Chronic Pain members - Welcome, please introduce yourself

I had my left knee replaced in 2016. It is stiff but not painful. Have you been back to the surgeon regarding
your pain?

Hello, my name is PEDSnurse.
I have been an active BKA since age 5. 10 years ago I had to balance the decision of Work/Painmanagement
It’s difficult yet I found a balance. It changes as I age. Wanting to discuss with others Re:Balance.
FYI: I am an x-Mayo
Employee from the MotherShip.
I do miss Rochester…

I have many times and they will take X-rays and tell me the replacement is intact so there’s nothing they can do. They don’t know why it hurts.

Hello @pedsnurse, Welcome to Connect. I can't imagine how difficult it has been to deal with pain since age 5. I'm sure you are not alone dealing with pain management. @eyount1959 mentioned BKA and phantom limb pain in another discussion here and may have some thoughts or suggestions to share - https://connect.mayoclinic.org/comment/744348/.

I did a search of Connect and found other members who have posted about phantom limb pain that might be helpful to read what they have shared - https://connect.mayoclinic.org/search/.

Do you mind sharing what has helped you find some balance as you age?

Hi, my name is Dee-Dee, I’m 71 and I’ve suffered from chronic pain ever since I had an XLIF spinal fusion 8 yrs. ago. I had ongoing pain in my legs due to some nerve damage. In 2019 I began having terrible pain in my knees. I went to several drs. in my suburban town, but no one could help. I finally went to a knee specialist at Cedars Sinai who immediately diagnosed me with bilateral stage IV osteonecrosis, which explains the excruciating pain. I had a total knee replacement in 2020 but due to Covid it took a whole year to get the other total knee replacement. The second one required more stabilizing further down my tibia. I was referred to a pain management doctor at my UCLA annex due to ongoing pain from my hips down to my feet as well as some newer pain my one arm, and after a lot of testing he diagnosed Fibromyalgia and Greater Trochanteric Pain Syndrome. I have taken Tramadol and Gabapentin since the back surgery, and now am on low dose Savella for the Fibro which has helped. I have done years of physical therapy, swim in my pool every day during good weather, and done some cognitive behavioral therapy, which has taught me so much about the body/brain connection with pain. Also have some digestive problems. My life has changed a lot since 2016 because I am now limited to a lot less walking. But I still work a bit as an interior designer, volunteer in my daughter-in-law’s first grade class, spend time with my 9 grandchildren, and try to live life as fully as I can while relying on my faith in God. I am grateful to have a very supportive husband who does all the grocery shopping and meal prep and looks after me. Thank you for this forum- it helps so much to see that others struggle too.

God Bless you. Praying for you right now. Blessings & Hugs....

Thank you so much!🙏🏻

Looking for relief from pain which showed up a few months after a stroke 9 years ago. It seems to be worsening with the passing years, and neuropathic foot pain and facial pain are part of it. Any suggestions will be appreciated.

I have chronic pain due to an infected revision of a hip replacement. I’ m 85, an ex runner, cycler and competative alpine skier till age 75. I also have a peripheral neuropathy with dimished sensation in my feet and legs and significant balance issues. I take gabapentin 900mg. at bedtime and cymbalta 30 mg. in the AM. Also take extended release morphine 15mg in the AM and bedtime. Supplemental advil. My name is Steve.

Hey, Marcia, I understand what you're saying because I had a knee replacement in 2013 and it seemed to improve....but only for awhile. I went back for follow-ups with the orthopedic surgeon and he said it was intact. Then I took that same x-ray to another ortho surgeon who said otherwise. He scheduled me for surgery and removed the one that was done by the previous surgeon and when he talked to my daughter while I was in the recovery room, he told her the original replacement "fell apart" in his hands. It might be worth taking your most recent x-ray to another surgeon for a second opinion. My knee does bother me from time to time but not near like it did before. Take care and best wishes.
Maryann