for reaching out is to maybe get feedback on other WPW experiences after the ablation procedure. Also to ask for a quick prayer for my son. Thanks and take care!</p>

Jump to this post

Hi Colleen,
Doesn’t seem to phase him. Everyone else is more on edge. Albeit it appears to be an easy procedure. July 30th is his scheduled operation, so we have some time still. He more upset he has to take a break from Lacrosse.
Thank you.

REPLY
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