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Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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Hello @itsallaboutmyki,
How is your dad doing? Are you comfortable sharing what you learned from the vascular surgeon?
I was diagnosed last year with A Celiac aneurism I have no one here to go till for the situation I didn't know if it was serious or not maybe somebody can tell me a little more about it I been Vomiting losing weight all the above
I live in Alaska sorry about that
I've been living with mine for several years, It's pretty small 1.2 cm and I have no symptoms. They have me do a CT scan every year to see if it is growing but other than that it's wait and see. Many of us are in that "to small" to fix it category. Many other like yourself have associated symptoms that in my opinion are a good enough reason to do something to fix it. It's frustrating for sure. I think finding the right doctor is key but that is difficult when these are such rare occurrences. Good luck and you are not alone.
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1 ReactionYour situation is similar to mine ( even the aneurysm size ) and typical for members of the group. I am just beginning to experience some digestive issues nothing that isn't manageable. Finding a vascular surgeon familiar with the diagnosis to monitor and repair if necessary is an issue for most of us.
@ cheftam - I understand that living in Alaska with a rare medical condition must be very challenging. What happens if someone needs to see a “ super” specialist? Can a doctor in Alaska consult with an expert elsewhere via telemedicine? They can’t just leave you like this!
I'm sorry this has happened to you, I also have a CA @1.6 but show not symptons at this point.. Is it possible for you to go out of state for a dr.. maybe a relative or friend somewhere..
I was in the ER today Due to adrenal crisis and ended up with a CT scan looking for kidney stones
The CT scan was never discussed upon My release and I didn’t even think about ask
After leaving and on my way home I read the CT report and it noted mildly aneurysmal celiac artery
My daughter was furious this was never discussed and called the ER they said it was seen on a previous ct scan and it hasn’t changed and they assumed I knew
Ummm nope never been told any of that and I went back to my last ct and it wasn’t noted there either
I would love to know how yours was found and I might if I keep reading the comments but would love more feed back
Hi..wow! Your story is almost the same as mine. I went to the ER in 06/17 for severe upper middle back pain. Had an abdominal CT scan. Was told I had gallstones. Had gallbladder removed 10 days later. Then on 07/24/17 the same terrible back pain hit me again. Went to the ER, given another abdominal CT scan (mind you both times I was complaining of severe pain between my shoulder blades), ER doctor received those results and I immediately found myself having a CTA (CT angiogram). He came back in and said, "I have very bad news..your aorta is dissecting itself and did you know you also have a celiac artery aneurysm?" He said the celiac artery aneurysm was noted on the prior CT from June. No one ever informed me. However, if they would have done the CTA back in June they also would have noticed the beginnings of my TAA. I had emergency TEVAR to repair my aorta. No one was concerned much about the celiac artery aneurysm. I lost my health insurance until January so I just try my best to stay well. Good luck to you!
I am very sorry to hear you are going through this. My celiac aneurysm is 1.5 cm and it was discovered 2 years ago after I had a splenic infarction. The clot originated from the celiac aneurism. I am told this is unusual to have an infarction from a CA this size. I had been losing weight, nauseated, had pain in my back and stomach area and felt severe generalized malaise. I have always been in good health. Now they follow me once year and I am fortunate to be near excellent medical care. Now I don't have any symptoms (knock on wood) and I am hoping the size doesn't vary. This group has been very helpful to me to know I am not alone out there. This can be scary and lonely. I hope you find a good doctor. I go to a vascular surgeon and have an excellent internist that hears me. It is important to find someone who takes your symptoms seriously. Please keep us posted on how you are doing.