what is your most disabling symptom and what did you do to treat it?

Extreme fatigue for quite a while, shortness of breath, chest pain, high heart rate, worsened asthma, worsened joint pain, worsened acid reflux & brain fog. Rest, rest, rest. Do a little something.....rest. Doctor had to tweak my reflux meds. Cardiologist did an echo stress test and said it was all COVID related. I could have slept 24 hours a day I do believe. My bloodwork was all over the place after COVID. Things have gotten better after several months...but, I am not where I was before COVID.

I was diagnosed last year with Long COVID. You may not have long COVID or the other symptoms I had. Everyone is so different. Praying for you. Blessings....

Of course my most disabling symptom is severe fatigue and weakness. I have many other symptoms, but these have the largest impact on my life. I went from having an active lifestyle at 86 to being basically homebound. I have tried many things with no results. I am presently trying nicotine patches and cold showers.

Let us know if nicotine patches help??? May try .

I'm 86 and 3 yrs of long Covid. a good breakfast and a V8 before I attempt a big round of shopping with the wife. Naps are good before and after your activity.
I'm thankful for what I got left--it's above ground-lol
Hang in there.

My most disabling symptom has been fatigue / muscle aches since 9/22. My recent main symptom has been problems breathing and an irregular pulse (as per blood pressure monitor).

I recently started taking L-Arginine (3 grams per day) to increase nitric oxide to help the blood vessels and immune system. Should be taken with vitamin C. This week I added L-Citrulline (6 grams per day) that turns into L-Arginine in our bodies. L-Arginine, vitamin C, and L-Citrulline should be taken together. It has almost eliminated my irregular pulse and my breathing is much better.

I also added this week Carnitine that turns our fat into energy. ( I have sufficient fat to donate. :)) It is supposed to help reduce fatigue for people who have MS or are on chemo.

Below is an excerpt from the National Library of Medicine on a study, I believe in Italy, on L-Arginine, vitamin C and long covid symptoms. Note that they had improvement in all symptoms:

Our survey indicates that the supplementation with L-Arginine + Vitamin C has beneficial effects in Long-COVID
Following a 30-day treatment with L-Arginine + Vitamin C, the survey revealed that patients in this treatment group had significantly lower scores (which means less severe long-COVID symptoms) compared to the other group (L-Arginine + Vitamin C: 8.15 ± 1.3 vs Alternative treatment: 13.9 ± 2.3, p < 0.001); remarkably, the treatment with L-Arginine + Vitamin C had favorable effects on all the symptoms explored by the survey
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9295384/

Internal tremors, PEM

My biggest challenge is the impact it has had to my nervous system. (Very similar to a concussion doctors tell me, but one you don’t recover from) They call it Central Sensitization Syndrome. Your nervous symptom sends amplified messages to your senses. Sound is louder than to an average person. Same with light, temperature, visual stimulation (can’t work with computers longer than 30 minutes) A recent example, I went to a small circus with my family. I knew it might be challenging, so wore sunglasses and ear plugs. Even with those, it was too much, and I was in bed for a week after. I have learned to live with it by controlling my environment as much as I can, a pacing myself. I was a workaholic, with a busy life. I am now disabled (4 year) and my “world” has gotten a lot smaller, but I still have many blessings in my life for which I am grateful.

Mine is mostly fatigue & brain fog. As we all know, the fatigue is debilitating. After 17 months of LC, I can go out some. The problem is that I can never make plans because I don’t know from day to day how I’m going to feel. If I’m out, I never know when the overwhelming exhaustion is going to hit. If I let that go for any length of time, it will take me days to recover. In the beginning of this, I had driven myself somewhere. The attack hit so fast. One minute I was fine, and the next, I was overcome. I was in a situation where I couldn’t lie down to stop it, so it got worse by the second. Exhaustion, dizziness, out of breath. I couldn’t drive myself home, and by the time someone gave me a ride, I was in such bad shape that I was non-functional for three days. I got stuck in less dramatic ways a couple more times. Now I stay in complete control. I mostly no longer drive so I don’t get stuck. I have friends that have pushed me to go to lunch, come to their homes instead of them coming to mine, etc. I only put myself in situations where I can be brought home right away if I start feeling bad so I can rest, and keep it from getting out of control. Those of us with LC have so little control over what’s happening to us. I need to feel like I have some control.

I can’t fly because I can’t sit up long enough to make it through an airport. I’ve missed an overseas trip, and two more trips - all to see family, including the 100th birthday celebration of a dear relative. I can’t visit my son.

I’m a pet communicator, but can no longer do that because of my brain fog.

Got covid March 2020. I didn't have a healthy I can't say I have one most disabling symptom - I have three. Cognitive impairment is overwhelming me - all day, every day. The other two are fatigue - which to me is my fatigue level between PEM crashes, and PEM. I can relate to so much of what was shared above. I have a very small world, barely drive, plan everything because spontaneous does not work for me. I've had 3 rounds of cognitive rehab which did not help overall and seems to have been declining over the past year.

PT was tough because I started with the POTS protocol which triggered PEM crashes. We switched to the PEM protocol and couldn't move up the steps due to crashes. I kept activity logs for almost a year with no real improvement. This month is 4 years, and I'm really just tired.

It’s like you wrote my story.