Chronic Pain members - Welcome, please introduce yourself

Yes, I have been through a lot. For the cancer I have had regular colonoscopies, but unfortunately I can no longer have these, as the tissue has become too thin. I am now going to have blood tests. I omitted in my introduction, to say that my dura was cut during the third spine surgery and I had a spinal fluid leak. I now have Adhesive Arachnoiditis and Tarlov Cysts. Both very painful conditions.

I have neurosarcoidosis. For the last 2 months I've had what feels like what only cam be described as electrical storms in my arms and legs. I don't know if this is part of the sarcoid or what. I don't have a sarcoid specialist because there's not one in my area that takes my insurance but this is just a new pain added to my chronic extreme all over body pain.

It was an Epdural that caused me to have central nerve damage using the epidural method and the drug called Fentanyl.
It’s a burning itch than starts almost anywhere on my left side, hands, fingers and comes around onto my left side of my stomach.
I’ve have this since I had a left knee replacement in 2018. No cure according to my family physician and Nuerologist.
I was prescribed a spray on, called “Enstilar” which I use almost every day, when it kicks off. It’s not perfect but offers some relief to the burning itch, which drives me crazy.
I’m 81 years old and feel that I should never have been given or had used on me, an Epidural or the drug Fentanyl. This is what kicked my damaged nerveissues off in the first place please consider the above most carefully if your considering an Epidural for any reason.

Hello everyone. I am LeAnne and am in Phoenix, Arizona. Chronic pain has reared it's ugly head off and on for 30 years. Last year, after many months of tests, I was finally diagnosed with CAEBV. I kept telling all of the various specialists I was footballed to that something had invaded my body. Widespread pain especially in fingers, elbow joints (cannot lift a cell phone at night), feet, bones, collar bone etc. Extreme ice cold night sweats are happening regularity, chronic fatigue, heart palpitations, involuntary muscle spasms, eye issues (bright widespread light like looking at the sun with my eyes closed happens a lot. Lasts about 20 minutes accompanied with colorful flashes and about 10 minutes of zigzags). The chronic pain is horrible as my fingers have started to dislocate. Ugh. I am here to get thing off my chest and seek advice since there is no one who treats CAEBV and we are utterly alone in this disease. I was told to see a psychiatrist for my symptoms. So here you all are and I am happy to be here if even just to help others through their chronic pain issues.

I have my medical marijuana card. Which brand gummy works for you? I am having trouble finding one that works?

Also. Is there a specific strain you might smoke that helps at all?

Lumbar Epidural Steroid Injection. I appreciate your response. Above is what I had. No bad side effects and helped decrease my pain.
I am so sorry for your condition. I am 71 and understand your frustration. Constant pain or discomfort. Prayers going out to you.

Unfortunately, I don’t know the information about strains. Each dispensary, at that time, sold proprietary products that they had grown, developed, and tested. You work with the pharmacist in the Dispensary who will help tease out which strain or which ratio of THC to CBD will work for you. For instance, they started me on a 1:1 ratio, and when I felt overly sedated, they moved me to a high CBD/low THC formulation, which worked very well. I was lucky that I stumbled into that Dispensary, because they had products that were microdosed, meaning, they had very small quantities of THC (0.5 mg) to 10 mg of CBD, which is what I needed. Other dispensaries may not go below 1 mg. I’m talking here about medical marijuana dispensaries, not rec, recreational, marijuana, dispensaries, who might be least likely to have such small doses of THC in their products.
I hope that helps.

I buy gummies by Hedy. Their potency is one.0 mg THC/54.0 mg CBD per gel. A dose for me is 1/2 gummy. It lasts about 6 hours. They come 12 gummy‘s to a package, and last me for about a week. At that dose of THC there are no psychoactive effects.

Thank you for the info. I will incorporate more CBD into my regiment. I use a 1:1 tincture sublingual as well as High THC RSO. More THC than CBD. There is also CBG that this one dispensary agent told me about. He said he took a CBD/CBG tincture and was surprised how well it worked for pain. I bought Some but haven't tried it enough to notice a difference. Anyway. Thank you.