Anyone have Vagus nerve problems causing strange, unnerving symptoms?

Posted by joannemm34293 @joannemm30809, Mar 23, 2023

Does anyone else have debilitating symptoms that affects the entire body, especially in the morning hours, and my Arrhythmia Dr told me I have Vagus Nerve malfunctions that causes major issues where my heart goes off beat, I have to continually use the bathroom and I get an overall body feeling of just feel sick, rush of nausea etc.

I still have the overall muscle twitching and strange internal vibrations as well as tinnitus and thumping sounds in my right ear.

Does anyone else have Vagus nerve problems that cause strange, unnerving symptoms??

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

My son is having some of these same things going on. He hasn't been diagnosed yet but just wondering if you have any numbness on either side of your body?

REPLY
@kamama94

For what it's worth, so far no afib but I do have early stage CHF at age 77, am type 2 diabetic with fibromyalgia, arthritis, COPD, sleep apnea, and a 2022 diagnosis of gastroparesis docs say is linked to diabetic damage to the vagus nerve. I sometimes experience internal trembling early AMs and constant fine motor tremors in my hands the "experts" seem to think is related to nerve damage from the diabetes.

Jump to this post

I don't know if you still look at this but I had similar experiences with internal tremors plus I also had peripheral neuropathy in both feet last summer. I was sent to a neurologist who insisted that I was diabetic even though I am not. Finally, after many tests, the neurologist stumbled onto the fact that I was actually suffering from vitamin B6 toxicity. I didn't realize how much B6 I was consuming in my daily vitamin along with a B-Complex vitamin. She had me stop all B vitamins and it took several weeks but my symptoms went away. This may not be what is going on with you but I'd had my B6 checked just to make sure.

REPLY
@johnsonje62

I don't know if you still look at this but I had similar experiences with internal tremors plus I also had peripheral neuropathy in both feet last summer. I was sent to a neurologist who insisted that I was diabetic even though I am not. Finally, after many tests, the neurologist stumbled onto the fact that I was actually suffering from vitamin B6 toxicity. I didn't realize how much B6 I was consuming in my daily vitamin along with a B-Complex vitamin. She had me stop all B vitamins and it took several weeks but my symptoms went away. This may not be what is going on with you but I'd had my B6 checked just to make sure.

Jump to this post

Thanks for the update. In my case, with gastroparesis and a renal diet and diabetes, I don't get enough B vitamins. Medical team has said partly due to gastro and diabetes but even more so due to years of Zoloft. (NOW they tell me!)

REPLY

The strange thing about vitamin B6 is that a deficiency in that vitamin can act the same way as too much of it can.
It may have nothing to do with your problem but you might want to look into supplementing with B6 and B12 if your doctor is on board of course. I definitely sympathize with the internal tremors. I thought and so did the neurologist that I probably had Parkinson's or MS at first. Best wishes concerning your health.

REPLY

I do! Your description of this as 'unnerving' is exactly how I describe this condition. I have suspected that a brief stint on the prescription drug, Cymbalta, had lead to this awful condition, but can't be sure. I have been scouring the internet to try to figure out how to get relief. My doctor has not been helpful in addressing these symptoms.

REPLY
@healthseeker77

Hi Joaf37,
I had an episode of vagus nerve syncope while on a cruise ship in 2019. At 11:30 pm I woke up feeling nauseous and needing to use the rest room. While on the toilet I had a very large bowel movement and felt like I was going to vomit. I passed out and fell off the toilet and hit my head in the tile floor. My husband heard me fall and called the ship’s medical office. In the ship’s medical clinic I was hooked up to an IV by a young nurse who didn’t speak English and didn’t know how to start an IV. The unknown fluid entered my vein very slowly and my forearm began to bulge. I started having hallucinations and uncontrolled movement of my legs similar to severe RLS. A Canadian Coast Guard ship was called and I was transferred to a hospital in Nanaimo, BC. The hospital removed the IV and did many tests on me between 1 am and 8 am… and diagnosed me with Vagal Syncope and told me to have my PCP check me when I returned home. They discharged me with a letter stating that I was safe to fly home to Southern Cal.
My PCP did similar tests when I returned home and did not find anything of concern.
I have had a couple of similar incidents since then when I have eaten too many high fat foods during the day. As long as I eat a low fat high fiber diet I seem to be fine.

Jump to this post

@healthseeker77 I have had these large bowel movements followed by heaving till I throw up bile about two or three times in a year. They always happen very early in the morning.

My doctor sent me for an abdominal ultrasound which showed fatty liver (which I have had for about twenty years) and some scarring of the liver which is a new development. So she sent me to a gastroenterologist for a liver biopsy. Gastroenterologist says I am only at Stage 1 for cirrhosis and nothing to worry about - just keep cholesterol levels down and eat less carbs. Strange, because the liver biopsy was quite painful. I have had two liver biopsies in the past eight or ten years and neither of those hurt. 🤷🏼‍♀️

REPLY
Please sign in or register to post a reply.