1. < Polymyalgia Rheumatica (PMR)

Has anyone tried Umary Hialuronica Acidio from Mexico?

Posted by jixster @jixster, Feb 20 12:16pm

I bought a bottle of this UMARY Hialuronica Acidio from Amazon - I wanted something to help with my morning stiffness from PMR. I tried one pill mid- afternoon and the next morning I felt like new! No pain - no stiffness. BUT - after reading some negative reviews on Amazon I became aware of some possible issues, that because it works so well there must be an unlisted ingredient(s) - perhaps a NSAID OR A STEROID? One person mentioned after a couple months of using it started to mess up his liver enzymes. Since I am on 10mg of prednisone I decided to only take this supplement once every 4 days until I see my rheumatologist in April - I did not see any warning from the FDA for Umary - there are many more positive reviews than negative reviews on Amazon- I wish I could get it analyzed to be sure it’s safe but I don’t know where such can be done.

*****

Note from the Community Director

The Food and Drug Administration (FDA) warns that some arthritis and pain management products contain hidden ingredients that could be dangerous. 

Tainted Arthritis | Pain Products FDA

According to the FDA, over-the-counter (OTC) arthritis and pain management products may have potentially harmful hidden ingredients. Use caution before using any OTC arthritis and pain management products. Umary may have hidden ingredients that are potentially harmful.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

fcv | @fcv | Apr 16 6:20pm
In reply to @JustinMcClanahan "Hi @jimbo44. While the temporary restriction on sharing links can be frustrating when trying to share..." + (show)
@JustinMcClanahan

Hi @jimbo44. While the temporary restriction on sharing links can be frustrating when trying to share valuable information, it is an important security measure to protect the community from malicious spammers. Allow me to share the FDA warning you were trying to share, https://www.fda.gov/drugs/medication-health-fraud/kuka-flex-forte-contains-hidden-drug-ingredient.

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Thank you for the link. I am anaphylactic allergic to NSAIDs , so my only course right now is prednisone.

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drdel | @drdel | Apr 18 3:51pm
In reply to @titchou1 "Diclofenac is an NSAID and long term use can reduce kidney function, not liver. Tylenol can..." + (show)
@titchou1

Diclofenac is an NSAID and long term use can reduce kidney function, not liver. Tylenol can impact your liver. A pharmacist friend has sent a Umary sample to the Auburn University pharmacy school for testing. I haven't heard anything back yet.

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If Auburn U provides an analysis this would be very beneficial to many people. Some of us do need to know if UMary contains diclofenac and/or a steroid in order to work with our health care providers to manage this product. Some of my friends are experiencing withdrawal issues and need this info.
Please let us know what you find out.
Thanks for you efforts!

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magrare | @magrare | Apr 18 6:01pm
In reply to @ramsey1022 "Interested to see findings. Experienced overnight knee pain relief but in the 7 weeks I was..." + (show)
@ramsey1022

Interested to see findings. Experienced overnight knee pain relief but in the 7 weeks I was on it gained 7 plus pounds and have had terrible cramps in my legs and feet at night.

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Wire, I have been taking Umary per 16 month, getting my fiscal test every year I did two months ago, my kidneys and my liver are perfect

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1 reply
magrare | @magrare | Apr 18 6:13pm
In reply to @sandiw77 "Hi Everyone! Thanks so much @jixster for starting this discussion on Umary. I have been following..." + (show)
@sandiw77

Hi Everyone! Thanks so much @jixster for starting this discussion on Umary. I have been following the discussion and wanting a PMR miracle of my own!! I decided to reach out to a friend who is an MD trained in Mexico. I asked her to see what she could find out about it. It was not a product that she was familiar with so she had to do some investigation. She reached out to a former partner in her practice who informed her to advise me NOT TO TAKE IT. She says that it has been reported to have VERY high levels of diclofenac in it but it apparently is not consistent so those amounts may vary widely from bottle to bottle. Large amounts of diclofenac can cause significant damage to major organs. She said she would be very worried about my liver, kidneys, or heart.

I am having crazy pain right now and will probably have to take to one of the biologics despite side effects because I have had no luck successfully reducing my prednisone.

I pray that we will all find some non-damaging solutions or that PMR will just quickly runs its course. I hope this information was helpful for someone other than myself and that pain is not in either of our futures. Blessings!
Sandi

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I have been taking Umary per 14 month, getting my fiscal test every year I did two months ago, my kidneys and my liver are perfect, I’m 69 years old, I started taking Umary, in February 2023, after I knew my cuff rotator got turn it I didn’t accept to get surgery y made therapy and started taking Umary if I won’t be able to get it in Amazon I will get in Mexico

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magrare | @magrare | Apr 18 6:17pm
In reply to @magrare "Wire, I have been taking Umary per 16 month, getting my fiscal test every year I..." + (show)
@magrare

Wire, I have been taking Umary per 16 month, getting my fiscal test every year I did two months ago, my kidneys and my liver are perfect

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I wrote wrong number no 16 months it’s 14 months

