My pulmonologist

Posted by leelou03 @leelou03, Mar 1 11:34pm

I have asthma and COPD, chronic cough my pulmonologist doesn't seem to help me with any of this. My shortness of breath,he keeps wanting to blame my GERD. My CT scan said minimal interstitial disease and 2 small cysts. I tell him I have not felt good, my cough is increasing, he doesn't even look at me when I'm talking. There's a group of pulmonary doctors,but they are together and I don't know if I could go to any of them.
I sure don't know what to do

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kdalda75 | @kndaustin71 | Mar 5 9:51am

You need to seek alternate care. Research Pulmonary Doctors in your area outside the group you are now going to. Be mindful of their educational background, experience, patient reviews and possible research publications. If you cannot find a suitable physician in the town/city consider traveling to a larger well-known clinic, ie Mayo, Cleveland, John Hopkins, Temple. After I researched Interventional Pulmonologist, I ended up at Duke University! Excellent program, excellent staff and excellent results! Hope this helps!

leelou03 | @leelou03 | Mar 5 9:55am

In reply to @kndaustin71 "You need to seek alternate care. Research Pulmonary Doctors in your area outside the group you..." + (show)

Yes I got 2 new doctors, one is 40 minutes from me but I have to get this under control
Thank you 😊

klm2 | @klm2 | Mar 6 10:00am

I am trying to learn more about pulmonary fibrosis. Ofev made a friend too sick.

I have done some googling but haven't found much information on options. Anyone know any other meds or treatments I could research?

vic83 | @vic83 | Mar 6 6:22pm

In reply to @klm2 "I am trying to learn more about pulmonary fibrosis. Ofev made a friend too sick. I..." + (show)

Pulmonary Fibrosis Organization
https://www.pulmonaryfibrosis.org/get-involved/volunteer/pff-community-registry?gad_source=1&gclid=EAIaIQobChMI6rGUh_HghAMVBUpHAR1lAgdeEAAYASAAEgJT1_D_BwE

19stine75j | @19stine75j | Mar 6 9:48pm

So sorry to hear that but sometimes we do wonder if our doctors really care!

19stine75j | @19stine75j | Mar 6 9:51pm

In reply to @19stine75j "So sorry to hear that but sometimes we do wonder if our doctors really care!" + (show)

Maybe u should think about finding a new pulmonary doc . Never hurt to get second opinion s

19stine75j | @19stine75j | Mar 6 9:53pm

In reply to @19stine75j "Maybe u should think about finding a new pulmonary doc . Never hurt to get second..." + (show)

I hav Pulmanary fibrosis was diagnosed in 2015 . I feel what you’re saying

19stine75j | @19stine75j | Mar 6 9:56pm

In reply to @19stine75j "Maybe u should think about finding a new pulmonary doc . Never hurt to get second..." + (show)

Ofer made me sick too. Now I’m on Enbrient I’m doing ok with this one so far just started about 4 weeks ago

19stine75j | @19stine75j | Mar 6 9:59pm

In reply to @vic83 "Pulmonary Fibrosis Organization https://www.pulmonaryfibrosis.org/get-involved/volunteer/pff-community-registry?gad_source=1&gclid=EAIaIQobChMI6rGUh_HghAMVBUpHAR1lAgdeEAAYASAAEgJT1_D_BwE" + (show)

Yes Ofer made me sick to I stopped taking it. Now I’m taking Enbrient seems to be doing ok on it so far been on it 4 weeks now

19stine75j | @19stine75j | Mar 6 10:01pm

In reply to @klm2 "I am trying to learn more about pulmonary fibrosis. Ofev made a friend too sick. I..." + (show)

Reaserch Enbrient

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