Anyone with occasional Afib NOT on a blood thinner?

Posted by yorlik @yorlik, Nov 8, 2020

Seems a gray area exists between constant Afib and no Afib: What about those with occasional Afib?

1) A couple of hours long, once every 3 months?
2) A couple days long, once every 3 months?

I am curious how folks with occasional Afib handle the blood thinner question? Personally, I talked my cardiologist (replacement cow valve) 2 years ago into letting me stop blood thinners due to going almost a year w/o an Afib episode, the ridiculously high cost, and my woodshop/powerTools/chainsaw/woodCutting/mechanical lifestyle.

Along same lines, anyone know of natural blood thinners that could be used for occasional episodes?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@windyshores

@kildlaren96 it seems you must have high blood pressure, from the meds you are taking. That raises your CHAD score. It sounds like your cardiologist is taking a reasonable course of action balancing risks, and if you have more afib, that course may change. Two episodes in 11 years is not cause for alarm, from what my EP has said about once/two years or even once/year, and I hope that pace continues!

@lindy9 on many of these health forums, whether for bones or heart or lupus, there are people who are following a "natural" or "holistic" approach (including diet, exercise, supplements). Everyone is different. Many of us do require medications and for some health conditions, we may even be in danger without medication.

That said, finding doctors who listen, and are cautious and flexible in whether and what they prescribe, seems key in my experience.

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What you say is true. But I know many people who are ignorant of any type of prevention or natural ways to be healthy. Many doctors only dole out drugs. What you are saying is from your experience, and the same for me. I throw in my 2 cents for those who it may help. I have seen and experienced too much to not want others to go through needless pain and health issues that can be simply alleviated. It is not my intention to offend anyone.

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@lindy9

What you say is true. But I know many people who are ignorant of any type of prevention or natural ways to be healthy. Many doctors only dole out drugs. What you are saying is from your experience, and the same for me. I throw in my 2 cents for those who it may help. I have seen and experienced too much to not want others to go through needless pain and health issues that can be simply alleviated. It is not my intention to offend anyone.

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@lindy9 I declined blood thinners 10 years ago and take magnesium, drink low sodium V-8 for potassium, and various other supplements. I don't eat after 5, exercise daily and only lie on my right side. The AFib Cure book is a great resource supporting these approaches. (For other meds, like osteoporosis meds, I work with doctors to keep doses low and monitor effects on kidneys and heart. I took cancer meds for 5 years and am still here.)

I do expect to be on anticoagulants at some point. For now I am grateful to have finally received some for short term use if ever needed. Dilitiazem IV in the ER for episodes brings heart rate down from 200 to 90.

I just don't want it to seem like a moral issue whether drugs are used or not. I have a kid on insulin who would be dead a long time ago without Big Pharma! My personal experience with medications and doctors is complex- and flexible- and sometimes there is not other option but medications- for many people. Many things can go wrong with our complicated bodies and natural approaches, while they might be tried first, don't always suffice- but always good as supplements.

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@windyshores

@roba7 my CHADS score is 2 (age over 65 and female) but since I have no other factors like hypertension, diabetes, overweight, alcohol etc. my electrophysiologist does not think I need anticoagulation. I always feel my afib and monitoring has shown that to be true. I have episodes roughly one a year. I am really happy this EP gave me Eliquis to take short term after an episode that lasts over 5 hours, which mine rarely do. I have flexibility in how I use it so if an episode were , say, 3 hours I might consider a few days or a week on it. One hospital did an echocardiogram after an episode to check for clots and I was unmedicated.

If monitoring shows more afib than a person is aware of, then the CHADS may be a good indicator of need for meds.

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Did the hospital that did they use a TEE. Note TEE has a much better diagnosis for a blood clot.
https://www.heart.org/en/health-topics/heart-attack/diagnosing-a-heart-attack/transesophageal-echocardiography-tee#:~:text=TEE%20can%20give%20clearer%20pictures,the%20heart%2C%20than%20standard%20echocardiograms
"If blood clots are in the chambers of your heart, in particular the upper chamber, such as those caused by atrial fibrillation."

