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Comments (2,240)

Your story is so similar to mine. So nice to talk to other people with this...

https://connect.mayoclinic.org/comment/1304700/

I have sjogrens triggering all this

Discussion: Sensory Ganglionopathy help!!

Support Group: Neuropathy

Posted: May 15 11:27am

Hi there, I was diagnosed in 2017 with Sjogrens. I have no saliva to speak of....

https://connect.mayoclinic.org/comment/1026411/

there, I was diagnosed in 2017 with Sjogrens ... bumps and ulcers were related to the Sjogrens

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Mar 3, 2024

My RA doctor ran a in depth blood workup. Found sjogrens and markers for multiple melanoma...

https://connect.mayoclinic.org/comment/796756/

Found sjogrens and markers for multiple ... autoimmune and my sister was diagnosed with sjogrens

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jan 14, 2023

I suspect I may have Sjogrens because I have dry mouth, dry eyes, dry skin, dry...

https://connect.mayoclinic.org/comment/781945/

I suspect I may have Sjogrens because ... anyone who has been diagnosed with Sjogrens

Discussion: Body odor without sweat -- Sjogren's Syndrome?

Support Group: Autoimmune Diseases

Posted: Dec 7, 2022

I have been tested for Sjogrens as per my request! Results were negative Thank you for...

https://connect.mayoclinic.org/comment/1164074/

I have been tested for Sjogrens as per

Discussion: Severe dry tongue and mouth, burning lips, cheeks, and nose

Support Group: Brain & Nervous System

Posted: Oct 28, 2024

I just this week had a ENT surgeon take a biopsy of the salivary glands. Apparently...

https://connect.mayoclinic.org/comment/970492/

give us a more definitive result for Sjogrens

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 26, 2023

Thanks so much for the response. My wife is a subscriber to, Sjogrens magazine, but has...

https://connect.mayoclinic.org/comment/875877/

My wife is a subscriber to, Sjogrens

Discussion: My wife has autoimmune disease. She has inflammation in legs and arms.

Support Group: Autoimmune Diseases

Posted: Jun 10, 2023

@gardeningjunkie, If your friend hasn't already seen the Sjogren's Foundation website, it has quite a bit...

https://connect.mayoclinic.org/comment/1256739/

friend hasn't already seen the Sjogren ... diagnosing the condition - https://sjogrens.org ... /understanding-sjogrens/diagnosis.

Discussion: How to verify Sjogren's diagnosis?

Support Group: Autoimmune Diseases

Posted: Mar 13 7:30am

I have connective tissue disease (ehlers danlos) with Sjogrens running in my family. Did the plaquinel...

https://connect.mayoclinic.org/comment/1224909/

tissue disease (ehlers danlos) with Sjogrens

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: Jan 29 4:22pm

Yes, my Sjogrens did that to me. Severe migraine, face pain which led to vomiting and...

https://connect.mayoclinic.org/comment/922314/

Yes, my Sjogrens did that to me. ... to explain until they found my CNS Sjogrens ... I had been diagnosed with duel Sjogrens ... The recent flair of my Sjogrens honed ... Sjogrens is the great pretender.

Discussion: Trigeminal Neuralgia, Sjogrens Disease or something else?

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

My sjogrens is very very dry mouth, day and night. Can’t take the medication cause of...

https://connect.mayoclinic.org/comment/1241981/

My sjogrens is very very dry mouth,

Discussion: Insomia

Support Group: Autoimmune Diseases

Posted: Feb 21 8:07am

Hi there also have Sjogrens lupus nueropathy and pots/ Dysautonomia. Have u found relief with ivig...

https://connect.mayoclinic.org/comment/956150/

Hi there also have Sjogrens lupus nueropathy

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2023

@elmay @naomid you can connect with others talking about Sjogren's in this discussion group: Sjogren’s Syndrome...

https://connect.mayoclinic.org/comment/834308/

connect with others talking about Sjogren ... #39;s in this discussion group: Sjogren ... /connect.mayoclinic.org/discussion/sjogrens

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Mar 30, 2023

Yes, it does help a little. I use a drug called Evoxac. It’s not great but...

https://connect.mayoclinic.org/comment/1158996/

great but when I stop taking it my Sjogrens

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Oct 18, 2024

Suggest you read check this out She is an MD with Sjogrens https://www.sjogrensadvocate.com/classification-criteria I started out...

https://connect.mayoclinic.org/comment/959917/

check this out She is an MD with Sjogrens

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Nov 6, 2023

I had leg weakness too. Sjogrens I thought was the easiest. Can come with some interesting...

https://connect.mayoclinic.org/comment/931287/

Sjogrens I thought was the easiest.

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 17, 2023

After having uveitis it was my ophthalmologist who tested me for the HLA-B27 gene and I...

https://connect.mayoclinic.org/comment/1249662/

I have all the symptoms of sjogrens

Discussion: Ankylosis Spondylitis

Support Group: Autoimmune Diseases

Posted: Mar 3 3:32pm

Hi Blood tests alone are not the accepted criteria anymore for Sjogrens, according to the ACR-EULAR...

https://connect.mayoclinic.org/comment/897721/

the accepted criteria anymore for Sjogrens ... This website is run by a doctor with Sjogrens ... The Sjogren's Foundation also has ... Their website is: https://sjogrens.org ... /understanding-sjogrens : )

Discussion: Pending Sjogren's Diagnosis and Doctor Worries

Support Group: Autoimmune Diseases

Posted: Jul 17, 2023

Sorry.....It would be easier if you specifically describe the symptoms you want o manage if you...

https://connect.mayoclinic.org/comment/1040345/

covid booster triggered a flare of Sjogren ... ;m not really sure what caused the Sjogrens ... 69 years before (in retrospect) my Sjogrens ... There is a wide range of Sjogrens symptoms

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Mar 26, 2024

i had bms for many years with no diagnosis. finally tests determined sjogrens, no help but...

https://connect.mayoclinic.org/comment/104573/

diagnosis. finally tests determined sjogrens

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: Jun 18, 2016