Hello @annie1234, welcome to Mayo Connect. Thank you for sharing your post. There is an active discussion for Chronic Epstein Barr on Connect here that you may want to read through:
-- https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/bookmark/?ajax_hook=action&_wpnonce=12a348c300

I’m tagging @clghanimo @jenchaney727 @suesiegel @arriba @copiela @jatl @cheryldotson @cummings3 @aman_23_23, who have all discussed Epstein-Barr Virus (EBV), and I’m hoping they will be able to offer some more insight.

Here are a few conversations on Connect that you may find useful:
– Chronic Pain members – Welcome, please introduce yourself http://mayocl.in/2tz0bcE
– I just need some answers!!! Please help me!!! http://mayocl.in/2uf42sH

More information from the National Institutes of Health on the Epstein-Barr Virus treatment:

Optimal Treatment for Chronic Active Epstein-Barr Virus Disease
— https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2776035/

I’m not sure if it is an option for you but if you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here: https://www.mayoclinic.org/appointments

John

When I was 20 or so I had Mono Epstein Barr the Dr. gave me high-doses of vitamins not sure what they where as I was sort of out of it I had a high count and the rash with it.It was in my 40s I was diagnosed with fibromyalgia now at 75 I have fatigue almost all the time.Just started Cymbalta

lioness, This is part of our lives. At least we can take naps whenever we wish. People don'r think we are lazy, just old

We have tried to get our son an appointment at Mayo several times and he was denied for Epstein Barr?

I feel like I don't get enough sleep. I can sleep sitting down. I have separate from my family. Not their choice, but I am to tired to go anywhere. I may have to have some kind person adopt my 2 Yorkies 2 yrs old.

Do you take Magnesium @Calcium together? I take them every night before bed call asleep without any trouble

Hi Coleen. This is a great group. I’ve been lurking so far, but I’m so curious about the fatigue factor that I wanted to put my two cents in. I’ve had Srojens for six years and In the beginning my fatigue was not too bad. However, the last year and a half has made a once fun loving, and fairly active lady into a bona fide couch potato. I had a problematic total knee replacement on October 1, 2017 so I understand that is part of it. However; my fatigue is so great, at times, that I have to IMMMEDIATELY lay down. I know I’m depressed, but I just don’t want another pill to take. I think I may have developed an ulcer due to all the antibiotics and slew of other meds I’ve taken after I had a total knee replacement. Seeing Doc about that. I also have Hyperthyroidism, arthritis, MCI, osteoporosis, huge dental issues. That’s enough of my maladies. Glad to meet you all. Marianne

If I find something will let you know.

Coleen. I have had RA for years now. I have been fortunate so far. BUT my perfect teeth stared cracking and falling out in pieces. Little things. I too have .my days when I am so tired. My kids beg me to go here and there. But i am old and my children grown. Being old does not set well with me. So I walk long walks everyday with my dog. If I did not have RA I would be out every night having fun.
We can't help that we have issues. But we can dream and have fun thoughts. I pray you do much better.

Yes we can just napped this afternoon ,my pain in back is still there Thursday will be a week if it's no better I'm contacting the Dr