1. < Heart & Blood Health

Stiff Heart - diastolic heart failure

Posted by evelyn247 @evelyn247, May 17, 2016

I have been diagnosed with "stiff heart" and would like to have as much information on this topic first hand. Any way to improve this conditions? What do I expect as it progresses?

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 28, 2020
In reply to @susikelley "Im seem to be more and tried, im seeing one the the better heart docs on..." + (show)
@susikelley

Im seem to be more and tried, im seeing one the the better heart docs on monday. My heart was fine 7months ago, it has went from 65% to 45 percent.

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Hello @susikelley,

I've been thinking about you and I wondering about your appointment with the new cardiologist. Did you get any helpful information? Has your treatment or diagnosis changed or were any new meds added?
I look forward to hearing from you.

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Mentor
Dana, Volunteer Mentor | @danab | Jul 28, 2020

Hi @annierae and I also welcome you. I just read your current situation, and the not being able to sleep lying down and the shortness of breath plus the feeling of water weight reminded me so much of what started my heart issues. I was having the same issue not being able to sleep lying down when I finally went to a hospital. Well, when they saw me and realized how bad I looked I was rushed into the trama section and the diagnosis was lots of water had built up around my heart and lungs which caused the shortness of breath. Well basically I was put on iv diuretics and after a couple of days of peeing, I was transferred to a cardiac hospital and was treated for an enlarged heart. It was explained that my heart was weakened by all the fluid and caused my heart to enlarge fighting against the fluid. Luckily my PCP at the time realized what was going on and called in a cardiologist that diagnosed the problem. Mine my ef dropped to 5 % and I ended up with meds and a pacemaker. At least with you it looks like your EF at 70 % your heart sounds like it's in better shape but like everyone else I would get another opinion.
Have a Blessed Day
Dana

REPLY
1 reply
annierae | @annierae | Jul 28, 2020
In reply to @danab "Hi @annierae and I also welcome you. I just read your current situation, and the not..." + (show)
@danab

Hi @annierae and I also welcome you. I just read your current situation, and the not being able to sleep lying down and the shortness of breath plus the feeling of water weight reminded me so much of what started my heart issues. I was having the same issue not being able to sleep lying down when I finally went to a hospital. Well, when they saw me and realized how bad I looked I was rushed into the trama section and the diagnosis was lots of water had built up around my heart and lungs which caused the shortness of breath. Well basically I was put on iv diuretics and after a couple of days of peeing, I was transferred to a cardiac hospital and was treated for an enlarged heart. It was explained that my heart was weakened by all the fluid and caused my heart to enlarge fighting against the fluid. Luckily my PCP at the time realized what was going on and called in a cardiologist that diagnosed the problem. Mine my ef dropped to 5 % and I ended up with meds and a pacemaker. At least with you it looks like your EF at 70 % your heart sounds like it's in better shape but like everyone else I would get another opinion.
Have a Blessed Day
Dana

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Thank you, Dana, Volunteer Mentor @danab, I have contacted my regular internist and if he doesn't repsond by this evening and offer to give me a referral to Mayo I'll be doing that myself. You have a blessed day too!

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1 reply
annierae | @annierae | Jul 31, 2020
In reply to @annierae "Thank you, Dana, Volunteer Mentor @danab, I have contacted my regular internist and if he doesn't..." + (show)
@annierae

Thank you, Dana, Volunteer Mentor @danab, I have contacted my regular internist and if he doesn't repsond by this evening and offer to give me a referral to Mayo I'll be doing that myself. You have a blessed day too!

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Thanks, everyone! I did want you to know my internist called late the afternoon before last and they have made a referral to Mayo Clinic for me. I so appreciate everyone's responses and help. I'll let you know after my appointment (in Rochester) what's happened. Many thanks!

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2 replies
Amanda Burnett | @amandaa | Jul 31, 2020

Wonderful, @annierae! So glad they were able to give you a referral. Please let us know the date of your appointment and the outcome so we can check up on you. 🙂

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Mentor
Dana, Volunteer Mentor | @danab | Jul 31, 2020
In reply to @annierae "Thanks, everyone! I did want you to know my internist called late the afternoon before last..." + (show)
@annierae

Thanks, everyone! I did want you to know my internist called late the afternoon before last and they have made a referral to Mayo Clinic for me. I so appreciate everyone's responses and help. I'll let you know after my appointment (in Rochester) what's happened. Many thanks!

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@annierae That's Great I look forward to hearing how it goes.
Dana

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 1, 2020
In reply to @annierae "Thanks, everyone! I did want you to know my internist called late the afternoon before last..." + (show)
@annierae

Thanks, everyone! I did want you to know my internist called late the afternoon before last and they have made a referral to Mayo Clinic for me. I so appreciate everyone's responses and help. I'll let you know after my appointment (in Rochester) what's happened. Many thanks!

Jump to this post

Hi @annierae, I'm looking forward to hearing from you as well after you are seen at Mayo Clinic. Do you have an appointment date/time scheduled, yet?

REPLY
1 reply
annierae | @annierae | Aug 16, 2020
In reply to @hopeful33250 "Hi @annierae, I'm looking forward to hearing from you as well after you are seen at..." + (show)
@hopeful33250

Hi @annierae, I'm looking forward to hearing from you as well after you are seen at Mayo Clinic. Do you have an appointment date/time scheduled, yet?

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Hi Teresa (Volunteer Mentor@hopeful33250). I have a telephone appointment scheduled on Tuesday morning. I'm hopeful. I feel as if after sending them the discs and reports, if they felt it was tremendously serious, they would have asked me to make a trip up instead of scheduling a phone appt. So this is encouraging to me. I will drop back in to let you know what the result is. I can't say my symptoms are any better, however. Night before last I slept 14 and 1/2 hours from sheer exhaustion, last night, twelve and 1/2. ~Annierae

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susikelley | @susikelley | Aug 24, 2020

I was in hospital for 6days with congestive heart failure, also found out i have STIFF Heart, 15% of the left side of my heart muscle doesn't work. Anyone know about stiff heart?

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susikelley | @susikelley | Aug 26, 2020
In reply to @harmonybentley "Hello. Well I found out that I have a stiff heart a hard way a few..." + (show)
@harmonybentley

Hello. Well I found out that I have a stiff heart a hard way a few weeks ago I woke up and I was wheezing badly. I was a bit dizzy and felt a bit weak as well walking up any stairs knocked the wind out of me also had pain in both arms and shoulder s my husband took me to the hospital they immediately checked me to see if I was having an heart attack. My blood pressure was high the ecg showed no signs of anything bloodwork came back no heart attack they did a chest X-ray and found. Water in my lungs and chest. So they said I was having heart failure I was sent home with water pills saw a follow up dr a few days later they ordered a ultrasound on my heart. And I’m also having thyroid problems was st my endrincoligist yesterday he had access to my hospital records and he saw the echocharogram report he read it then said to me you have a stiff heart. So I’m waiting to hear back from the hospital to go back for a follow up appointment about this echocardiogram

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I also have stiff heart ,10% of left side of heart doesnt pump. Its scary

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