Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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Well the pain mgt St university has access to all my records.

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@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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@oregongirl

When I read your posts I read expressions from a person who finds death preferable over life due to pain, yet you don't think you are depressed. I understand that as I was once at a point in my life where I told my friend that I just wanted to go to sleep and never wake up. That was a big signal that I was depressed, but I couldn't see that myself. Thus is the nature of depression. I once heard it described as sitting in your recliner and seeing a magic wand across the room that if you used it would get rid of all the bad feelings but you can't make yourself get up and get the magic wand. That was me.

You can be Christian and be depressed at the same time. You are expressing depression in my experience. There is no shame in being depressed; it's one way our minds use to deal with pain among other causes. Also in my case I believe my brain chemistry was off. I had a hard childhood and that can affect how our brains develop. Add chronic pain from injuries through the years and it's a recipe for depression. I was getting talk therapy for many years, and it did help, but I still needed antidepressants. I know now that I will be taking them for the rest of my life. I'm happy to have found a medication that works with no apparent side effects.

I hope you will consider getting genetic testing to find the correct antidepressant and pain medication (if they test for those) for you.

Warm regards,
Gail B
Volunteer Mentor

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@lioness

There,s no respect for us over 70

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@lioness

I'm not criticizing you, so I apologize if that's what came across from my post. I am just concerned about you. I'm happy to hear that you are feeling better. Thanks for responding.

Gail B
Volunteer Mentor

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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@oregongirl

I'm happy you're working with your doctors at University of Texas. I wasn't aware of that. I was just concerned about your state of mind because of your posts recently. I hope your RA is better and that your flare is receeding. My best friend has RA and she struggles with it. I don't know if anything I said was helpful, but I hope something was. Please keep posting here.

Warm regards,
Gail B
Volunteer Mentor

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@lioness

There,s no respect for us over 70

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I don't know if you,ve tried CBC oil balm? I use it on my arthritic shoulders @hip ,I'm good for several hours Can you get it in Texas?I'm in Calif

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@gman007

@lioness, Ask and ye shall receive! jk, but this article; http://time.com/5159879/is-an-anti-aging-pill-on-the-horizon/, discusses the development of a drug that would make our cells act and feel at least 20 years younger. I know that most people who have made it 70 or 80 years on this planet typically say they have no interest in living forever, but the caveat is usually spending that extra time in the physical condition they are currently in. If able to have a much higher quality of life, physically, I think many would be excited at that prospect. However, as a Christian, I believe that my "quality of life" will be beyond my most fantastic imaginings, that I am not sure I would change my answer.

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As a believer I am looking forward to meeting God when my time here on this rock is over He gives us strength to get through daily.

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@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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I have been on Anti Depressants and have been for over a year. When assessed by my doctor, she asked me to keep the antti depressant meds and if I felt like I needed to start them again, I will have them.. Just let her know. There is only ONE reason I welcome death and that is I am not afraid of death and I know the minute I close my eyes I will be with the Lord at that second. If I were to do anything to harm myself, that would not happen. I will never do anything to affect my place in Heaven. I have cymbalta, which I understand works well with RA. I guess the RA doctors even prescribe it. Why I don't know. But, I have them if I need them. I am sorry if I inflicted some horrible thoughts on you and anyone else. There is a limit to what we should and should not say on here. Stay within the lines

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@lioness

There,s no respect for us over 70

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No no Marijuana PERIOD in Texas. They are still arresting people with small amounts of Marijuana. When I lived in Oregon I could get it everywhere.

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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My state of mind is PLEASE GOD TAKE THIS PAIN AWAY. I just got a text from my drs office and I have been approved to have an appt with Pain Mgt. Thank God. By the way, Gail...Do you have RA? If you do, you will understand most of the statements made on here.

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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Sorry Gail....I doubt I will be posting here any longer.

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