Anyone else out there with extremely high lipoprotein (a)?

Hello @csage1010

This is a great question. I know that you have looked at some videos already, but I found one that helps explain this problem quite well. Here is the link, https://www.mayoclinic.org/medical-professionals/cardiovascular-diseases/videos/the-lowdown-on-lipoprotein-a/vid-20475871

Has your cardiologist made any recommendations regarding this high level?

Does this problem have any recent comments? Someplace else? This is 2 years old I tried but don’t think anyone is responding now.
Thanks.

Does this problem have any recent comments? Someplace else? This is 2 years old I tried but don’t think anyone is responding now.
Thanks.

Hi Rosie: last Fall my cardiologist added Repatha to my cholesterol lowering regimen, and while it lowered my LDL from 109 to 27, there was also a 60% decrease in my Lp(a), although to be fair, I started much lower than you.

I don’t believe Repatha is marketed for anything other than LDL reductions, it may be worth checking. Also, look into clinical trials (if you’re interested), as there are some out there specifically for Lp(a)

Hi Rosie, if you don't mind me asking what was your LP(a)? Mine has been checked three different times and reminds consistently around 93 or 94. I have been told that it remains fairly constant. What were you taking before repatha? I am very interested in repatha since you indicated lowered your LPA. Best of luck to you in your journey too lower the blood lipids.

Hello @rosie66,

There have been some recent comments on this topic, since January of this year, from @dode @meryl59 @kjss @bitsygirl. Perhaps one of these members will respond to your posts. If not, just click on "Reply" under their post and type in your comment or question to them.

If you look under the first post of each discussion group you will see an oval shaped icon that says, "Oldest to Newest" with a drop-down arrow. By clicking on this you can arrange the posts from newest to oldest. That way you are aware of the more recent posts in the group. Each time, however, that you make this change it will automatically revert back to "oldest to newest."

Hi Rosie: last Fall my cardiologist added Repatha to my cholesterol lowering regimen, and while it lowered my LDL from 109 to 27, there was also a 60% decrease in my Lp(a), although to be fair, I started much lower than you.

I don’t believe Repatha is marketed for anything other than LDL reductions, it may be worth checking. Also, look into clinical trials (if you’re interested), as there are some out there specifically for Lp(a)

I just found this group and think it's very informative....I'm a 53 year old woman who was recently diagnosed with high lipo protein a (over 600), plus high triglyderides (224), HDL of 71 and LDL of 135. Until last summer, I'd never even heard of lipo protein A and wonder why it's not tested for and discussed more, since it sounds relatively common?

Regardless, what's even scarier to me is that we found out last summer that my 19 year old daughter also has high LPA and LDL levels...and she's a super fit Division 1 collegiate athlete who eats a pretty clean diet (lots of veggies and low fat protein). She's already on a statin, and has to have echos every five years. I guess it's good that we know and hopefully can do something about it, but it's terrifying to me. We also lost my mom at age 58 due to complications of a heart attack, and her father died at age 48 of his third heart attack, so we clearly know where it comes from.

My cardiologist hasn't given me any dietary guidelines as yet so I'm finding your comments interesting. I haven't gotten to read everyone's comments yet but it sounds like either low carb or vegan are the two best options. Wish me luck! And the same to you.
kjss