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What to watch for as a caregiver after liver transplant?

Posted by Smiles @preetismiles, May 7, 2024

Hi, My wife (42 years) has been went through liver transplant about a month back in Mayo Phoenix. I am little nervous but curious to know what should all I know so that I can provide her excellent care and prevent any possible complications. Any advice from your own experience would be highly appreciated. -Thanks

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edwardlwallace | @edwardlwallace | May 20, 2024

Make sure to stay on top of any coughs or upper respiratory issues especially early on with immune suppression higher. I made the mistake of thinking I would get better and contracted pneumonia and took a long time to recover from that. Better to ask than wait so anything that feels wrong or unusual ask team or PC. I don’t want anyone to make the mistake I did. I am seven years post transplant now and can walk miles or hike so it gets better 👍🏽🙏🏽❤️
Day by Dsy
I am down to 1 mg two times a day Blessed 👍🏽🙏🏽

REPLY
1 reply
Smiles | @preetismiles | May 20, 2024
In reply to @edwardlwallace "Make sure to stay on top of any coughs or upper respiratory issues especially early on..." + (show)
@edwardlwallace

Make sure to stay on top of any coughs or upper respiratory issues especially early on with immune suppression higher. I made the mistake of thinking I would get better and contracted pneumonia and took a long time to recover from that. Better to ask than wait so anything that feels wrong or unusual ask team or PC. I don’t want anyone to make the mistake I did. I am seven years post transplant now and can walk miles or hike so it gets better 👍🏽🙏🏽❤️
Day by Dsy
I am down to 1 mg two times a day Blessed 👍🏽🙏🏽

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Thanks much for the advice. She has just completed first month. Although she is doing better but on medication of CMV virus. I would definitely watch for any cough & cold systems. Appreciated ❤️

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 24, 2024
In reply to @carlcc "I will add one more, see a dentist more frequently for check ups. There can be..." + (show)
@carlcc

I will add one more, see a dentist more frequently for check ups. There can be long term dramatic effects on dental health from the drugs that are now required to take the rest of your life. Best to stay ahead

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Welcome, @carlcc. Are you also a liver transplant recipient? Or caregiver of a transplant recipient? I look forward to getting to know about your story.

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carlcc | @carlcc | Aug 12, 2024
In reply to @preetismiles "We have been strictly advised not to visit any dentist unless approved by transplant team. Anyways..." + (show)
@preetismiles

We have been strictly advised not to visit any dentist unless approved by transplant team. Anyways thanks for advice.

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K .. will 7 years later my wife's beautiful smile is being replaced by $55,000 worth of dental work. Just sharing. You situation could be different.

And yes, anytime we schedule dental work, blood test are performed as a check for infections and immune system health. antibiotics are prescribed/taken day of the procedure.

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