Got covid March 2020. I didn't have a healthy I can't say I have one most disabling symptom - I have three. Cognitive impairment is overwhelming me - all day, every day. The other two are fatigue - which to me is my fatigue level between PEM crashes, and PEM. I can relate to so much of what was shared above. I have a very small world, barely drive, plan everything because spontaneous does not work for me. I've had 3 rounds of cognitive rehab which did not help overall and seems to have been declining over the past year.

PT was tough because I started with the POTS protocol which triggered PEM crashes. We switched to the PEM protocol and couldn't move up the steps due to crashes. I kept activity logs for almost a year with no real improvement. This month is 4 years, and I'm really just tired.

Jump to this post