what is your most disabling symptom and what did you do to treat it?

Posted by dmlindeman @dmlindeman, Feb 29 6:14pm

Would like to ask a question to the entire group. What do you feel has been your worst/disabling symptom and what did you do to effectively treat it? Thanks. Diane Lindeman

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@searcher1

No, I became aware of them from online research.

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Did you take them yourself on your own? Do you have an MD that you consulted with or oversaw what you took? I’ll be scared to do it on my own. They might clash with whatever meds I am on now. Thanks for your reply. I just want to learn as much as I can. I’m not familiar with both Ls. I cannot even spell them. Sorry. Are they supplements like Vit. C?

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@florabel

Were those given to you by your MD? Glad you are feeling much better.
Thank you for your reply.

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The supplements were given to me by my nutritionist. She & my intergrative doctor are working together with my supplements.

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@florabel

Did you take them yourself on your own? Do you have an MD that you consulted with or oversaw what you took? I’ll be scared to do it on my own. They might clash with whatever meds I am on now. Thanks for your reply. I just want to learn as much as I can. I’m not familiar with both Ls. I cannot even spell them. Sorry. Are they supplements like Vit. C?

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I do not take any meds, but I will give an opinion from our friends at Mayo Clinic:
L-arginine-medicine interactions
It's important to know that L-arginine supplements can affect the way some medicines work, such as:

Blood thinners, including aspirin and warfarin (Jantoven).
Certain diuretics.
Nitroglycerin (Nitro-dur, Nitromist, Nitrostat, others).
Some high blood pressure medicines.
Erectile dysfunction medicines.
Diabetes medicines.
Who shouldn't take L-arginine
Don't take L-arginine if you've had a heart attack. There are concerns that the supplement might raise the risk of death.

L-arginine supplements can make allergies and asthma worse. Use with caution.

Don't take L-arginine supplements if you've had cold sores or genital herpes. Too much L-arginine in your system can make the virus that causes those conditions become active again.

Also, don't take L-arginine if you have kidney disease. It may disturb the balance of important minerals in the body called electrolytes. Use of L-arginine has also caused deadly irregular heart rhythms in some people who have problems with kidney function or kidney failure.

If you're scheduled to get surgery, tell your healthcare professional if you take L-arginine. You'll likely be told to stop taking the supplement at least two weeks before your procedure.
https://www.mayoclinic.org/diseases-conditions/high-blood-pressure/expert-answers/l-arginine/faq-20058052

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@searcher1

I do not take any meds, but I will give an opinion from our friends at Mayo Clinic:
L-arginine-medicine interactions
It's important to know that L-arginine supplements can affect the way some medicines work, such as:

Blood thinners, including aspirin and warfarin (Jantoven).
Certain diuretics.
Nitroglycerin (Nitro-dur, Nitromist, Nitrostat, others).
Some high blood pressure medicines.
Erectile dysfunction medicines.
Diabetes medicines.
Who shouldn't take L-arginine
Don't take L-arginine if you've had a heart attack. There are concerns that the supplement might raise the risk of death.

L-arginine supplements can make allergies and asthma worse. Use with caution.

Don't take L-arginine supplements if you've had cold sores or genital herpes. Too much L-arginine in your system can make the virus that causes those conditions become active again.

Also, don't take L-arginine if you have kidney disease. It may disturb the balance of important minerals in the body called electrolytes. Use of L-arginine has also caused deadly irregular heart rhythms in some people who have problems with kidney function or kidney failure.

If you're scheduled to get surgery, tell your healthcare professional if you take L-arginine. You'll likely be told to stop taking the supplement at least two weeks before your procedure.
https://www.mayoclinic.org/diseases-conditions/high-blood-pressure/expert-answers/l-arginine/faq-20058052

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Thank you for this information. Wish you all the best.

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Em regra, dois sintomas intensos e avassaladores coexistem: a fadiga, na qual parece que eseou em "hibernação" e as dores articulares na região sacral. São limitantes de atividades diárias como tomar banho sem passar por muita, muita dor no processo. Alternam entre fases melhores e piores, mas quando inicia permanecem por cerca de 5 dias e parecem ter relação com o ciclo menstrual - que está desregulado também. O que eu faço para melhorar? Suporto o quanto aguento com resiliência, quando fraquejo choro e sinto raiva ou pena de mim e sinto - sempre - muito medo de que a partir de agora a vida seja assim, mas tento ser grata por coisas pontuais e importantes, como o fato de que mesmo assim consigo ver minha filha crescer, por exemplo.

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My most disabling symptoms were complete exhaustion and fatigue. I was so exhausted I couldn't cook, I lived on frozen dinners, I was too tired to take a shower for 2 weeks, and I had extreme thirst every day and a headache every hour. I felt helpless. Here, in this forum, I found 2 ways that helped me. I followed the suggestions on Watercures.org and Dr. Boon Lin on YouTube. Both sites were extremely helpful. I started feeling better in a week with their holistic approaches. The only symptom I am still having is standing up and getting dizzy. Hopefully, that will go away in time.

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@danakelly1956

My most disabling symptoms were complete exhaustion and fatigue. I was so exhausted I couldn't cook, I lived on frozen dinners, I was too tired to take a shower for 2 weeks, and I had extreme thirst every day and a headache every hour. I felt helpless. Here, in this forum, I found 2 ways that helped me. I followed the suggestions on Watercures.org and Dr. Boon Lin on YouTube. Both sites were extremely helpful. I started feeling better in a week with their holistic approaches. The only symptom I am still having is standing up and getting dizzy. Hopefully, that will go away in time.

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Compression stockings may help with the dizziness upon standing, staying hydrated, etc. I have POTS so my cardiologist is balancing my meds to prevent fainting.

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