1. < Heart & Blood Health

Anyone have input on living with symptoms from cardiomyopathy?

Posted by retirement75 @retirement75, Apr 14, 2022

Does anyone have input on living with symptoms from cardiomyopathy, I.e., shortness of breath, angina and heart arrhythmia. Other than meds, it’s a challenge to mentally accept and live with this.

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marsims | @marsims | Jun 25, 2023
In reply to @karukgirl "https://connect.mayoclinic.org/discussion/coronary-by-pass-second-opinion/ Hi @marsims, I found this link to something you may be interested in regarding second..." + (show)
@karukgirl

https://connect.mayoclinic.org/discussion/coronary-by-pass-second-opinion/
Hi @marsims, I found this link to something you may be interested in regarding second opinion and coronary blockages.
Take a look around and search in the Heart and Blood Health support group. There is a TON of information that may be helpful to you.

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Thank you so much for this link. I will continue to research on this. Still new on the terminology. I will continue to educate myself on this difficult disease. Blessings

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Debra, Volunteer Mentor | @karukgirl | Jun 25, 2023
In reply to @marsims "Thank you so much for this link. I will continue to research on this. Still new..." + (show)
@marsims

Thank you so much for this link. I will continue to research on this. Still new on the terminology. I will continue to educate myself on this difficult disease. Blessings

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@marsims, that is the single best thing you can do...learn as much as you can about what you've been diagnosed with. We have to be educated so we can be our own best advocates when it comes to treatment, medication, exercise, diet, life in general. I admire your attitude. Faith is powerful. It is having confidence in what we hope for and assurance for what we do not see. (Hebrews 11:1)
It must be unsettling to say the least worrying about if/when you may have a heart attack! That would make anyone anxious! When do you see your doctor next? Maybe that would be a good opportunity to ask for a second opinion? The Mayo Clinic is a world leader in complicated cases. Are you near a Center of Excellence (COE) like the Mayo?

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marsims | @marsims | Jun 25, 2023
In reply to @karukgirl "@marsims, that is the single best thing you can do...learn as much as you can about..." + (show)
@karukgirl

@marsims, that is the single best thing you can do...learn as much as you can about what you've been diagnosed with. We have to be educated so we can be our own best advocates when it comes to treatment, medication, exercise, diet, life in general. I admire your attitude. Faith is powerful. It is having confidence in what we hope for and assurance for what we do not see. (Hebrews 11:1)
It must be unsettling to say the least worrying about if/when you may have a heart attack! That would make anyone anxious! When do you see your doctor next? Maybe that would be a good opportunity to ask for a second opinion? The Mayo Clinic is a world leader in complicated cases. Are you near a Center of Excellence (COE) like the Mayo?

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You have truly been my angel today. You are so encouraging and supportive. I had a cardiologist in New Jersey, Standford university medical in California and now my current cardiologist at the University of Alabama. None of the cardiologists ordered the test to get to the bottom of my fast heart rate. I finally found a group of cardiologists who teach about this disease- made an appointment and he ordered the stress test. However due to other medical conditions, I became extremely tired and was referred for a heart cauterization. I am meeting with my primary care physician for recommendations on other opinions. I don’t want to go back to the doctor who blew off my fast heart rate. I had no real pain or other symptoms but feeling tired. Sorry for the long summary. I shared everything as it might help someone else. Thank you❤️

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blessmyheart | @blessmyheart | Jul 24 2:27am
In reply to @janalynnnor "Yoga, walking, plant- based diet and staying optimistic with Loving Kindness Meditations as well as gardening..." + (show)
@janalynnnor

Yoga, walking, plant- based diet and staying optimistic with Loving Kindness Meditations as well as gardening keeps me calm and helps to reframe frustration and low points for me.

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Consider Pilates if yoga
Inversions etc brings on symptoms. Move your body however much you can each day and sleep rather than caffeinate had been the best advice I got

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emiliahjones | @emiliahjones | Aug 3 9:50am

Hello, I have HOCM with symptoms and am not a candidate for an ablation or Cazmyos but am a good candidate for a septal myectomy. I was told I should fix my HOCM and get the surgery. Was anyone told to get the surgery but decided not to for some reason?

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