Chronic Pain members - Welcome, please introduce yourself

ItchyD here.

Going into about 4th month of moderate to severe joint and muscle pain of an as-yet unconfirmed origin: extreme soreness in upper body after minimal exertions, heart flutters, waves of chills w/o fever. I do have osteoarthritis in most major joints. So, this may be related, but the rate of worsening and the heart symptoms are concerning.

Symptoms come and go, but have been becoming progressively worse in past 5 weeks or so.

Saw doc last week and blood tests are neg. xcept for AST which was barely in high range.

My GPs don't seem as concerned as I'd like them to be, so I'm doing some research and have a vague suspicion that I may be having a toxic response to a psych drug, Lamotrigine. My shrink is dubious, but they always seem to be. My old shrink resisted my efforts to ditch Zyprexa. I persisted and I think it may very well have saved my life.

Am in the market for a rheumatologist. Appreciate any input.

Hi
You have been through a lot ! If you had cancer please recheck the situation asap for a possibly
Hoping for the best outcome for you 🙏🙏🙏❤️

Yes, I have been through a lot. For the cancer I have had regular colonoscopies, but unfortunately I can no longer have these, as the tissue has become too thin. I am now going to have blood tests. I omitted in my introduction, to say that my dura was cut during the third spine surgery and I had a spinal fluid leak. I now have Adhesive Arachnoiditis and Tarlov Cysts. Both very painful conditions.

I have neurosarcoidosis. For the last 2 months I've had what feels like what only cam be described as electrical storms in my arms and legs. I don't know if this is part of the sarcoid or what. I don't have a sarcoid specialist because there's not one in my area that takes my insurance but this is just a new pain added to my chronic extreme all over body pain.

It was an Epdural that caused me to have central nerve damage using the epidural method and the drug called Fentanyl.
It’s a burning itch than starts almost anywhere on my left side, hands, fingers and comes around onto my left side of my stomach.
I’ve have this since I had a left knee replacement in 2018. No cure according to my family physician and Nuerologist.
I was prescribed a spray on, called “Enstilar” which I use almost every day, when it kicks off. It’s not perfect but offers some relief to the burning itch, which drives me crazy.
I’m 81 years old and feel that I should never have been given or had used on me, an Epidural or the drug Fentanyl. This is what kicked my damaged nerveissues off in the first place please consider the above most carefully if your considering an Epidural for any reason.

Hello everyone. I am LeAnne and am in Phoenix, Arizona. Chronic pain has reared it's ugly head off and on for 30 years. Last year, after many months of tests, I was finally diagnosed with CAEBV. I kept telling all of the various specialists I was footballed to that something had invaded my body. Widespread pain especially in fingers, elbow joints (cannot lift a cell phone at night), feet, bones, collar bone etc. Extreme ice cold night sweats are happening regularity, chronic fatigue, heart palpitations, involuntary muscle spasms, eye issues (bright widespread light like looking at the sun with my eyes closed happens a lot. Lasts about 20 minutes accompanied with colorful flashes and about 10 minutes of zigzags). The chronic pain is horrible as my fingers have started to dislocate. Ugh. I am here to get thing off my chest and seek advice since there is no one who treats CAEBV and we are utterly alone in this disease. I was told to see a psychiatrist for my symptoms. So here you all are and I am happy to be here if even just to help others through their chronic pain issues.

I have my medical marijuana card. Which brand gummy works for you? I am having trouble finding one that works?

Also. Is there a specific strain you might smoke that helps at all?

Lumbar Epidural Steroid Injection. I appreciate your response. Above is what I had. No bad side effects and helped decrease my pain.
I am so sorry for your condition. I am 71 and understand your frustration. Constant pain or discomfort. Prayers going out to you.

Unfortunately, I don’t know the information about strains. Each dispensary, at that time, sold proprietary products that they had grown, developed, and tested. You work with the pharmacist in the Dispensary who will help tease out which strain or which ratio of THC to CBD will work for you. For instance, they started me on a 1:1 ratio, and when I felt overly sedated, they moved me to a high CBD/low THC formulation, which worked very well. I was lucky that I stumbled into that Dispensary, because they had products that were microdosed, meaning, they had very small quantities of THC (0.5 mg) to 10 mg of CBD, which is what I needed. Other dispensaries may not go below 1 mg. I’m talking here about medical marijuana dispensaries, not rec, recreational, marijuana, dispensaries, who might be least likely to have such small doses of THC in their products.
I hope that helps.