How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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@sallyj2

Ask your doctor about serum eye drops. They work great and no side effects since they’re made from your blood.

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Ok. I think I have the prescription. I just haven’t gotten it filled due to the cost, but I’ll figure a way to get it.

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Good luck! I think I actually have saved money because I only need them twice a day.

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I’ve spent a fortune on Systane drops and ointment. That’s for sure. That stuff is super pricy.

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I have glaucoma and have had 5 "under-the-knife" surgeries, plus some laser surgeries before that. I am in my 50s. I use the Refresh preservative free drops in the little vials as needed. Rarely do I use the nighttime OTC ointment, but it works great when I do! It can be spendy, though.
The effects of the surgeries along with the daily glaucoma eye drops, do make my eyes dry. But, I can usually manage it using the OTC items that my eyes "like". My former Mayo ophthalmologist, Dr. Bitrian, said, "Your eyes will tell you what they like (as far as lubricating drops)." I don't like the drops in the bottle with the preservative. They don't work as well for me. I also find that OTC 12-hour Sudafed can, not only dry out my sinuses, but also my eyes. So, I try to use that medication only as needed. I have often wondered if prescription dry eye drops can be used for a glaucoma patient, such as myself, or if they would be contraindicated?? It's a question for my doc at the next appointment.

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I asked my Mayo doc at my last appointment if she could "throw me a bone," and give me some free samples of nighttime eye ointment. She said as a non-profit organization, Mayo cannot do that.

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@deejazzy

I asked my Mayo doc at my last appointment if she could "throw me a bone," and give me some free samples of nighttime eye ointment. She said as a non-profit organization, Mayo cannot do that.

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It's so sad, but, a lot of doctor's offices do not give out samples anymore. It certainly saved us all a lot of money to "try before we buy" something if it worked. That was "back in the day!" BTW, Systane Complete puts out a PF (Preservative Free) Formula that works great. I battle dry eyes and they got drier after cataract surgery. I have been on Restasis for years along with Systane and after cataract surgery, it wasn't working as well. I got the punctum plugs (SP?) inserted and the Collagen ones have worked great. The silicone plugs came out after about 2 months and were not as comfortable. I am still on Restasis twice a day and Systane Complete twice a day (better than 5-6 times a day!) and my eyes are comfortable. Praying and God Bless.

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@libertyusa

I had cataract surgery in one eye. I elected not to have same ophthalmologist do the other eye because my new eye now has a pupil larger than in the other eye (I think from stretching during surgery) and I have a very slight eyelid droop (again from a tool he used). He told me he had trouble dilating my eye prior to surgery (but later on, he denied he said that ?!?). THE GOOD NEWS IS MY DISTANCE VISION HAS DEFINITELY IMPROVED and the surgery was not painful. But, with regard to your question on dry eyes - I use a computer daily for many hours. I use drops (Systane and others). But what I want to mention is the BRUDER EYE PADS. The Dr. suggested them and I find them to be very good. The mask (eye pads) has granules in it; you put it in the microwave for 14 seconds. Then (it cannot be TOO HOT) put them over you eyes for 5 minutes. I think they help and I believe the heat opens the tiny blood vessels in your eyelid which simulates tears. (NOW, I MAY NOT HAVE EXPLAINED THat CORRECTLY, BUT I DO THINK THEY HELP). Best wishes, "GolfandTennis".

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I have dry eyes and was recommended to get the eye pads, sort of a warm compress on the eyes. Then you are to massage the eyelid and under the eye gently to encourage oils (I didn't even know eyes had oils before this) to come out. The heating supposedly helps the oil liquefy and drain better. It works and feels so good!

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I can’t recall if I posted on this thread about seeing a new med for dry eye that is in the form of a nasal spray. I saw a commercial for it on tv. It’s called Tyrvaya. Have you tried it?

I’ve never tried it. And, I spend a lot of money on drops and ointments. I’ve never gotten any free samples. This nasal spray would be less expensive that plasma drops, if my insurance will cover it.

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@ew100

I have Sjogren 's syndrome which causes dry eye and dry mouth for many years! I also use Allergan's Refresh eye drops twice a day. Just read that Krill oil may help relieve dry eye symptom. Start taking it last week instead of fish oil!

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I use restasis and Xiidra and use systane complete as needed. Helps some .

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@celia16

I can’t recall if I posted on this thread about seeing a new med for dry eye that is in the form of a nasal spray. I saw a commercial for it on tv. It’s called Tyrvaya. Have you tried it?

I’ve never tried it. And, I spend a lot of money on drops and ointments. I’ve never gotten any free samples. This nasal spray would be less expensive that plasma drops, if my insurance will cover it.

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Hopefully your insurance is better than mine, with my Medicare and supplemental insurance the Tyrvaya was $450 a month.
I contacted my eye doctor’s office the first time I saw the Tyrvaya commercial and did the Rx spray for 3 months with possibly some improvement.
After seeing an Ophthalmologist at Mayo I’m trying Autologous Serum drops. After only 5 days my eyes do feel better, I'm hopeful for continued improvement.

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