HCM-ers: Introduce yourself or just say hi
Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon on the group landing page.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
Hello @marckat2006, Happy 4th of July, and Welcome to Mayo Connect!
I posted some Connect threads and a Mayo Clinic article for you to read. I hope you can find some information that helps you.
You posted to the HCM group, do you also have HCM (Hypertrophic Cardiomyopathy)?
Seventy is young to me, as I get closer every year!
HCM can cause dyspnea or shortness of breath, chest pain and wild heart beats. Did your cardiologist discuss these issues with you? When do you see them again? Do you have other health issues, or are you an active young 70 year old?
https://connect.mayoclinic.org/discussion/stiff-heart-diastolic-heart-failure/
https://connect.mayoclinic.org/discussion/confused-about-stiff-heart-diastolic-heart-failure-or-hfpef/
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
Hello marckat2006, What did your cardiologist suggest for your treatment? Would it be possible for you to get a second opinion at the Mayo Clinic where the doctors are very well versed and up to date?
I live in Michigan. I take pills.
Hi Marckat2006,
I also live in Michigan and take Camzyos. 😊
Marckat2006, please inform us of which meds your doctor prescribed. There are many people, especially the moderators, who are living with the HCM heart issues (yet, individually different), that you are and can offer plans of action that you can consider. Michigan is not so far from Minnesota, people from all over the world seek help there (I'm upstate NY). We can ALL sympathize with you during this very scary time! Your quality of life and peace of mind are important. Learn all you can about your condition!
Hi,My name Mark one year on Camzyos
Hi Colleen, Just joined the group. I'm signed in as @metta I think. I was diagnosed HCM in August of 2008, and have had an ICD since then. Looking forward to being a part of the discussion.
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
Hi Mark @flyman437, it looks like this is your first time posting, so welcome aboard the Hypertrophic Cardiomyopathy group. I posted a link to the Camzyos group, and you may want to take some time and read all their stories if you have not yet.
You mention you are on Camzyos for a year now...how are your HOCM symptoms? Are you doing better than before Camzyos?
Hello @metta, and welcome to Mayo Clinic Connect. I'm glad you are here! And yes, it looks like you did sign up as @metta. I hope you have a chance to poke around here on Connect and read the stories shared here.
You mention you have HCM and an ICD, how is your health otherwise? Do you take meds for your heart? Are you an active person?
Hi, the symptoms almost disrepair.I am doing 100% better, and it is a miracle pill.