Help us help you: What cancer topics would you like to learn about?

Dec 11, 2025 | Liz Waugh, Patient Educator | @lizwaugh | Comments (55)

The Stephen and Barbara Slaggie Family Cancer Education Center provides free educational resources and support for cancer patients and their families – including group classes, patient navigation, and online resources through Mayo Clinic Connect.

Throughout the year, we publish articles on a wide range of cancer-related topics. You’re reading one of them now! Our hope is that these articles provide support, inspire hope, and offer information that is truly meaningful as you navigate cancer or support a loved one.

No one understands what information is most helpful better than those living through the experience. That’s why we’re reaching out today.

We want to hear your ideas.

What topics would you like us to cover in future articles? No suggestion is too big or too small. Our team will research up-to-date evidence and collaborate with Mayo Clinic experts to ensure the information we provide is accurate and useful. While we may not be able to write about every suggestion, your input helps guide our work and ensures we continue offering resources that matter to our community.

Feel free to browse previous articles for inspiration.

What can we write about that would help you on your journey? Please comment below.

Interested in more newsfeed posts like this? Go to the Cancer Education blog.

gofishto | @gofishto | Jan 15 11:45am

I’d like more info on follicular lymphoma. Why did they change the name?

Lori, Volunteer Mentor | @loribmt | Jan 15 12:42pm

In reply to @gofishto "I’d like more info on follicular lymphoma. Why did they change the name?" + (show)

Hi @gofishto There is an informational article on the Mayo Website for Follicular Lymphoma. Here is that link: https://www.mayoclinic.org/diseases-conditions/follicular-lymphoma/symptoms-causes/syc-20584732

It is listed under follicular lymphoma. I’m not aware of any name change. I’m one of the mentors in the Blood Cancer & Disorders support group. There are quite a few members with that diagnosis who have ongoing conversations. Here is a link to the search results where you can join in any of the discussions:
https://connect.mayoclinic.org/search/
Is there particular information you’d like or anything I can help you with?

gofishto | @gofishto | Jan 15 5:20pm

Thank you, very informative.

Amy Kuth, Patient Educator | @amykuth | Jun 2 4:09pm

In reply to @sveta25 "Thank you for asking. I would like to see more informtion about CLL treatments, what kind..." + (show)

@sveta25 You asked and we answered. We partnered with a CLL expert at Mayo Clinic to write the article below.

Answers to top questions about chronic lymphocytic leukemia (CLL): https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/answers-to-top-questions-about-chronic-lymphocytic-leukemia-cll/

Where is your husband in the care process?

Amy Kuth, Patient Educator | @amykuth | Jun 15 1:45pm

In reply to @mir123 "Thank you for asking! In the area of breast cancer, I am interested in hearing about..." + (show)

@mir123 Thank you for this suggestion! We worked with a Mayo Clinic breast cancer doctor to write an article about how patients and their care team can work together to choose a treatment plan based on the patient's health, values, and preferences: https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/one-size-does-not-fit-all-in-cancer-care/.

What are some things that have helped guide your treatment decisions?

Amy Kuth, Patient Educator | @amykuth | Jun 15 1:46pm

In reply to @nana120 "Following the previous post regarding age & cancer limitations. I am 83 years old and have..." + (show)

@nana120 Your comment inspired us to write an article on how patients and their care team work together to make care decisions based on the patient's health, values, and preferences: https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/one-size-does-not-fit-all-in-cancer-care/.

How are your knees doing? What seems to help?

Miriam, Volunteer Mentor | @mir123 | Jun 15 4:35pm

In reply to @amykuth "@mir123 Thank you for this suggestion! We worked with a Mayo Clinic breast cancer doctor to..." + (show)

@amykuth Thrilled to hear it! And very much enjoyed the articles. The central thing that continues to help guide my decisions is my "committee" which is composed of my husband, my best friend, and my daughter. With varied life experience and values, they are the people who know me best. Their support is very specific, but at times I've also done what they recommended even though the action wouldn't have been my first choice. So far so good!

nana120 | @nana120 | Jun 16 10:24am

In reply to @amykuth "@nana120 Your comment inspired us to write an article on how patients and their care team..." + (show)

@amykuth After 2 appeals to insurance I have ablation injections scheduled 6/22 to block the nerves and hoping from some pain relief. I am using a cane for stability when I walk.

cyndi1958 | @cyndi1958 | Jul 8 10:32am

My husband has stage 4 pancreatic. But it is rare kind. Mucinous for pancreatic and metastatic lungs mucinous as well. Does not have kras gene mutation. Can't get much information on it and that is so overwhelming. Apparently, 7% of pancreatic patients get this. Don't know how to get info on this.

Liz Waugh, Patient Educator | @lizwaugh | Jul 16 11:38am

In reply to @clyndal1234 "Prostate cancer" + (show)

@clyndal1234 Thank you for sharing this topic with us. We have worked with a prostate cancer and AI expert to write an article on how AI is advancing prostate cancer surveillance. Check it out!
https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/a-smarter-way-to-track-prostate-cancer/
How have you seen AI impact your cancer care?