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@windyshores

@roba7 in what way is my situation uncommon? Frequency of afib or ability to know when it is happening? The original post asked about blood thinners for "occasional" (paroxysmal) afib, by someone who had gone a year without any afib.

A doctor using the CHADS score alone prescribed an anticoagulant for me 10 years ago and I declined. Another doctor told me to "just go home and forget it happened." I was happy to find an individualized approach and understand it does not apply to everyone.

Anticoagulants bring risks of bleeding. I believe my mother's vascular dementia was worsened by Coumadin. Afib brings risk of stroke. It is a matter of risk vs benefit and which brings the higher risk. The CHADS score simplifies what is actually a quite complicated decision.

Surely doctors face less liability when following the CHADS protocol than when they don't prescribe. For me, that is a problem. For many, it is not.

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What I meant was that most of us have episodes that are not symptomatic from time to time. The only way to rule this out would seem to be full time monitoring. I think the rationale for continuing anti coagulation even after successful ablation ( as is the case for me) is that it can come back and not be sensed by the patient. I think there is some discussion about stopping after a number of years of repeated monitoring but not sure where that is at the moment. I know there are risks to either approach. I do not think physician liability is an issue in Canada where I live but could be in the US.

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@harveywj

Did the hospital that did they use a TEE. Note TEE has a much better diagnosis for a blood clot.
https://www.heart.org/en/health-topics/heart-attack/diagnosing-a-heart-attack/transesophageal-echocardiography-tee#:~:text=TEE%20can%20give%20clearer%20pictures,the%20heart%2C%20than%20standard%20echocardiograms
"If blood clots are in the chambers of your heart, in particular the upper chamber, such as those caused by atrial fibrillation."

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@harveywj no they did not use a TEE.

@roba7 my thorax is tiny and I have several spinal fractures that have altered the thoracic structure. Net result is I feel afib and am clearly fortunate in that. Nevertheless I have monitoring once in awhile to make sure I am not having afib that I do not feel!

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@lindy9

When people tell me that a health problem runs in the family, by listening to them, I usually find that the HEALTH and DIET habits are passed down. I am also very reactive to meds, so I take none. I investigate the causes and ways to get rid of the problem naturally. Dr Google does not cost me a bit and does not get me on meds that are more dangerous for me than the original problem.

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The biggest issue with Dr Google is that you are being both physician and patient. Yes, there is some good info on the net mixed with a lot of misinformation or outright lies. It had long been said that the physician who treats him/herself has a fool for a patient. Your choice

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@roba7

The biggest issue with Dr Google is that you are being both physician and patient. Yes, there is some good info on the net mixed with a lot of misinformation or outright lies. It had long been said that the physician who treats him/herself has a fool for a patient. Your choice

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It is my choice. I am 75 and have had a lifetime of bad experiences with doctors. It is not foolish to investigate the side effects of medications. It is foolish not to. They are also printed on the labels usually in print so small that you need microscope to read.

When someone writes that they need help with a so-called disease that has a name I never heard of, and I look up and it simply means low potassium and her being sold something that she cannot swallow it is so horrible, looking up what FOODS you can eat instead is not foolish. It is a simple solution. I had the similar experience and and was also given some gobblygook and could not drink it The pastor's wife told me to eat bananas. I did and viola I was fine.!

I have had so many bad experiences I could write a book. How I take care of myself has resulted better than most people I know. I have a list of 34 people that I knew that died, and almost all younger than me, died early because of their bad health decisions. Just this morning as almost every day, I cut down weeds for an hour and a half and then walked to town up and down hills. I know people my age that can barely creep around and are full of meds.

This morning, I went to visit my friend who told me she went for urine tests this morning because she said she was not urinating much!. I asked her how much she drank daily. She said very little.!!! I told her, if you only put in a little, only a little can come out!!. She got laughing so hard, she about wet her pants. She also has other problems because of wheat and too much sugar. etc. But there on her table was a cake pan with only one piece left. She said she could not resist.

The net and google is not the only place that gives misinformation and bad advice. - doctors do too, because of what the drug salesmen tells them, what they are taught, or mandated procedures that are profitable.

We all have choices. And we will all experience the consequences of the choices we make.

