1. < MAC & Bronchiectasis

Anyone have extreme itchy back?

Posted by calinski420 @calinski420, May 31, 2022

Just curious if anyone has extreme itching of your back . I have COPD, MAC and Bronchiectasis. This itch seems deep in the tissue. The sensation is a cross between itching/pain and numbness. Scratching does make it feel better. It feels like something is "there"

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Bonniewhite56 | @bonniewhite56 | Jul 23, 2022

O hi thought I was going crazy! My back itches so so badly. It has been in my scalp too. I need to have answers. I have MAC and bronchectasis. I’m on no meds.

Thanks for you all sharing. I don’t feel so alone.

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foonfoon65 | @foonfoon65 | Mar 29 7:30am

I have been taking the big 3 since December 2023. My skin is itching and my scalp is worse. Does anyone have any remedies to help with the itching?

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artteacher | @artteacher | Mar 29 8:06am
In reply to @hauoli "I also have an itch in the middle of my back thats difficult to scratch. Ive..." + (show)
@hauoli

I also have an itch in the middle of my back thats difficult to scratch. Ive had Bronchiectasis/MAC for now two years. Only nebulize with 7% and budesonide .5% both twice a day. I cant say what causes the itch. Age? Im 77.
However what does help is to put a lotion on the itch. Seems to help a lot. Maybe it dry skin. My itch is on the surface. Sue is inspiring. Eat a good diet.
For me its fruits and vegetables, mostly organic and since Im loosing weight, nuts, fish and eggs. Proteins seem necessary. Im currently looking into a protein whey thats plant based. Wishing you well. Hal

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My husband also has extreme itching on back legs ankles and head. Perscription helps for a short time.

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pattysyarns | @pattysyarns | Mar 30 8:04am

I too am on big 3 since December 2023 and developed rash in my back and sides and will make an appointment with my dermatologist and I have also developed slight swelling in my legs which disappears by morning-my vitals are normal and echocardiogram was normal- does anyone know if we can contribute both conditions to the big three—or at least one of the big three? Thanks

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1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | Mar 30 2:15pm
In reply to @pattysyarns "I too am on big 3 since December 2023 and developed rash in my back and..." + (show)
@pattysyarns

I too am on big 3 since December 2023 and developed rash in my back and sides and will make an appointment with my dermatologist and I have also developed slight swelling in my legs which disappears by morning-my vitals are normal and echocardiogram was normal- does anyone know if we can contribute both conditions to the big three—or at least one of the big three? Thanks

Jump to this post

It could be one ot the combination of these, or it could be something else.

This is a great question for a Clinical Pharmacist or Nurse with a Pharmacy subspecialty. You provide a list of all prescriptions , over-the-counter-meds, supplements, "natural remedies", topical creams and lotions (like Ben Gay or similar) -everything that goes in or on your body, including the dosage & frequency of each, plus any allergies you have.
They have "interaction checker" tools and can see exactly where the issues might be. There are similar tools on-line, but theirs are more comprehensive.

Can you ask one of your doctors for a referral? Large clinical systems usually have these people on staff or on a consultant basis.

Sue

REPLY
1 reply
pattysyarns | @pattysyarns | Mar 30 6:38pm
In reply to @sueinmn "It could be one ot the combination of these, or it could be something else. This..." + (show)
@sueinmn

It could be one ot the combination of these, or it could be something else.

This is a great question for a Clinical Pharmacist or Nurse with a Pharmacy subspecialty. You provide a list of all prescriptions , over-the-counter-meds, supplements, "natural remedies", topical creams and lotions (like Ben Gay or similar) -everything that goes in or on your body, including the dosage & frequency of each, plus any allergies you have.
They have "interaction checker" tools and can see exactly where the issues might be. There are similar tools on-line, but theirs are more comprehensive.

Can you ask one of your doctors for a referral? Large clinical systems usually have these people on staff or on a consultant basis.

Sue

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Thank Sue

REPLY
joeawesom | @joeawesom | Mar 31 9:10am
In reply to @calinski420 "Thank you. I will try the lotion." + (show)
@calinski420

Thank you. I will try the lotion.

Jump to this post

Try Eucerin anti itch lotion. The itch could be caused by dry skin on your back.

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joeawesom | @joeawesom | Mar 31 9:11am
In reply to @thumperguy "My itchiest spot is my bald scalp." + (show)
@thumperguy

My itchiest spot is my bald scalp.

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My head is itchy too. Probably dry skin. There are some anti-itch sprays that may help you.

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lweirdo1 | @lweirdo1 | Mar 31 2:42pm

Yes I have same issue

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pmmar1 | @pmmar1 | Apr 1 9:12am

Common side effects of Ethambutol are itching and a rash. That may be the culprit. The suggestions given here are good ones and helpful.

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