Grover's Disease: What works to help find relief?

I was so just diagnosed with Grover’s from a biopsy, I had it all over my back to start with and now I also have it on my stomach, legs, arms and top of neck near scalp. The itching is driving me crazy. I have had a cortisone shot, taken steroids,am putting clobetasol cream on it, have used hydrocortisone lotion and Triamcinolone cream and am on an antibiotic. Nothing helps with the itching except taking 2 benedryl pills which makes me sleep. Not an option when I working. They also gave me pills for itching but they don’t not work. I have had this for about 2 months now with no relief. I have scratched so much my stomach burns. It is hard to get to sleep unless I take Benedryl but then u can’t get up the next day until 1:00. I am at a loss because I know I cannot handle 6 to 12 months or possibly years with this insane itching.

I was so just diagnosed with Grover’s from a biopsy, I had it all over my back to start with and now I also have it on my stomach, legs, arms and top of neck near scalp. The itching is driving me crazy. I have had a cortisone shot, taken steroids,am putting clobetasol cream on it, have used hydrocortisone lotion and Triamcinolone cream and am on an antibiotic. Nothing helps with the itching except taking 2 benedryl pills which makes me sleep. Not an option when I working. They also gave me pills for itching but they don’t not work. I have had this for about 2 months now with no relief. I have scratched so much my stomach burns. It is hard to get to sleep unless I take Benedryl but then u can’t get up the next day until 1:00. I am at a loss because I know I cannot handle 6 to 12 months or possibly years with this insane itching.

I've been prescribed many different steroid creams and ointments to no avail. I have adrenal insufficiency, so I do not suffer from the addition of steroids. I recently found an old bottle of Nystop anti fungal and tried it on the Grovers' outbreak that all across mu torso, front and back. The next morning the outbreak was almost completely gone, so I continued to use it until the bottle was gone. I am completely free of any pustules since. I was diagnosed with Grovers via biopsy in 2013 and have been told there isn't a cure for it. Now I am thinking that I was misdiagnosed all this time and have been suffering for no reason. I believe this to be true, as I've not been free of the pustules since the original outbreak. I am free now and have been for the last two weeks. Perhaps I had some type of fungal infection this whole time. Hope the pustules do not come back!

I was so just diagnosed with Grover’s from a biopsy, I had it all over my back to start with and now I also have it on my stomach, legs, arms and top of neck near scalp. The itching is driving me crazy. I have had a cortisone shot, taken steroids,am putting clobetasol cream on it, have used hydrocortisone lotion and Triamcinolone cream and am on an antibiotic. Nothing helps with the itching except taking 2 benedryl pills which makes me sleep. Not an option when I working. They also gave me pills for itching but they don’t not work. I have had this for about 2 months now with no relief. I have scratched so much my stomach burns. It is hard to get to sleep unless I take Benedryl but then u can’t get up the next day until 1:00. I am at a loss because I know I cannot handle 6 to 12 months or possibly years with this insane itching.

Find a way to read all the comments that refer to the cilantro/chlorella smoothies you can. They work for a lot of people but sadly, not me. I think I got a little benefit from NB UVB light treatments. I use Eucerin Anti Itch for temporary relief like overnight or waking hours. At night I take Hydroxyzine. I found out two days ago I have shingles and that's a new experience. So far, it's a different kind of itch and not as painful as I expected. I started Valtrex a few hours after getting my red spots so maybe that's helping. I didn't get Grover's until a month or two after retiring so I've never had to sit at a desk itching all day.

I was so just diagnosed with Grover’s from a biopsy, I had it all over my back to start with and now I also have it on my stomach, legs, arms and top of neck near scalp. The itching is driving me crazy. I have had a cortisone shot, taken steroids,am putting clobetasol cream on it, have used hydrocortisone lotion and Triamcinolone cream and am on an antibiotic. Nothing helps with the itching except taking 2 benedryl pills which makes me sleep. Not an option when I working. They also gave me pills for itching but they don’t not work. I have had this for about 2 months now with no relief. I have scratched so much my stomach burns. It is hard to get to sleep unless I take Benedryl but then u can’t get up the next day until 1:00. I am at a loss because I know I cannot handle 6 to 12 months or possibly years with this insane itching.

I felt like I was reading my own Grover’s journey when reading what you’re going through. I’m at 2-1/2months and have done all you’ve done and each day that I think it’s getting better, I have another outbreak. I’ve been drinking cilantro smoothies for three weeks now as many people on this blog swear they help. So far I can’t tell they’re helping but I’m afraid to stop them just in case. I too am having a terrible time sleeping unless I take Benadryl and even then I’m not getting enough hours. It’s so exhausting!! I’m on topical steroids, Sarna and Caladryl, ice cold aloe gel, cool showers and I’ve upped all my vitamins and bought new bras. I have no idea if any of this is working. I keep reading this blog for any new thing I haven’t tried and I thank everyone who contributes their ideas, as my Drs know less than I do about Grover’s at this point. I wish you well (and a really good nights sleep). I pray we all could get rid of this affliction.

If this is your first outbreak and you're only 2 1/2 months into it, you can hope that like many of us the first is the longest and most severe. Mine lasted 1 full year and covered my entire upper and lower torso, front to back from my neck down to pubic hair. Then 6 months on and 6 months off was my cycle for about 4 years . The recurring outbreaks didn't cover my chest and were somewhat less severe. My sides and breast were never affected which does make the tie in to sun damage seen legit. I hope your sides are clear. I trained myself to only sleep on a side and never move, as any friction or pressure added to the misery.
I also used Flanax, a topical capsacian (hot chilies). It would initially burn, but within a few seconds the nerves must have been confused and the itch and pain would subside for about 20 minutes which could give me enough time to fall asleep. Surprisingly the initial burn was not an issue because any escape from the itching was a relief. Do not apply with bare hands in case you rub your eyes after wards. The trouble is if you are broken out over a large area it's simply too much to cover from this small bottle.
Yes like the rest of us you will learn more (not much is known though) about GD then any dermatologist.