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@lindy9

It is my choice. I am 75 and have had a lifetime of bad experiences with doctors. It is not foolish to investigate the side effects of medications. It is foolish not to. They are also printed on the labels usually in print so small that you need microscope to read.

When someone writes that they need help with a so-called disease that has a name I never heard of, and I look up and it simply means low potassium and her being sold something that she cannot swallow it is so horrible, looking up what FOODS you can eat instead is not foolish. It is a simple solution. I had the similar experience and and was also given some gobblygook and could not drink it The pastor's wife told me to eat bananas. I did and viola I was fine.!

I have had so many bad experiences I could write a book. How I take care of myself has resulted better than most people I know. I have a list of 34 people that I knew that died, and almost all younger than me, died early because of their bad health decisions. Just this morning as almost every day, I cut down weeds for an hour and a half and then walked to town up and down hills. I know people my age that can barely creep around and are full of meds.

This morning, I went to visit my friend who told me she went for urine tests this morning because she said she was not urinating much!. I asked her how much she drank daily. She said very little.!!! I told her, if you only put in a little, only a little can come out!!. She got laughing so hard, she about wet her pants. She also has other problems because of wheat and too much sugar. etc. But there on her table was a cake pan with only one piece left. She said she could not resist.

The net and google is not the only place that gives misinformation and bad advice. - doctors do too, because of what the drug salesmen tells them, what they are taught, or mandated procedures that are profitable.

We all have choices. And we will all experience the consequences of the choices we make.

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@lindy9 - you have made many good points here. And you are one of the few who appear to be “walking the walk” on many of the basic essentials for good health: exercise, diet, sleep, etc. That in itself is inspiring. My reference to the “physician having a fool for a patient” was not meant to discourage people from becoming informed about the details of their care, including side effects of drugs versus the benefits for your particular condition, and other recommendations for surgery or other treatment. The point is that in the course of our lives, and particularly with health care, there are times when we need the unbiased diagnosis of a health care practitioner. I don’t know your story, but mine has involved many such situations. Despite having both the internet and health care education, in the end it came down to whether I was going to trust my caregivers or just go it on my own. That is where, after all the questions and answers, we have to choose who to trust. Doctors are not perfect, but many other practitioners also have a history of the same faults. I wish you the best.

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@grandmalele

I'm very interested in your question, though my occasional Afib has a very different profile. I have short Afib, not necessarily even every day, though it's been going on awhile. Symptoms are much less noticeable than what I get with my (15%/ half trisomy) PVCs and my weird form of angina, so mostly I wouldn't even notice it. I can only be pretty sure when it's happening by checking on my Kardia when I'm feeling particularly "weird". The Afib was picked up on an echo cardiogram done in the ER recently and I'm scheduled to see an electrophysiologist in about two weeks. I already take Plavix and really don't want to go on a blood thinner.

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Tuve una fibrilación auricular en un momento yque me hizo sentir muy muy mal Tuve que internarme y quedé medicada con rivaroxaban, flecainida y bisoprolol. No tuve ningún episodio más a pesar de estar sometida rutinariamente estudios y controles. Justamente ayer conversé con el cardiólogo sobre la posibilidad de retirar la medicación. No está de acuerdo a pesar de continuos controles durante un periodo de tiempo y sin repeticion. Pero realmente no lo veo con intención real de quitar los medicamentos. Justamente al día siguiente de mi episodio de arritmisa , se me diagnóstico COVID. Puede haber sido un episodio relacionado con el covid ,pero dejar la medicación sin hacer exhaustivos controles antes, es arriesgado. Veremos. cuál es el siguiente paso a largo tiempo.

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@mecha how long did that episode last?

My episodes land me in the ER or hospital with very rapid heart rate. But they generally last 45 minutes to two hours, with one lasting 7 hours. After 10 years I am still not taking any medications, with the recent blessing of an electrophysiologist. Maybe your episode lasted a long time. I did finally get a prescription for Eliquis to take after an episode, short term, and diltiazem to try at home (vs ER) if I have an episode with blood pressure that isn't too low. If blood pressure is low, I go to the ER.

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