Anyone else out there with extremely high lipoprotein (a)?

I am thinking of doing a vegan, low fructose, very low fat diet. There are a few well known (and one really reputable ) doctors that advocate for this. One is Dean Ornish, the others are Caldwell Esselstyn and Neal Barnard. I think I feel more comfortable with that, but I meet with the lipid specialist in one month. You are correct, statins do nothing for Lp(a), except reduce your other risk factors. Appreciate your sharing your success story!

My LP a came in at 283. I had already shifted to a mostly plant based diet based on Dr. Esselstyn's book since July 2023. I have an article from another source that if you are eating a diet as you mention above, stay active and get exercise, the extremely high Lp a risks are relatively minor. The other key seems to be to check you "high Sensitivity C-Reactive Protein" and if it is low, again, the risks seem much less if not very low. I am still researching to learn more that I can do and will try to share any information I find with you. I too am looking for help. My cardiologist was of little help since their is no pharma treatment yet approved that is practical for me, so far. Several clinical trials are in progress but not expected to be approved until 2025 or later.

I'm not a doctor, but with total cholesterol over 200 and LDL at 141, my understanding is that you are at high risk. You should be looking at total cholesterol in the 150 range and LDL, for the "normal" population at under 100; I would think based on other risk factors yours should be under 70. If you are at a higher risk, then LDL needs to be under 50. Even if you moved to a perfect diet, weight, and exercise, you're not going to get those numbers without drugs. Takes me 3 (statin, etezimibe, repatha) to get there. Also, as noted above, the high sensitive c-reactive protein test is another good place for your doctor to assess risk.

The Repatha injection seems to be lowering Lp(a) for me and others here, but it's not the primary use. For me, it lowered my LDL from 109 to 27 and total cholesterol from 175 to 87.

I am thinking of doing a vegan, low fructose, very low fat diet. There are a few well known (and one really reputable ) doctors that advocate for this. One is Dean Ornish, the others are Caldwell Esselstyn and Neal Barnard. I think I feel more comfortable with that, but I meet with the lipid specialist in one month. You are correct, statins do nothing for Lp(a), except reduce your other risk factors. Appreciate your sharing your success story!

Hi, thank you, that was a very helpful video. I don’t get to meet with the lipid specialist for another month. My primary has started me on a statin and baby aspirin in the meantime.

My husband’s cardiologist prescribed Repatha for his high LPA, was 270 and is now 160 after 2 injections.
We are fighting for more injections to pay, with our insurance, $700 for 4 injections.
The doctor is trying to help us with statements,
Until now, it doesn’t work 🤷‍♀️

If you have not done this already, see if a Repatha discount card will help. It comes from Amgen directly and may offer you a discount. I was paying $50 each box of 2 with my insurance at a local pharmacy, and now that I've moved to the mail order world, I'm paying $5/box of two, including FedEx shipping.

Don't get me started on how I think the insurance industry and pharmacy benefit managers are scamming the public.

I'm not a doctor, but with total cholesterol over 200 and LDL at 141, my understanding is that you are at high risk. You should be looking at total cholesterol in the 150 range and LDL, for the "normal" population at under 100; I would think based on other risk factors yours should be under 70. If you are at a higher risk, then LDL needs to be under 50. Even if you moved to a perfect diet, weight, and exercise, you're not going to get those numbers without drugs. Takes me 3 (statin, etezimibe, repatha) to get there. Also, as noted above, the high sensitive c-reactive protein test is another good place for your doctor to assess risk.

The Repatha injection seems to be lowering Lp(a) for me and others here, but it's not the primary use. For me, it lowered my LDL from 109 to 27 and total cholesterol from 175 to 87.

Hi, I have 329.1 high lipoproteinA. I was on 10mg statin and had a RCA stemi heart attack 3 months ago. I was put on 80 mg statin after heart attack and now going to start just 40mg. I was wondering how much statins they put you on? My Cholesterol was not high. I had been a vegan for 5 yrs before this happened. I am a 65 year old female. We have hypercholesterolemia in my family so I watched my cholesterol. I did not know about my high LipoproteinA until 1 month and 9 days before I had a heart attack. It was checked because I had an abnormal EKG. They should have sent me to a Cardiac doctor but they didn't. So, now that I know I was curious as to how much statins they give because of high LipoproteinA. I also had a low HDL of 45 but now it is 52. It had been being 56 before. I also take an aspirin now along with Metaporlol succinate25 and 2xday Brilinta 90mg. and the 40 Atorvastatin.