Post Sepsis and ICU Syndrome: There are days I feel so down

Hi I just shared my sorry today but when I read yours I noticed you mentioned body vibrations.. I have that to the point of distraction. I can’t due any vibration to my body bc my many health issues involve severe abdominal pain from multiple things and terrible neuropathy in legs from the septic shock. Tried many medicines and other therapies for neuropathy with no help and the vibration feeling is supposedly in my head…. I get told it’s but another thing you don’t want to be crowned as is what I got stuck with, “most unique and complicated “ competed in equestrian sports since I was a kid, not the best trophy. hah if you don’t laugh you’ll cry. Got any ideas

I wish I could tell you I did have a magical answer to your vibrations. My doctor says he’s never heard of it either and of course it got labeled with “long haul Covid”; Which I feel seems to be the answer to anything that they do not know! I still get the Internal body vibrations; Mostly at night, and they are very hard to ignore. I also have neuropathy in my feet and legs. I’m told from the numerous back surgeries I’ve had as well as abdominal ! The only thing I can tell you that has really helped me with those is when they start, if I’m at home anyway; I lay in my bed, which is electric, and I turn on the massage portion. It’s actually more like a bed vibrator; but for whatever reason, it takes them away much faster than normal! I have no idea why, I just know that thats what works for me. I’m very sorry you’re going through all this! People just don’t understand, especially when it’s out of the norm! I take Lyrica for my neuropathy and it helps to the point I can go about my day . But nothing actually takes it away. Sepsis and septic shock and even the ICU is no joke. It’s serious and you are very blessed to be alive!, Many people die from sepsis, let alone septic shock! I do have periods where I get extremely, extremely depressed; especially if I don’t keep myself busy… I’m not sure what that is caused by, but it is scary sometimes; we haven’t found a medication that helps with that. I do take Prozac for depression, which helps on a day-to-day basis; but every now and then I feel so, so alone! I feel like I am a grain of sand and that nobody really loves me and sometimes even that I wish I wasn’t here!!! I wish I had some kind of a solution or helpful hint to tell you about that; but I do not. I live alone, so I usually go to my room and stay in bed for days with my phone turned off. I usually stay awake for at least 48 hours, just thinking about how nobody cares! I can’t even tell you what brings me out of it; only that I’m blessed that it does! I do believe in God and I do believe he plays a role in keeping me out of the hospital and in my right mind most of the time . But I attribute it to my guardian angel honestly; that I eventually come out of that very dark, dark place!! Listen, I’m an RN that can’t work anymore; so I now do calm, sit down projects. I do what’s called “dotting”, and I color. Not just normal things; things that take me a long time and keep my attention on something else. I also bought an exercise bike, which I tried to use often since I’m still not wanting to go outside a lot; which is way way different for me. It’s getting better. There is hope; there is always hope… You just have to reach out for it and surround yourself with people that love you and care about you. I can’t say that anyone in my family understands how sick I really was and how close to death I was . Thank God for a very understanding and patience, boyfriend, best friend, and one of my seven sisters!! Horses are amazing therapy, and although I cannot ride anymore, I still love to be around them… Brushing them, talking to them, and just loving on them ! I also had a dog… She was a labrador retriever and had been with me for 17 years. I recently had to put her down for humane reasons… But that hasn’t helped things sometimes; I miss her so bad. So now it’s just me, navigating life the best way I know how , and including God, my father more often in my day-to-day conversations! Good luck to you and feel free to reach out to me anytime. I would be happy to share my phone number with you if you would like! Take care and remember that it’s OK to pray for yourself!!!…. ♥️🫶🏼☺️♥️🫶🏼😊♥️. My dogs name was ChikaJo & mine of course is Karen. Please feel free to reach out anytime! Peace & hope, Karen 😊

Karen, thanks for replying. I’m not one to talk about and share my problems and be emotional but I just don’t know how much more I can take and it seems everyone I had and loves dies. I would love to talk, that’s not normal for me lol. Beautiful horse too. I have 2 horses ,a dog and two cats. Wouldn’t be alive without them really. I’m sorry about your dog…been there and my perfect therapy kitty is about there.
Private message me if you want to talk. Really appreciate the story

Hi, I am sorry , that seems like an empty gesture but I truly do for you cause I am going through it too. 2 years ago I was in septic shock induced into a coma and ventilated. After multi organ failure of lungs , kidneys , and progressing fast. How I survived that is beyond me. But now. How to survive this. It sucks the will out of me daily. I too am looking for answers. I hope you find yours, keep faith in yourself. We can prevail,

I am a sepsis survivor Strep/Pneumonia attacked my epiglottis intubated ICU and put in coma. The first year discovered I had brain damage and couldn't read or write, which meant I was a grants officer at a community college, so my career was ended. My brain felt like concrete and when I tried to read the print would run down the paper like it was melting. I was bewildered, depressed and in general lost. I would go for a cup of coffee and end up at the front door. You are not alone. I got better I can read now and write a letter. I never returned to my level of proficiency, but I can handle most things that come up. An organization that may be a help to you is the Sepsis Alliance it serves survivors and caretakers too. Try not to panic, for me it happened in June 2010 and every year I've seen improvement. It takes time and there is no cookie cutter kind of recovery, be good to yourself and take good care of yourself. The Alliance has support groups and educational lectures for free. Hope your recovery is beyond your wildest dreams.