Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

I had a cardiologist who felt that ANY cardiac arrhythmias could be kicked off by caffeine. He wanted those patients to eliminate it from their diets.

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@windyshores

@lindy9 have you considered that you might have an allergy or intolerance for caffeine? I gave it up when I had a chocolate bar while hiking, felt sick, and my heart rate got really fast. It was not enough to cause the usual kind of caffeine effect- very small amount of a Hershey's.

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Whether an allergy or intolerance, like a doctor said, some people are extremely sensitive to it. Also, the coffee in the US causes problems, but where I live now in Costa Rica, the coffee is grown here is pure, and doesn't. Even decaf from the US affects me. I decided to give up the coffee here too because although 1 cup of coffee does not affect my heart, I have a tremor in my right hand, and am testing to see whether abstinance will,get rid of it. but the bottom line is to eliminate it. And I REALLY love coffee and dark chocolate.

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I’m a retired 79 year-old lady married. Worked at sitting in front of computers for 30 years. About 15 years ago out of the blue I started losing my breath while I was walking down the street. I had to sit on a window ledge for awhile before I could go on. From that day till now I have not been able to walk without dyspnea. I’ve been checked by cardiology and pulmonologists and they find nothing wrong. As I’m losing my breath I bend over and cannot stand up straight and have pain in my back.

Before all this I walked everywhere. I was even hiking. Now I spend most of my time sitting. I’ve been to physical therapy for strengthening my core and just recently for strengthening my legs so I could walk standing straight. But I still have dyspnea.

I have received a suggestion from a group member and have already contacted my doctor to hear her thoughts.

I look forward to hearing any advice that anyone could give.

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@scbarb79

I’m a retired 79 year-old lady married. Worked at sitting in front of computers for 30 years. About 15 years ago out of the blue I started losing my breath while I was walking down the street. I had to sit on a window ledge for awhile before I could go on. From that day till now I have not been able to walk without dyspnea. I’ve been checked by cardiology and pulmonologists and they find nothing wrong. As I’m losing my breath I bend over and cannot stand up straight and have pain in my back.

Before all this I walked everywhere. I was even hiking. Now I spend most of my time sitting. I’ve been to physical therapy for strengthening my core and just recently for strengthening my legs so I could walk standing straight. But I still have dyspnea.

I have received a suggestion from a group member and have already contacted my doctor to hear her thoughts.

I look forward to hearing any advice that anyone could give.

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I am almost 76 female. I also worked behind desk for 40 years. I walk every day up and down steep hills and strenuous yard work. Any caffeine causes heart rhythm problems and shortness of breath,
I just googled and they say lung or heart problems. Are you doing everything you can do to take care of your heart and lungs??
The older we get, the less we get away with. Examine your diet. I am assuming you don't smoke. Are you overweight? I do a stretching routing that takes less than 10 minutes the first after waking up. I made it up and stretch etc for a count of 10 going every which way.
Pain in your back sounds like spine is out of alignment. There are no good chiropractors where I live, but if you can google a one that does GONSTEAD method, which is the best. One I had in Florida would cure 3 problems if I went in for one problem. He was amazing. People from all over the world go to him and he had huge looseleaf books full of letters and thank you notes from patients.

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Hi, I’m Bonnie and have A fib and on Eliquis. I also have a slow heart rate which seems to cause fatigue. It makes me nervous but my cardiologist says not to worry unless I have fainting or other symptoms.

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My heart and lungs are perfect. Had all the tests. Used to walk and hike before this. Lost 50lbs and no change. Still overweight but am doing exercise. Had physical therapy and helped a bit. Have no pain in my back unless I’m trying to stand up straight and walk.

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Hey I'm Melissa, just wondering more about anyone with prolonged QT syndrome. I was asymptomatic for 3 Years.. out of no where I started having seizures mostly in my sleep. I'm thinking this is an ecliptic episodes... one day again going back in the ER they told me again I had a positive ekg. I was hypokelmic.. just haven't felt right since thr first positive ecg
If anyone has any advice at all I'd love to hear.. I'm 35 years old and my uncle also passed from this! Thank you

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Hypokalemia means out side of the lower limit for normal potassium values in the blood. I tend to be that way as well, and have to supplement. I eat peanut butter, a lot of it, and peanuts have potassium. So do potatoes, beets, coconuts, kiwi fruit. How I could be swirling around the drain of hypokalemia is a mystery to me, but when I had to go to the ER two years ago for a heart arrhythmia, they gave me two large white tablets and told me I needed more potassium (after the blood assay).

Alas, I am not up to speed on long QT intervals. My problem was atrial fibrillation. Have you done any reading on your own?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7252925/

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Has anyone had the procedure for hypotrophic cardiomyopathy "Alcohol Septal Ablation?" And if so, your experience and where did you have it done?

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Hi Everyone, I have Congestive Heart Failure and recently wore a heart monitor for 6 days. It showed tachycardia and bradycardia plus PVS's and PAC's. My endocrinologist had ordered blood work for my yearly thyroid check and my Alkaline Phosphatase, AST. ALT and cortisol were very high. She said my CHF is stressing my liver. She had me send these reports to my cardiologist. How do you de-stress CHF? I eat a low salt diet- under2000mg. I need to lose weight but I am never hungry and I eat about 600 -900 calories a day. and have lost 2 lbs since Dec. Even though I have Sjogrens, I have been told to limit my liquids to under 64oz a day. I have gotten dehydrated so am upping it to 70 and eat ice chips- but I measure them too. Any help would be appreciated.

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