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1 reply
sandiw77 | @sandiw77 | Apr 18 11:49pm
In reply to @magrare "I wrote wrong number no 16 months it’s 14 months" + (show)
@magrare

I wrote wrong number no 16 months it’s 14 months

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@magrare, so glad that it’s working for you and that your labs look great too. Continued blessings! ❤️

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1 reply
magrare | @magrare | Apr 19 3:49pm
In reply to @sandiw77 "@magrare, so glad that it’s working for you and that your labs look great too. Continued..." + (show)
@sandiw77

@magrare, so glad that it’s working for you and that your labs look great too. Continued blessings! ❤️

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Thanks, many blessings for you

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2sweet4umarie | @2sweet4umarie | Apr 20 10:33pm

UMary has more than 3 xs the recommended daily amount of Diclofenac that a person should have. It was sent off for testing and I was given the report. I stopped taking it cold turkey. My joint pain and inflammation was horrible for 2 weeks and then is flaring up regularly. On the flip side my chest tightness and pain has eased up as has my round face and I can sleep well again. This stuff is nasty and should be properly labeled.

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laurieh | @laurieh | Apr 21 4:21pm
In reply to @crystalrn "Here is a copy of the email I sent to ConsumerLab.com: I am hoping to hear..." + (show)
@crystalrn

Here is a copy of the email I sent to ConsumerLab.com:
I am hoping to hear something back or at least pique their interest enough to look into it.
I'm not sure why anybody thinks there is dexamethasone. AKA Decadron, in it. Decadron has a very short half life when injected into joints. Basically worthless. Kenalog works much better. I've taken oral Decadron in the past without any effects like UMARY has given me.

Tue, Apr 9, 4:27 PM (2 days ago)

to info, bcc: me
Hi,
Retired RN here. I am a member of Mayo Clinic Connect's newsletter
forum. There is quite a discussion going on about a Mexican Supplement
called UMARY. Supposedly provides Hyaluronic Acid, Turmeric and some
other herbs to help with Arthritis as well as Polymyalgia Rheumatica.
The people who are on it are saying that it is a miracle supplement
because 24-48 hrs after the first dose, they are feeling 100% better.
Amazon and WalMart have both been selling it and cannot keep it in
stock. Probably as word of mouth travels.

I have tried it and I can tell you that it does work as people claim.
I could tell a difference in my Spinal OA 2 days after starting it.
Someone in Canada had it tested.

The Canadian test disclosed the presence of diclofenac (Voltaren, a
prescription NSAID) at about 25-30 mg. I am quite familiar with
Voltaren after taking it for about 10 yrs. I was taking 100 mg a day.
Worked pretty good but not nearly as well as UMARY does. The other
possibility is the homeopathic effect of using tiny doses of
something.

Some people suspect the presence of steroids in it. Well, I've taken
those too over the last 35 yrs and NOTHING in that category has been
as effective as this stuff.

Soooooo.... I would like to ask you to do an analysis of this on an
emergent basis before people start killing their kidneys, liver or
brain. If you basically find nothing more than what the bottle says is
in it, it could be the combination or the process of production. Or it
could be that some of the plants being used are being harvested from
an area that has wastewater irrigation or outflow. Diclofenac is
excreted by patients in the wastewater stream and is not filtered out
even here in the USA. It is also readily absorbed by plants so it
could possibly be transmitted to people either in supplements or food
sources. In other words, don't irrigate crops with wastewater! (I
know of places that use spray fields for post-treatment wastewater and
then allow farmers to grow hay on it. Transmission in meat from
grazing animals???)

Sincerely,
Crystal Griffith RN

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Hi Crystal
I just received my test back from Get Your Drugs Tested in Vancouver. The Umary came back as 40-45% diclofenac. Please let us know if/when you get a response from Consumer.labs.
Thank you

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1 reply
crystalrn | @crystalrn | Apr 22 11:26am
In reply to @laurieh "Hi Crystal I just received my test back from Get Your Drugs Tested in Vancouver. The..." + (show)
@laurieh

Hi Crystal
I just received my test back from Get Your Drugs Tested in Vancouver. The Umary came back as 40-45% diclofenac. Please let us know if/when you get a response from Consumer.labs.
Thank you

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I'm concerned that they reported this as a percentage. We need to know how many milligrams that corresponds to. 40-45% could be any amount of mg. I guess I need to get my gram scale out and weigh the tablet. That would definitely come in as a W.A.G. (aka wild ass guess!)
I have also lodged a request with the FDA and they have it now listed to be checked into.
One surprising thing I discovered is that the first bottle I got did a fantastic job of relieving my arthritic pain. Then I was out for a week before I got some more delivered. It is not working like the first bottle did. That tells me that there is basically no quality control being done. I've never had that issue with a name-brand prescription drug. I expect that the FDA will test it and find the diclofenac and ban it since diclofenac was a script drug only. The drug was discontinued in the USA because it was found to cause heart attacks similar to the drug Vioxx which was pulled off too years before. Diclofenac was supposed to be the replacement since it worked very well. Also, apparently Voltaren Gel has also been discontinued by the manufacturer. I guess it comes down to whether or not you want to take the risk of a heart attack or stroke.

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