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Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)

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@colleenyoung

John, I'm so glad you started this discussion specific to fatigue. As you know my mom suffers from fatigue and we're still trying to get to the bottom of the cause. I'm tagging other members on this discussion in the hopes that they'll share their experiences with autoimmune disease and fatigue.

@robbinr @jharsh @dawn_giacabazi @flowerbeauty @jillnc @kyjeanne @blindeyepug: John asks, Do you experience fatigue? How has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?

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Replies to "John, I'm so glad you started this discussion specific to fatigue. As you know my mom..."

Thank you for that. I do get tired of having to research something in every post.

No idea what binding is.

Fatique is always with my eyes. Once in awhile I have strong fatigue and have to take the day easy. Last tiime my eyes weren't tired was in the 1980s.

I would like ti reactivate this topic. I have an autoinmune diagnosis. The biologic stop all symptoms but when I need to stop it or when I am close to the next injection (1 each month) I experience extreme fatigue (I can sleep the whole day). I need to stop activities and my work status suffers. I would like to know effective treatments and solutions for those days. I am already 2 years on remission but need my brain to be on and not off

I am shortly turning 80. I was diagnosed with Crohns at 22 and was put on meds one being Prednisone . I have been constantly fatigue ever since. AfterCrohns Disease, came migraines, Osteoporosis, osteo arthritis, reflux, post nasal drip, glaucoma, etc. about 2 years pre Covid I had a cold which eventually turned into a flu very much like covid. Taken to the hospital and could not walk without oxygen tank,. and had two teams of physicians trying to put a name to it after many tests. It permenantely damaged my lungs. Went home and the virus went away but left me very tired, not to sleep,but rather very low energy level and have never returned to my old self. If I have errands to run by the time I get myself together to go out I feel like crawling back into bed to rest. When out I quickly tire and will have to just go home. I am on may medications for my various health issues and they believed this is what caused my lung issues in the first place but I cannot go off any of them. I am between a rock and a hard place. I am not having fun!