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Comments (2,481)

@meq I have the same story! This thread has been so great to find. my daughter...

https://connect.mayoclinic.org/comment/977270/

running my own labs for EBV and for Lupus

Discussion: Alpha-1 Antitrypsin Deficiency: Is it considered autoimmune?

Support Group: Autoimmune Diseases

Posted: Dec 8, 2023

@windyshores - I just care about my health. Being that is is obvious I have an...

https://connect.mayoclinic.org/comment/1190131/

already been done to rule out sjogrens, lupus

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 14, 2024

Dear John, thanks for the in depth reply! I'm not sure I agree with the lupus...

https://connect.mayoclinic.org/comment/1156822/

I'm not sure I agree with the lupus

Discussion: Flare ups?

Support Group: Autoimmune Diseases

Posted: Oct 14, 2024

leslieb24, I am so sorry you are going through all of this. YOU ARE NOT CRAZY!!...

https://connect.mayoclinic.org/comment/1152800/

from "I think you have borderline Lupus

Discussion: Blood work and misdiagnosed!?!

Support Group: Autoimmune Diseases

Posted: Oct 6, 2024

I battle this on my cheeks...even in the summer. Have you tried a cleansing oil for...

https://connect.mayoclinic.org/comment/1121924/

underlying autoimmune disease like Lupus

Discussion: Skin Care Question

Support Group: Skin Health

Posted: Aug 11, 2024

I do not know if this could be relevant, or if you have been tested for...

https://connect.mayoclinic.org/comment/1092271/

and over for things like Lyme, MS, Lupus

Discussion: Could it be MS?

Support Group: Brain & Nervous System

Posted: Jun 23, 2024

Hello. I’m new here. I found out I have lung cancer by accident. I’m not sick...

https://connect.mayoclinic.org/comment/946509/

I also have an autoimmune disease (Lupus

Discussion: New here: Looking for others who have NSCLC and information

Support Group: Lung Cancer

Posted: Oct 12, 2023

I lived a completely normal confident life before this. I was great. I definitely know that...

https://connect.mayoclinic.org/comment/858897/

A lot of people have said lupus.

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

Thank you so much for your words of understanding and support. We received the diagnosis on...

https://connect.mayoclinic.org/comment/815807/

/hospitals have a special focus on Lupus

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2023

Hi Everyone, I am the mother of a 20 year old male that was just diagnosed...

https://connect.mayoclinic.org/comment/815025/

male that was just diagnosed with Lupus

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Feb 21, 2023

@sherda Thank you @colleenyoung for tagging me into this conversation! I was diagnosed with Systemic Lupus...

https://connect.mayoclinic.org/comment/783218/

I was diagnosed with Systemic Lupus

Discussion: Pending testing to confirm type of lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Hello @johnbishop .. thank you for responding to my post as it's important to raise awareness...

https://connect.mayoclinic.org/comment/318184/

phenomenon, overlap syndrome, systemic lupus

Discussion: PMR and Cancer

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2020

@oregongirl Yes, because most of my pain now is from my multiple sclerosis and lupus. Most...

https://connect.mayoclinic.org/comment/96734/

is from my multiple sclerosis and lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 4, 2018

Hi @johnwburns, thank you for your thoughts and the test link. Prednisone 5mg is one of...

https://connect.mayoclinic.org/comment/108496/

They consider my lupus inactive. ... nifedipine for Raynauds are used to manage Lupus ... week for EMG...he thought I may have lupus

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 21, 2016

Hi! Oh gosh, I know you have a tough decision ahead of you. It’s easy to...

https://connect.mayoclinic.org/comment/1039123/

Your lupus is quiet, you’d have time ... using donor cells may also cure your lupus

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 23, 2024

I was diagnosed with MCTD in 2013 and misdiagnosed with fibro many years earlier. I was...

https://connect.mayoclinic.org/comment/56490/

correctly diagnosed with sjogrens/lupus ... something else typically RA, Sjodrens or Lupus

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Jan 8, 2018

Hi I think I have it! No you are not crazy, it is not all in...

https://connect.mayoclinic.org/comment/335707/

DX: Lupus after prolonged illness, TX ... DX: confirmed negs of Lupus PCD: BW,

Discussion: Illusive Diagnosis, Pain Increasing

Support Group: Bones, Joints & Muscles

Posted: Feb 19, 2021

I've read that most people with TLE have the bumps you mentioned, but I do not....

https://connect.mayoclinic.org/comment/117616/

Since tumid lupus bumps are mucin deposits ... She has tumid lupus with positive ANA

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Aug 12, 2017

I am in the process of being diagnosed with some type of lymphoma. I late February,...

https://connect.mayoclinic.org/comment/1264252/

keeping all of it from my wife who has lupus ... care of her parents and usually has a lupus

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 22 2:33pm

Hi there ..... I am so sorry for what you are going through and other's in...

https://connect.mayoclinic.org/comment/1105124/

I have Lupus which strikes me on the ... my grandma died of complications of Lupus

Discussion: ANA positive result/rare patterns

Support Group: Autoimmune Diseases

Posted: Jul 13, 2024