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5,287 total results
Discussions (289)
Waldenstroms Macroglobulemia
oncologist believes I have WM due to lab tests ... waiting for all the reports and the gene
Last active: Apr 30 11:00am
Chronic thigh bilateral leg pain
He also tested negative for lupus. ... He has received a genetic test to rule ... normal but they finally agreed to the test
Support Group: Chronic Pain
Last active: Jul 13 9:40pm
Newly-diagnosed with Bronchiectasis and shocked
who sent me for an array of blood tests ... to a genetic test for cystic fibrosis ... had me breathe into a mechanism that tests ... Any further tests I should have (cardiology
Support Group: MAC & Bronchiectasis
Last active: Jul 27 4:10pm
Eye mystery
All tests were negative. ... She ordered a MTHFR gene test which ... positive for the MTHFR homozygous C677T gene
Support Group: Eye Conditions
Last active: Jul 8, 2024
Immunotherapy: Keytruda (pembrolizumab)
some information and advice.After the genetics ... test we were told thatROS-1, ALK were
Support Group: Lung Cancer
Last active: Feb 15 1:37pm
Movement disorder
controlled by immunosuppressants as blood tests ... said if it’s not the lupus it must be genetic
Support Group: Brain & Nervous System
Last active: Mar 1, 2022
MAC mycobacterium avium patient, worrisome blood up episode
I went through abundant testing and ... research interest in antitrypsin, I was tested ... out to be low in it due to being a genetic
Support Group: MAC & Bronchiectasis
Last active: Jun 6 7:33am
H63D Gene Mutation & Severe Iron in my brain
H63D Gene Mutation & Severe Iron ... to a Hematologist in Sarasota and I tested ... positive for one of the more unknown genes
Last active: May 22, 2024
What would you do? Medication.
I knew I was genetically predisposed ... doctors said, “Oh, you did your own DEXA test
Last active: 5 days ago
High TSH,High Glucose and low carbon dioxide in blood
metabolic neuromuscular disease.He ran a genetic ... test,but the results have not come ... back yet.The blood tests he recently ... that.I have had pretty much every test
Last active: Mar 15, 2024
Discouragement with Dx Discrepency
They ran a million tests and dx with ... neuropathy", probably a combination of genetics ... She didn't say, "this test would
Support Group: Neuropathy
Last active: Apr 21, 2021
My Osteoporosis is leading to Broken Bones
I am not unhealthy, this is genetic. ... Mom had it so badly, we decided to test
Last active: Jan 4, 2024
Not hard of hearing, hard of thinking?
aircraft jet and round engines (plus genetic ... Could 50% accuracy in a typing test
Support Group: Hearing Loss
Last active: Jan 22, 2024
Colon cancer metastasized to lungs: Husband severely depressed
Dr did the test and found out he has ... the wild kras gene.I'm not sure I am
Support Group: Colorectal Cancer
Last active: Nov 14, 2021
VEXAS Syndrome; how often are men over 50 misdiagnosed?
with VEXAS, and she recommended a genetic ... test ($100), which confirmed the diagnosis
Support Group: Autoimmune Diseases
Last active: Jul 8, 2024
Checking in with the Group: How are you doing?
grueling two weeks of pre-qualifying testing ... found out that my MAI is back after testing ... needle in a haystack due to my rare genes
Support Group: MAC & Bronchiectasis
Last active: Aug 28, 2022
Nerve pain and difficulty swallowing: I could really use some help
terrible pain that can occur on my penis, genitals ... of both feet.I've had the following test ... other specialists I should see, other tests
Support Group: Neuropathy
Last active: Mar 16, 2022
Aortic dissection: Got tips to learn more & afford treatment?
specialist said he thought I had a genetic ... put me in the hospital and ran a few test
Support Group: Aortic Aneurysms
Last active: Feb 28, 2024