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Comments (2,292)

About 20 years ago, I was diagnosed with MGUS. Once A year I traveled to a...

https://connect.mayoclinic.org/comment/1048375/

20 years ago, I was diagnosed with MGUS

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Hi Sheryl Some recent research has shown that insulin resistance seems to be the cause of...

https://connect.mayoclinic.org/comment/1046127/

I have MGUS, fatty liver, and obesity

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

I have increases in both FLCs but ratio stable. I’m also Biclonal IgG kappa and IgM...

https://connect.mayoclinic.org/comment/1003646/

since 2021 when first diagnosed with MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

Yes! We have to remember that all treatment options carry risk. Personally, I prefer to embrace...

https://connect.mayoclinic.org/comment/963514/

MGUS is not a pronouncement of dreadful

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...

https://connect.mayoclinic.org/comment/898857/

The Hematologist told him he has MGUS

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Thank you Lori. This is such helpful information. I was diagnosed in February of this year...

https://connect.mayoclinic.org/comment/875317/

diagnosed in February of this year with MGUS

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

@roch, the follow up notes were from a nurse that I last saw for my labs...it...

https://connect.mayoclinic.org/comment/1269823/

Also she included that MGUS is undetectable

Discussion: No appointment scheduled for my labs at Mayo...??

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:38am

I read through the comments and it is true, some Hemonocs look at M-Spikes over 1.6...

https://connect.mayoclinic.org/comment/1287826/

See a specialist in MGUS and Myeloma

Discussion: M-Spike and Lambda light chain increasing while KL ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Apr 22 9:36pm

I use to ride bikes up to August of 2022 and got COVID in early August...

https://connect.mayoclinic.org/comment/991014/

dealing with THAT issue, so with that, MGUS ... different people's issues with MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

Good morning nette6. I was diagnosed with IGM MGUS in 2021 at age 67 by a...

https://connect.mayoclinic.org/comment/1019647/

I was diagnosed with IGM MGUS in 2021 ... that there should be no symptoms with MGUS ... November he said that he felt the MGUS

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

bach@bach Thank you for sharing your story. Having a diagnosis of MGUS or any disorder/disease can...

https://connect.mayoclinic.org/comment/911559/

Having a diagnosis of MGUS or any disorder ... I was diagnosed in 2020 with MGUS and ... researched everything I could find about MGUS

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

I thought you might be interested, I have run a red cell count of 3.75-4.00 most...

https://connect.mayoclinic.org/comment/849921/

I have been diagnosed with MGUS this

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2023

I have high-risk MGUS / SMM. I have posted here a couple of times, including details...

https://connect.mayoclinic.org/comment/1223628/

I have high-risk MGUS / SMM.

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28 8:08am

Good afternoon to all! I am new to this,, having recently discovered my diagnosis of MGUS....

https://connect.mayoclinic.org/comment/888474/

recently discovered my diagnosis of MGUS

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Hi Gina. I was diagnosed with IgM kappa MGUS 8 years ago. Now 82. I think...

https://connect.mayoclinic.org/comment/830243/

I was diagnosed with IgM kappa MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Hi to all! Like many others, I want to learn more about any ways to mitigate...

https://connect.mayoclinic.org/comment/782214/

Turns out I also have MGUS, so I’m glad

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 8, 2022

Hi @fishergramma Welcome to Mayo Connect and thank you for sharing your personal experience with MGUS,...

https://connect.mayoclinic.org/comment/746753/

sharing your personal experience with MGUS

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

ET, Waldromstrom's, Jak 2, and MGUS

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

7 years ago I had complicated bunion surgery. I also had severe foot pain where I...

https://connect.mayoclinic.org/comment/57311/

epilepsy(only voice tremor sometimes), MGUS

Discussion: Burning sensations on skin pressure points, i.e. elbows, hands, feet

Support Group: Skin Health

Posted: Oct 18, 2018

I was diagnosed with CIDP about 5 months ago. In my case it’s thought to be...

https://connect.mayoclinic.org/comment/1197152/

case it’s thought to be related to MGUS

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Dec 25, 2024