Post-Covid dizziness/off-balance, as most troubling symptom

Oh absolutely. Need to push Rheumatologist or get one who will listen and research if needed and keep pushing. We are the first of their patients and they need to admit they don’t know and either want to or don’t.

Hi @dloos do you mind if I ask what type of vision issues? Is it just your prescription or is it something like onset blurred vision like double vision as if you’re drunk and shouldn’t be driving? And your gut…I had a partial colectomy for Crohn’s Disease & Diverticulitis and never had issues since 2011. Not even since COVID in 2021/22. Now I’m just starting to have issues again and trying to gain insight into what other’s are going through. Ozone therapy is not FDA approved and if relief isn’t seen after 4 months I hope you’re not paying out of pocket. People pray on us all the time because we want to get better. ❤️‍🩹

My vision is cloudy, especially my left eye. My eyes have gotten drier since Covid. Perhaps that is the reason for impaired vision. I have been examined by Optometrist, Ophthalmologist and Retinologist. None of them see anything except dry eye.
As I mentioned, my combined issues make me feel drunk.

My digestion is completely different. My bowel very sluggish, almost shut down. Each bowel movement is like giving birth.

I have just started Ozone. Yes, most treatments I’m doing now are considered experimental as all conventional treatments have been exhausted, and were of no help. What other choice do we have? My newer doctors are Osteopaths. They are much more open to trying different therapies.
Most treatments are covered by insurance, some not.
Everybody seems to have a somewhat different experience. So far nothing has helped me.
Good luck to all.

Oh I’m a persistent individual. I don’t take no for an answer. Even if it’s 6 months and no vertigo I’ll take it but there’s always a solution to the “wrong” in our bodies. It’s telling us something. I’m happy to Dr. shop in this situation bc so many easily don’t want to get involved with the long covid issue however the ones who have taken one in their careers are the ones I will find no matter the search. I’m in the NYC area but I’ll tell you it doesn’t make the search easier it makes a lot harder with finding that needle in a haystack. Will keep you posted but it’s nice to know you’re not alone and neither am I. I just thought I was crazy at this juncture.

I had a similar feeling of my body swaying like I was on a boat at times. What has helped me with that is drinking LMNT, a powdered hydration packet, which I order through Amazon. I also lost my taste/smell with Covid in 2022 and still don’t have that back. The hydration packets really do seem to help. Good luck!

I use the hydration packets from Amazon and I think they have helped me also.

Has anyone had trouble with their vision ? Some days worse than others also eye pain. On anti inflammatory eye drops which seems to help. Some days better than others. Had Covid shot in Oct. Has been a journey. Many symptoms since then. I think the fatigue is improving as long as I pace myself. Dizziness still a problem

My vision now needs prescription eye drops upon awakening and at bedtime. My vision has many “floaters “ that are aggravating me. My eyes seem permanently in and out of focus and it’s very difficult to even type this on my phone.
I’ve had cataracts removed a couple of years ago and that only helped for 6 months. My vision goes in and out. I have to blink for temporary focus and my eyes burn, even with the prescribed eye drops. I have a hard time focusing and it drives me crazy. I also have dry eye syndrome. I have the foggy brain and a non stop headache I wake up with and it stays all day varying in intensity.
I need a cane not because my legs need one but for balance. Dizzy spells since my new diagnosis of vertigo that I never had. I haven’t smoked in 30 years but I now have COPD. I’ve also developed sleep apnea which requires a c-pap machine.
My right vocal cord is jammed to the point that I have a gravel type weak voice . My throat hurts all the time especially near the end of the day. I have to gasp for air in the middle of a sentence. They found that my esophagus (near my navel in my abdomen) is slowly closing and squeezing shut which causes me to choke as food swallowed just sits there before it goes down. The pulmonologist found a spot on my lung. I’m waiting for the results of a ct scan today. I barely eat , I’ve lost 3 lbs in a week.
These may not be part of covid but it’s been since my second bout with it. I’ve had covid twice in one year despite the injections, 2 boosters, and now an RSV injection taken yesterday. Runny nose is common , I now double sneeze at any time. Breathing had become difficult since my vocal cord closed. Don’t forget, you breathe through your vocal cords. My ENT says that it’s a good thing my left vocal cord is working or I would suffocate!!
My muscles are weak throughout my body. I don’t know if these symptoms means I have long covid but it sucks enough that I don’t want to get out of bed because my depression got worse and my anxiety too. I don’t know what it is.

I have a lot of eye pain in my sleep mostly. Sometimes pressure, or sharper like a tearing/cutting feeling. They sometimes go real dry and I have to wake middle of night to apply drops. Issues all started post vax Apt 2022 for me.

I had eye pain the first year of my long COVID with blurred vision and dry eyes.

The pain is gone and the blurred vision only happens when I have PEM