I have Cerebral Small Vessel Disease: How are you coping?

Posted by sue60 @sue60, Apr 11, 2016

I have vascular small vessel disease that so far just has caused a severe loss of balance. I walk with a cane, but it is getting harder. Likewise exercise is not easy. I still drive short distances. I feel perfectly normal lying down and it is so much easier to do that. The sad part is I don't really see anything that is going to end this as otherwise I am healthy. I know there are many worse things. Does anyone else have this and how are you coping?

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red79 | @red79 | Mar 23 6:57am

In reply to @angelicscripts "Neurogenic Bladder I've an issue with bladder Signals from brain misfiring ..." + (show)

Hi angelic scripts is that the reason we have bladder problems.

red79 | @red79 | Mar 23 7:03am

In reply to @sally12345 "I am on a statin, high blood pressure pills , an aspirin a day, my heart..." + (show)

Hi Amandajro, I'm also getting dizzy sometimes lose balance.im on satins and colpedogral for heart,BP tablets.

red79 | @red79 | Mar 23 7:11am

In reply to @jc2buds "My husband has small vessel diease of the brain and i agree dictors cant really tell..." + (show)

hi Kerry mapstone,I have small vessel disease,i wondered what you meant when you said some days are worse than other what are symptoms your husband having as I don't know anything about this.im still waiting on appointment with neurologist and haven't heard anything since last October when neurologist called me.

angelicscripts | @angelicscripts | Mar 24 1:36am

In reply to @red79 "Hi angelic scripts is that the reason we have bladder problems." + (show)

It could be however I've lumbar stenosis along with Cervical Spondylostis discs gone with encroachment of nerves ..plus an Arachnoid Cyst...I'm under uro/gynaecology
Neurosurgeons are dubious about operating that is When bladder/bowel loose all sensation ..if issue with bladder see a specialist...

red79 | @red79 | Mar 24 9:50am

In reply to @angelicscripts "It could be however I've lumbar stenosis along with Cervical Spondylostis discs gone with encroachment of..." + (show)

Oh I'm sorry to hear this,

red79 | @red79 | Mar 24 9:58am

Hi sue60 I'm getting tired very easily when walking or doing housework,lots of really bad headaches,I'm lucky I got supportive family.could sleep constant if I had chance,you just have to do your best to keep your mind off it,I do jigsaws online and games on phone.the friends I had B4 saying what I got are non existent 😞

red79 | @red79 | Mar 24 10:20am

In reply to @colleenyoung "Hi @sue60, welcome to Connect. I'd like to connect you with @caregiver49, who is also dealing..." + (show)

Hi @caregiver49, I'm really struggling with fatigue.

red79 | @red79 | Mar 24 10:21am

In reply to @red79 "hi Kerry mapstone,I have small vessel disease,i wondered what you meant when you said some days..." + (show)

Sorry to ask Kerry mapstone,

red79 | @red79 | Mar 24 10:27am

In reply to @debbic715 "Thanks keithl56. So good to hear from you. I’ve had that same problem with memory but..." + (show)

Yes debbic715 it's annoying having to wait for appointment with neurologist.stay strong.

sally12345 | @sally12345 | Mar 26 7:04pm

Hi, I was diagnosed with cabs in jan.2020. I have ti.as we're my balance is co.p!sadly off , hard to excessive or walk straight, than it vanishes. I am having a lot of bouts of forgetfulness, leaving objects places , forgetting I put the kettle on.etc. The white matter is vanishing in my bilateral both front cortexes. I keep telling my drs. I want an MRi as it has been awhile to see if it's progressing far but no is the answer. It's frightening not knowing .