The Dementia Hub is your one-stop place for information, resources, support, and connection. The Hub, as we like to call it, is intended for persons living with dementia, as well as the caregivers, families, and friends who support them.

Here at The Hub, you'll find current and upcoming programs and events on brain health, dementia, caregiving, and research. The Hub is a place to engage with others, share experiences and ideas, ask questions, and feel connected.

Below you can find some resources on caregiving:

 

Mayo Clinic Resources

The Mayo Clinic ADRC offers a variety of support groups to meet individual needs. Each of the groups offer a setting where participants share experiences and feelings with others on a similar care giving path with opportunities for reflection, problem solving, and information exchange.

Led by Mayo Clinic facilitators, the purpose of these groups is for individuals to feel heard, understood, and supported through sharing and learning.

For more information, contact Jodi Melius at melius.jodi@mayo.edu or call (507) 538-4048

 

Caring Conversations

Caring Conversations is a virtual support group for those providing support and care to a spouse, partner, relative, or close friend living with living with Alzheimer’s disease, Lewy Body dementia, Frontotemporal degeneration, mild cognitive impairment or a related disorder.

Caring Conversations meets on the 1st and 3rd Thursday of each month at 11:00am CT.

 

Caring for Lewy

Caring for Lewy is an online education and support program uniquely designed for families and relatives who provide care and/or support to a person with Lewy body dementia

Caring for Lewy meets on the 2nd Thursday of the month at 2:00pm CT.

 

Caring for FTD

Caring for FTD is a support program uniquely designed for families and relatives who provide care and/or support to a person with Frontotemporal Dementia.

Caring for FTD meets on the 3rd Tuesday of the month at 5:00pm CT.

 

Mindful Moment

Mindful Moment is a weekly guided meditation intended for those in a dementia caregiving role.

Mindful Moment takes place on Fridays from 12:00pm-12:30pm CT Contact Angela Lunde at lunde.angela@mayo.edu or call (507) 538-4048 for information and the zoom link.

 

Mindfulness-Based Dementia Caring

Mindfulness-Based Dementia Caring (MBDC) is an 8-week program specifically designed for family care partners of persons with dementia.

Learn how the practice of mindfulness can help you cope with the challenges and stresses of dementia care. The program includes interactive mindful care practices, gentle yoga, lectures, group sharing, and at-home assignments.

For program details, including program dates and times, please contact Angela Lunde at lunde.angela@mayo.edu or call (507) 538-4048

 

Alzheimer's Association Resources

ALZ Connected 

Powered by the Alzheimer's Association, this is a free online community for everyone affected by Alzheimer's or other dementia.

Visit

www.alzconnected.org

 

Alzheimer's Association Care Consultations

An Alzheimer's Association's Care Consultation is an in-depth personalized service for individuals and families who are facing decisions and challenges associated with Alzheimer's and other dementias. The goal for each meeting is to receive education about the diagnosis, learn how to make challenging decisions about care, and develop a plan for the future in a supportive setting. Individual and Family Sessions are available no matter where you live.

Contact

1 (800) 272-3900

 

Alzheimer's Association Support Groups

The Alzheimer's Association offer in-person support groups throughout Minnesota and across all states. These groups are for individuals living with Alzheimer's. caregivers, and others dealing with the disease. All support groups are facilitated by trained individuals.

Contact

1 (800) 272-3900

 

Alzheimer's Association Helpline

The Alzheimer's Association 24/7 Helpline is available around the clock, 365 days a year. Through this free service, specialists and master's-level clinicians offer confidential support and information to people living with the disease, caregivers, families, and the public.

Contact

Helpline: 1 (800) 272-3900

 

 

The Association for Frontotemporal Degeneration (AFTD)

AFTD's mission is to improve the quality of life of people affected by FTD and to work every day to advance : Research, Awareness, Support, Education and Advocacy.

Contact

Helpline: 1-(866) 507-7222

Web: www.theaftd.org

 

CurePSP

CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP CBD, MSA, and related diseases.

Contact

1 (800) 457-4777

Email: info@curepsp.org

 

Lewy Body Dementia Association (LBDA)

The LBDA is dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association's purposes are charitable, educational, and scientific.

Contact

LBD Caregiver Line: 1 (800) 204-3054

National Office, Atlanta, Georgia: (404) 418-7396

Web: www.lbda.org

 

 

U.S. Administration on Aging

ElderCare Locator

Offered by the U.S. Administration of Agining, the ElderCare locator connects individuals to services for older adults and families in the communities in which they live.

Contact

1 (800) 677-1116

web: eldercare.acl.gov

 

 

Local Organizations

Elder Network

Elder Network offers non-medical acare services including Senior Advocacy, Education & Support, Companion Services, Respite Care, In-Home, Peer Support, Friendly Visitors, and Transportation in Southeast Minnesota, Olmsted, Wabasha, and Winona.

Visit the Elder Network Technology Assistance Program

Contact

(507) 285-5272

Email: info@elder-network.org

 

Giving Voice

Giving Voice inspires and equips organizations worldwide to bring together people with Alzheimer's and their care partners to sing in choruses that foster joy, well-being, purpose and community understanding.

Contact

(612) 440-9660

Web: www.givingvoicechorus.org

 

Olmsted County Aging and Care Coordination Services

Home & Community Care programs designed to support elderly and disabled people in their efforts to remain living as independently in the community as possible.

Contact

(507) 328-6519

 

Resounding Voices

A community chorus in Rochester, MN welcoming those experiencing Alzheimer's disease or a related dementia and their support partners. Resounding Voices rehearses weekly and performs publicly.

Contact

(507) 218-8376

Web: www.resoundingvoices.org

 

Southeast Minnesota Area Agency on Aging (SEMAAA)

SEMAAA is a private non-profit agency servicng the eleven counties of SE MN. The Area Agency on Aging works with families, seniors, services providers, and public agencies to help support, coordinate, or develop community services. Their mission is to promote the independence and dignity of older adults so they can age successfully and remain in their home for as long as possible. SEMAAA operates the Senior LinkAge Line a free service that links people to information and assistance.

Contact

Senior LinkAge Line: 1 (800) 333-2433

 

Additional Resources

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