Checking in with the Group: How are you doing?
Hello Everybody! Yes, I am still around. I wanted to check in on you all. I just finished up a grueling two weeks of pre-qualifying testing at Mayo for a double lung transplant. I have a few more Zoom meetings next week and then the team will determine if I am able to get the transplant. I also found out that my MAI is back after testing negative since 2014. I suspect (but could be wrong) that going off of my monthly antibiotics (not my choice) combined with being kind of lax with the saline treatments in the last month; may have had something to do with it's return. Needless to say, I am and will be diligent as hell with the saline from here on out. I was told that I will most likely need the transplant by next spring. I was told by the surgeon that finding a cross match for me will be like finding a needle in a haystack due to my rare genes. I am on oxygen now when I move about the house, walk my dogs, or go to rehab. So, that has changed since last Dec. (needing more oxygen use) I have had moments of sadness at times and I think that is normal. Most of my days are good and productive. I have chosen not to waste the days I have now being depressed or a shut-in. I can still breathe reasonably well and do most of the things I usually do. It is good to live in the here and now. Please reply and let me know how YOU all are doing? I have missed you! Hugs -Terri