HLHS Blog

My name is Gabrielle Wanek and I’m an intern here at Mayo Clinic’s Todd and Karen Wanek Program for Hypoplastic Left Heart Syndrome. I had…

Thank you so much for attending Feel the Beat 2018! We had a total of 176 guests at the event, many of whom traveled far…

Feel the Beat agenda - September 8, 2018 – Gonda building 8:00 am to 9:00 am – Registration and breakfast   9:00 am to 9:25…

Gabrielle Wanek Gabrielle is a twenty-three-year-old with hypoplastic left heart syndrome. She was born in Genolier, Switzerland and has had multiple surgeries including the Norwood…

  If you are attending Feel the Beat on September 8, you’ll want to know what to expect when you arrive in Rochester, Minnesota. Make…

  The HLHS Feel the Beat event is a family-friendly event for anyone and everyone interested in learning more about hypoplastic left heart syndrome (HLHS)…

Registration is now live for the sixth annual Feel the Beat event on September 8 in Rochester, Minnesota. We look forward to seeing you there!…

In December of 2018, I will be graduating from High Point University in North Carolina with a degree in Communication with a focus in Gaming…

Question 1: My HLHS daughter is 14. I’ve been reading a lot about transition of care and making sure she’s ready to care for herself…

Our HLHS program has been very fortunate to have Gabrielle Wanek here with us for the summer. She’s been able to provide insight into what…

Have you ever been so bored out of your mind while waiting in a hospital waiting room? It’s that waiting for an unknown amount of…

During my freshman year of college, I was a theater major. I was passionate about theater in middle school and into high school. That’s what…

I was in concert and marching band from sixth grade until I was a junior in high school. I know I was a band geek,…

This is the second part in a blog series about Gabrielle Wanek, a twenty-three-year-old living with hypoplastic left heart syndrome. Catch up by reading the first…

This is the first part in a blog series about Gabrielle Wanek, a twenty-three-year-old living with hypoplastic left heart syndrome.  I think a few of…

We are very excited to announce that we will be featuring a new blog series by Gabrielle Wanek starting the first week of June. Gabrielle…

AURORA, Colorado — Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Hospital Colorado are collaborating to provide solutions…

Medical research helps expand our knowledge of medical issues. As doctors treat patients and see opportunities for advancing patient care, they work together with scientists…

Mark your calendars for the sixth annual Feel the Beat event on September 8 here in Rochester, Minnesota. Hopefully, the snow will all be melted…

In addition to the clinical trials, imaging studies, and other research our program conducts to find solutions for people with hypoplastic left heart syndrome (HLHS),…