Has anyone had a tilt table test or examination?
Has anyone had a tilt table test? I’m having one this month.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Has anyone had a tilt table test? I’m having one this month.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Since they can’t figure out what autoimmune disorder that I have SSID ignored my autoimmune disorder. Depression is a whole new subject. I am going to try to say this nice please do not misinterpret. SSID sent me to one of their doctors. It was a doctor from India that I had problems understanding. She told me she would ask the questions and my answers were yes or no. As far as my tremors she said exercises would take care f them. Put your area straight in front of you and then cross them over your chest. That will solve my tremors. I asked her why I was not seeing a neurological doctor and she told me SSID did not consider it important that I see a neurologist when my problems are neurological.
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2 ReactionsArea=arms
To me she had a loose screw.
My attorney just called. I received my second denial Jan 5. They are trying to get me a court date. I can’t believe it’s been two years.
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2 Reactions@artemis1886
I have also had issues with swallowing and speaking at times. I was going to apply for unemployment when I first lost my job but didn’t because I didn’t think I could work.
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1 ReactionI live in Texas and the attorney is in Florida but practices everywhere in the US.
1-800-800-3332.
I have had attorney since the beginning my neurologist said I would need one. He died in 2022 in his sleep. He said I more than qualified for disability. I probably would have gotten it had he been alive. I had seen him since 2002.
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3 ReactionsI didn’t because I knew I could no longer apply for jobs. I had my job for 20 plus years before I left.
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2 Reactions@artemis1886
I was in my last job for 10 years but have worked over 34 years (currently 54). I don’t know what I am going to do if I get denied for disability since I don’t think I will be able to work. COBRA insurance coverage is so ridiculously expensive but I need coverage for my son and me due to medications needed, tests, etc.
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1 ReactionI can not imagine going through this single. I just turned 62. Make sure you applied for said and ssi. My youngest was born with congential heart disease and has decided to refuse all medical care. He was supposed to have a carduac catg in FEB. We are from Texas and my husband currently works in Germany. I think when we come back we will be in Colorado. I always wake up at this time in so much pain that I can't get back to sleep.
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2 ReactionsMy 23 yr old son suffers from SFN (some LFN). You mentioned you have tremors. My son has head to toe tremors that are getting worse over time. They diagnosed it as “tremors” but never give an exact reason why. He shakes so bad…especially when he is concentrating on something like trying to pour into a cup, writing with a pen and also when his adrenaline kicks in like watching an action movie or playing a video game…is that what you experience with the motor neuropathy? He also has Gastroparesis, dysmotilty in his esophagus, stomach & colon, POTS, Dysautonomia, Tachycardia/Bradycardia, Hypertension, Autoimmune disease, systemic Eosinophilic disease & Systemic Mastocytosis…He’s had multiple rounds of IVIG when he was in his teens as well. Currently he’s been experiencing severe pain in his lower back/spine for over a year and can hardly walk anymore (uses a wheelchair & walker). X-Ray, MRI & CT scans show nothing is structurally wrong. They say it could be his nerves but they don’t really know. I’m desperate to find answers to help him.
We are currently trying to get him to Mayo for treatment.
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3 ReactionsA neurologist does an EMG/nerve conduction test to test for neuropathy.
Yes, the motor neuropathy causes tremors. It’s misleading when you google motor neuropathy it says movement disorder to me they need to be clearer on that.
The SFN is confirmed by three biopsies. I had mine repeated and the SFN has became worse.
The cardiac autonomic neuropathy causes bradycardia/tachycardia I did a one month holter monitor test and was sent to an electrophysiologist then had a tilt table test. Once diagnosed they give you 8 years to live. The autonomic neuropathy affects the bladders, gastroparesis and so forth.
They are now testing me for CIDP. Which is an autoimmune type neuropathy and some other things by spinal tap.
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3 ReactionsThank you for sharing, I hope you continue to get more answers and help! It sounds like you have a lot of knowledge about neuropathies! It’s very frustrating and confusing. When the neuropathy is not directly related to diabetes, it seems like it’s very hard to treat. I’m trying to understand more to help my 23 yr old son. He has seen many Neurologists & was diagnosed specifically with Autonomic Neuropathy, Peripheral Sensory Neuropathy, small fiber neuropathy, limited large fiber sensory dysfunction, compressive neuropathy in his hands, ulnar Neuropathy (elbows), carpal tunnel syndrome & frozen shoulders. His BP is high laying down 152/82 but he has an abnormally low resting heart rate (low 40’s) Sometimes it goes into the low 30’s when we are in the hospital. Then the monitors will show bradycardia & tachycardia all at the same time…it’s very scary to witness. Movement disorder Neurologist prescribed him midodrine for the tremors and the Autonomic dysfunction neurologist prescribed him propanolol for the high BP….but we are concerned of the side effects taking the two drugs together. He has to drink 130 oz of water a day, add extra salt to food, low impact exercise to keep the blood vessels open and blood flowing. He used to be on Florinef. He would faint a lot and have a lot of black out vision episodes…he’s come a long way since those days. Still gets very dizzy and faint but is able to catch it before fainting. Still experiencing the vision problems…lots of times he describes it as “shaky” vision now…the room shakes. I would like to ask for further heart testing as that is a very big concern! Thank you for sharing about your heart monitor testing…I think my son needs to do that test again.
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